Curious how many people with ITP were... - ITP Support Assoc...

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Curious how many people with ITP were in a third world country just prior to getting ITP?

CDmom profile image

Hi,

I am wondering how many people got ITP after a trip abroad to a third world country? I did! I had bruises all over my body just 2 weeks after I came back to USA, April 2017. The western doctors said there was no cooralation and to get used to haveing ITP. But finally I was cured through nonconventional treatment.

I got a homeopathic dr that cured me! I got parasite Rife treatment (even though they could find none in my stool sample), virus homeopathy treatment.

After being a really brittle ITP patient with platelets as low as 1,000 last August 2017, I am cured! This Oct 2018 is my 1 year anniversary since IVIG! Hooray!

I write this in case it helps even on person out there!

Good Health to all.

Good Luck!

40 Replies

Hi , interesting. I caught itp in Egypt, so if the doctors in Wales had given me Antibiotics when I got home, everything would of been ok . Devastated, its 6 years now. I'm on Romoplostim injections for life. Chris

CDmom profile image
CDmom in reply to crissy22a

Hi Chris,

I think there is still hope for you to kick the ITP...

I don't think the antibiotics are the answer. I was given antibiotics for 4 weeks July 2017 and while I was on the antibiotics my platelets were stable and good. But as soon as I was off the antibiotics the platelets got back into the crash every 10-17 days and another round of IVIG.

The only thing that stopped my platelet crashing cycle was killing the parasites by the ultrasonic waves from the Rife therapy and simple parasite erradication capsules she told me to get from the vitamin store and then balancing my immune system with immuno mod caps and along with other homeopathics the practitioner gave me after using the Avitar machine. It took several months for my platelets to become very stable but there was an immediate (within 4 weeks) noticeable upward climb to normal range once I did the parasite cleanse. I can imagine there are parasites in Egypt so maybe you will think it is worth a try?

This crash and burn went on until October 2017 one month after I started the homeopathic stuff. The Western doctors told me I would have ITP for life and I should just get used to that fact. I believed they were wrong and they were not getting to the root of the issue. I am so thankful that I was given the advice to try the non traditional medicine root.

For me the homeopathic stuff seemed a reach but anything was worth a try. Keep me posted if you feel like it.

Take care and be well!

Cindy

LifeafterITP profile image
LifeafterITP in reply to CDmom

I think causes and cures for ITP are a big mystery and guessing game. Everyone has a different story on how they may have developed the condition or how they were cured. I was in the south of the USA for 4 weeks, when I came home to the UK I started noticing bruises on my body, 6 weeks later I was in hospital with a count of 2 and was diagnosed with ITP.

I have no evidence that my visit to the USA caused my ITP, it was more likely just my lifetime environmental / lifestyle / genetic conditions that meant ITP was just waiting to be triggered in me. Likewise some people just go into remission on their own and then claim papaya or something has cured them.

Not enough is known about the causes and cures about this condition.

Shielz profile image
Shielz in reply to LifeafterITP

I was diagnosed when I’m living in the UK. ITP it’s Idiopathic thrombocytopenia purpura. The cause is unknown and there’s no cure to ITP, it’s only treatable.

CDmom profile image
CDmom in reply to crissy22a

Hi Crissy, Just wanted to check in and see how you are doing? I hope great! I am at 260,000 platelets and have not had a crash since Oct. 2017.

I pray you are well too!

Cindy

Interesting question! Nobody in my family has it except me. And I was the only one who spent time in Taiwan, Sweden and Amsterdam in my military years and working years.

CDmom profile image
CDmom in reply to technogeek

Have you tried Rife ultrasonic to kill hidden organisms? Or any other homeopathics? That is what cured me!

What is your definition of CURED? Has your immune system returned to normal, are your platelet counts within the normal range of 150,000 to 450,000? If you are cured, this homeopathic dr’s ”parasite/virus” treatment would be sited in the medical literature and he would be famous. Please send me his/her name, address and phone number; I would to make an appointment.

CDmom profile image
CDmom in reply to Kyriak51

Hi Kyriak51,

My platelets are WNL at about 230,000 and are stable. Dr. Elliott Smith is the homeopathics name. He can be reached at 303-504-3600. he is located in Colorado.

And I agree, I would like to publish this information to help others who might have had gotten their ITP from parasites, etc.

If even a few people can be helped it is worth my time. That is why I started this thread and plan to start working on getting something published later this year.

Good Luck and please keep me posted so I can hopefully add you to the cured list in the future publication.

Be Well,

Cindy

CDmom profile image
CDmom in reply to Kyriak51

Hi Kyriak,

I am just checking in on old conversations and hoping you are doing well. I notices I did not give you the name of the Rife (Ultrasonic Waves that kill virus, bacteria, fungus by destroying their cell walls) Treatment person and will be happy to if you want it. I went to her for 3 treatments. Did you ever see Dr. Elliott or some Avitar practitioneer? I am at 260,000 platelets and have not had a crash since Oct. 2017.

I pray you are well too and would love to hear from you.

