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Ceftazidime intravenous infusion
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wrist arthrodesis- anyone had one
Hi, I have a date for a left wrist arthrodesis. I'm a bit scared. It seems like a successful operation and good for pain relief. My left wrist is pretty damaged from the RA and in constant pain. Often It's bearable and other times excruciating. I was told it would eventually fuse naturally but it could
Hi, I have a date for a left wrist arthrodesis. I'm a bit scared. It seems like a successful operation and good for pain relief. My left wrist is pretty damaged from the RA and in constant pain. Often It's bearable and other times excruciating. I was told it would eventually fuse naturally but it could
Melly68
in
NRAS
7 years ago
Confused with all these benefits
Ok I had a call today from DWP to say that I had received no points from my medical assessment for ESA on 19/9 and that the benefit would be stopped from tomorrow!!! So as far as they are concerned after a l5-s1 spinal fusion in July , fibromyalgia and a history of depress I can work !! I now have
Ok I had a call today from DWP to say that I had received no points from my medical assessment for ESA on 19/9 and that the benefit would be stopped from tomorrow!!! So as far as they are concerned after a l5-s1 spinal fusion in July , fibromyalgia and a history of depress I can work !! I now have
Bellydot
in
Fibromyalgia Action UK
7 years ago
Autoimmune meningitis
Hi! I'm new to this place but not to meningitis IRL. :P I've had it for years to and fro, a year ago I got to know that it's due to Sjogrens and after avaiting full effect of rituximab treatment (and plaquenil, prednisolone, IvIg and medication for Hashimoto's) they now think my symptoms are due to permanent
Hi! I'm new to this place but not to meningitis IRL. :P I've had it for years to and fro, a year ago I got to know that it's due to Sjogrens and after avaiting full effect of rituximab treatment (and plaquenil, prednisolone, IvIg and medication for Hashimoto's) they now think my symptoms are due to permanent
Taiga
in
Meningitis Now
7 years ago
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The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
The British Society for Rheumatology guideline for the management of systemic lupus erythematosus in adults:
Executive Summary
Caroline Gordon Maame-Boatemaa Amissah-Arthur Mary Gayed Sue Brown Ian N. Bruce David D’Cruz Benjamin Empson Bridget Griffiths David Jayne Munther Khamashta
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 years ago
Beginning Rituxin 4 weekly infusions on Friday. Very frustrated.
Diagnosed in May. Started on Dex pulses tha went up to 120k then down below 10k twice. Shifted to Prednisone which kept platelets slightly above 10k. This was through June. IVIG shot me to 230k and back down to 17k within the second week of July. I began 75 mg Promacta in July and late August it was
Diagnosed in May. Started on Dex pulses tha went up to 120k then down below 10k twice. Shifted to Prednisone which kept platelets slightly above 10k. This was through June. IVIG shot me to 230k and back down to 17k within the second week of July. I began 75 mg Promacta in July and late August it was
jasondemarzo
in
ITP Support Association
7 years ago
IVIG infusions
Hello there, After six years of terrible infections, including shingles, strep throat, several pneumonia trips to the hospital, including intubation... Breathing machine, forced oxegen, our local disease control got involved to see if there was a way to keep me lot of the hospital. A new oncologist
Hello there, After six years of terrible infections, including shingles, strep throat, several pneumonia trips to the hospital, including intubation... Breathing machine, forced oxegen, our local disease control got involved to see if there was a way to keep me lot of the hospital. A new oncologist
Kimsome
in
CLL Support
7 years ago
Update
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Olivia2812
in
ITP Support Association
7 years ago
Seeking answers
Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, repeated bronchitis and now dx with, asthma, mild bronchiectasis and COPD. On IVIG infusions for immune disease, now bumped up to nebulizer 2 x day- budesonide
Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, repeated bronchitis and now dx with, asthma, mild bronchiectasis and COPD. On IVIG infusions for immune disease, now bumped up to nebulizer 2 x day- budesonide
Mahod
Asthma Captain
in
Living with Asthma
7 years ago
May or May Not have PC
My PSA is 44. Has been gradually increasing for about 8 years. I know the PSA itself is of little value, but see it as a tool. My Naturopath has had a number between 60-100 for 20 years. I would only become concerned if it started leaping upward. One biopsy was enough. Won't do another. No surgery. No
My PSA is 44. Has been gradually increasing for about 8 years. I know the PSA itself is of little value, but see it as a tool. My Naturopath has had a number between 60-100 for 20 years. I would only become concerned if it started leaping upward. One biopsy was enough. Won't do another. No surgery. No
13thwarrior
in
Advanced Prostate Cancer
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
IVIG FOR PMR
Has anybody tried intravenous immunoglobulin infusions For PMR? My rheumatologist wants me to try it. It's very expensive and I'm not sure if insurance will cover it.