Cindy

CDmom profile image
CDmom in reply to Kyriak51

Platelets still 260,000 on 7/2019. No crashes since Oct 2017.

Really interesting! I got IPT after being in Indonesia for a month.

CDmom profile image
CDmom in reply to SurferDude

How long have you had it? Is it worth a try for a cure maybe you caught a bad parasite?

SurferDude profile image
SurferDude in reply to CDmom

My ipt numbers went up to 132, so I am not really worried now. I did a personalized program from a local naturalpath that has worked out well.

FYI my protocol was to eat protein with every carb meal, b6, adding lots of fish to my diet, choline. There was another body type specific supplement I took for a few months.. again, this was very specific to my body and I am not recommending it to anyone else.

CDmom profile image
CDmom in reply to SurferDude

I am so glad to hear your platelets are good!!! Sounds like the natruralpaths recommendations worked! I just feel bad that many people could be helped by other methods than IVIG, steroids and TPOs but they don't know it. I forgot to mention a big diet change I made. I went 100% gluten free October 2017.

Thanks for sharing!

SurferDude profile image
SurferDude in reply to CDmom

My wife is gluten avoiding (not gluten free) so I also get very little gluten. We make gluten free bread, use non gluten oats and so on. Make sense that this could be a factor in people that have IPT from intestinal parasites. Best ... Tom

CDmom profile image
CDmom in reply to SurferDude

Hi SurferDude!

Checking in to see how you are doing? Thankfully, I am at 260,000 platelets and have not crashed since one month after I started the Rife, homeopaty and gluten free diet October 2017.

I hope you are stable and well!

Cindy

Hi Cindy, thank you for Elliott

Smith ‘s contact information. Firstly he is a Chiropractor not a medical doctor who has branched out homeopathic medicine utilizing the Avatar machine to identity and treat problems in the body with the help of supplements. I spoke with his associates who couldn’t have been more professional and helpful in my quest to understand his “cure” for ITP. I was told that he had small number of ITP who were treated by eradication of bacteria/viral infections and supplements to boost the immune system, however, he never used the word “cured” in regards to your ITP. He also has not published his treatment protocol and results.

I’m very happy to hear about extraordinary platelet count of 230 thousand perhaps you were misdiagnosed with ITP. In any case we should be careful not to give false hope to our fellow patients who are desperate for a cure, His staff has been gracious enough to send me information about the “avatar” machine and treatment plans. The avatar diagnosis is only $150.00, not bad. I’ll keep you posted, be well:) Georgia

CDmom profile image
CDmom in reply to Kyriak51

Hi,

I am aware of all the information you shared about Dr. Elliott in your post. By the way, I never used him for chiropractic services. Him being a chiropracotr is incidental to his homeopathic brillance.

Just to clarify because it is important, my diagnosis was ITP. I was diagnosed by a hematologist at University Hospital in Colorado and it was confirmed by the hematologist I saw for a second opinion at Mayo Clinic last August.

As you know the I in ITP means idiopathic (unknown origin) I had ITP! My body was attacking its platelets to seriously low levels. Probably for me it was due to the parasites, etc in my system confusing my immune system.

Of course, I agree with you 100% and I don't want to give false hopes to people whose ITP can't be cured. BUT I do want to help anyone who might have an opportunity to be helped, stabilized or cured from the homeopathic approach.

As I mentioned before, due to my ITP, I was desperately a mess with every 10-14 day platelet crashes for 7 straight months until I was treated by homeopathy. Even my Colorado hematologist said he now believes there is a place for homeopathy for ITP patients.

And sadly there are no papers written yet. I plan to help a paper to get written in the future. Even though it is time consuming for me, I just want to put the information out right now on websites like this to help anyone that might benefit from the information.

Living with the ITP issue was really horrible for me and I was to the critical point once that I thought I might get a brain bleed and die as I sat in the infusion center with a 1,000 platelet count last August. My hematologist said "you have ITP get used to it" as I begged for him to find a reason for my sudden ITP illness! He couldn't, but homeopathy could.

I know it won't help everyone and I am not trying to give false hope. I just wanted to explain a little more to you; I hope it helps.

Thanks and be well.

I listened to. Recent Fresh Air podcast about the immune system and there was an interesting comment about autoimmune diseases that might be relevant. The theory is that the body will develop an immune response to something external. If that external think "looks like" a part of your body to the immune system then the immune system might attack that part of your body. IPT was not mentioned specifically, but autoimmune in general was. Vaccines work because the body remembers previous attacks so it can be prepared next time. It would make sense that some pathagen in third world countries might share qualities with our plateletsnthat stimulate an attack.

CDmom profile image
CDmom in reply to SurferDude

Hi SurferDude,

How are your platelets doing?

Great article! I just want everyone with ITP who can be helped and get back to preITP health to get there.

Doctors don't believe there is a cure for ITP but there is in cases where people have parasites causing the ITP! I have been well with no platelet crashes or IVIG for over a year!!!! I am on no meds and cured. I am mostly gluten free still.

Please keep me posted.