Has anybody tried intravenous immunoglobulin infusions For PMR? My rheumatologist wants me to try it. It's very expensive and I'm not sure if insurance will cover it.
jwb43
in
PMRGCAuk
7 years ago
No concrete diagnosis yet
Hello everyone, I new on here and I am in the process of possibly being diagnosed with lupus. When I was 15 I had a major spinal fusion and shortly after my surgery I began having severe joint pain. My surgeon suggested I had arthritis in my hips and knees from my conformation. Several years later I
Hello everyone, I new on here and I am in the process of possibly being diagnosed with lupus. When I was 15 I had a major spinal fusion and shortly after my surgery I began having severe joint pain. My surgeon suggested I had arthritis in my hips and knees from my conformation. Several years later I
Dressagequeen
in
LUPUS UK
7 years ago
Lupus? ITP?
I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet. He also
I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet. He also
16ITP
in
ITP Support Association
7 years ago
Recent Diagnosis
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
16ITP
in
ITP Support Association
7 years ago
FCR 18 months later
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
beanlake14
in
CLL Support
7 years ago
Stay positive x
Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which is making it a struggle. My antibodies are on a mission destroying my platelets . Predisolone no good, ivig no good , platelets at 9 .so starting
Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which is making it a struggle. My antibodies are on a mission destroying my platelets . Predisolone no good, ivig no good , platelets at 9 .so starting
Olivia2812
in
ITP Support Association
7 years ago
Life or death... Or IVIG.
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Kimsome
in
CLL Support
7 years ago
Itp verses sle
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have ivig, I had my last one last week and my platelets are up to 93 which
I have primary sle and secondary Itp, recently my sle had been in remission but my Itp had been uncontrollable I have tried every treatment medication, rituximab nothing works and my body now rejects prednisalone, so I have to have ivig, I had my last one last week and my platelets are up to 93 which
Manclady61
in
LUPUS UK
7 years ago
Feel like screaming!
Coming up 4yrs ago I had a spinal fusion L5 S1 for degenerative spondylolsisthesis. I was told up to 2 yrs recovery, after this time I was by all means any better,but actually worse than before the op. After months of 2nd opinions, MRI scans,xrays etc I was sent to see a rheumatologist, where I was diagnosed
Coming up 4yrs ago I had a spinal fusion L5 S1 for degenerative spondylolsisthesis. I was told up to 2 yrs recovery, after this time I was by all means any better,but actually worse than before the op. After months of 2nd opinions, MRI scans,xrays etc I was sent to see a rheumatologist, where I was diagnosed
littledotty76
in
Pain Concern
7 years ago
FISH test result changed post chemo
My first post! My husband was diagnosed with CLL in 2004. He had 6 rounds of FC and achieved a good remission. In 2010 he relapsed and had FRC again 6 rounds, again a very good remission. He is IVG mutated and FISH test was negative to all deletions. He is now out of remission. Has just had a FISH test
My first post! My husband was diagnosed with CLL in 2004. He had 6 rounds of FC and achieved a good remission. In 2010 he relapsed and had FRC again 6 rounds, again a very good remission. He is IVG mutated and FISH test was negative to all deletions. He is now out of remission. Has just had a FISH test
lemsford
in
CLL Support
7 years ago
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