Best,

Cindy

SurferDude profile image
SurferDude in reply to CDmom

Hi Cindy,

Doing really well, thanks. My naturopath has me on some specific things for me:

No carbs without protein

Lots of fish

B6

Choline

Combined with time restricted eating, my platelets reversed the downward trend and have increased to over 126,000!

CDmom profile image
CDmom in reply to SurferDude

Hi SurferDude,

That is fantastic news! Do you have any thoughts on how we can get our stories out to others to hopefully impact this autoimmune nightmare that they are going through?

I love how you put it..."It would make sense that some pathagen in third world countries might share qualities with our platelets" that stimulate our bodies to attack our platelets by mistake.

If you want, I will give my hematologist my story along with yours.

The more people cured the more he might incorporate this into his practice or even publish it.

If you want me to do that, please send me a short summary of when you got ITP dianosis and how long you had it with general info on platelet count before you started homeopathic treatment, and how soon after the treatment you became stable.

We are the lucky ones right now and I'd like to add many more to being ITP free!

Thanks!

Cindy

If you don't mind me asking, when your platelets were low did your poop change consistency? No shape, or turned mushy? I've had my sons poop tested so many times.. His poop goes mushy when his platelets are low and has a distinctive awful smell.. He got itp from his 18 months immunisation. 1 In 40,000 get itp from immunisation. Did many people have there vaccines when going to another country? Vaccines are a cause for ITP as well.

Hello:

I spent 2 months in India, returned to the US and 3 months later was diagnosed with ITP. Would you be willing to share the contact information of the doctor who healed you? Thank you so much. I wish you peace and joy!

CDmom profile image
CDmom in reply to 5bella5

Hi 5bella5,

I am so glad to share the info with you. Thaks for reaching out to me.

In my opinion, you will need to get rid of the infection somehow.

Maybe in person by a Rife expert near, no reason not to try Parastroy from vitamin store, or the western doctors can identify the infection and kill it off.

Dr Elliott Smith can do remote over the phone immune rebalancing and get rid of viruses as well.

Here is the contact info:

Rife Therapy- September 2017

Rife Vibrant Healing Center 303-979-5736

Rife treatment uses ultrasonic waves to kill the membrane walls of the organisms targeted. In conjunction with three Rife Treatments, I took Parastroy an antiparasitic medication.

Avitar Machine-September 2017 to present.

Dr. Elliott Smith 303-504-3600

I got rid of any lingering viruses, fungus and bacteria and rebalanced my immune system through eastern-based homeopathy treatment. The Avitar machine checked my organs using acupressure points on my feet. Once it was determined what my body needed, Dr. Smith selected homeopathic pills and elixirs that treated viruses, fungus, and bacteria and rebalanced my immune system. Additionally, I went gluten free.

Please keep in touch with progress. We need to put all our stories together and get them published to help others that can be cured!

Please feel free to contact me to get additional information or detail.

Here's to you being well again soon!

Cindy

5bella5 profile image
5bella5 in reply to CDmom

I can't thank you enough for your reply. I will contact the doctor and will be sure to let you know of progress. I would like to mention that I have had several stool tests for parasites but none were found. Nothing was seen in the colonoscopy either. But I'm willing to try other modalities to get better.

I wish you peace, joy and good health.

CDmom profile image
CDmom in reply to 5bella5

They never found parasites in my stool either! Are you having night sweats and lots of stool? That is a parasite sign. Also you might have a bacteria or virus or other infection not parasites that is/are causing your issue.

CDmom profile image
CDmom in reply to 5bella5

Hi 5bella5,

Checking in to see how you are doing. Please let me know.

I hope you are stable and well!

Cindy

Hi Cindy!

My name is Louna, I'm 16 and I was diagnosed with ITP immediately after spending a full week in Mexico, March 2018. I had two very large bruises that appeared out of nowhere on my leg and decided to get it checked and was diagnosed later that day.

My initial thought was parasites but the doctors confirmed that there were none in my system so I never thought of it again but coming across your post and seeing how many people have been diagnosed with ITP immediately after travelling to a foreign country makes me open to trying unconventional methods such as your Parasite Rife Treatment.

I've attempted to cure it with steroids and a dose of IVIG but nothing stuck so I am definitely going to look into this more and I very much appreciate your feedback on this topic!

I'm also curious to find out how your homeopathic doctor knew you had parasites?

Will keep you updated,

Cheers

Louna

CDmom profile image
CDmom in reply to lounaalouzi

Dear Louna, I am excited to possibly have you get cured! That is why I am writing this stuff. The drs including Mayo clinic said "you have ITP forever"

My doctors said I did not have parasites too! None of the doctors could find any. I did have night sweats every 4ish am which is characteristic of parasites working away in intestines. Also the amount of my poop increased which is a side effect of having parasites.

Actually the Rife ultrasonic practioneer said she used the ultrasonic frequency for bacteria, fungus, virus and parasites, I think. So in retrospect, I can not be certain it was parasites, it could have been bacteria, etc. It doesn't really matter other then I was cured within a month after her treatment.

Out of curiosity did you ride horses? I was the only one in my travel group that did and was the only one that got sick with ITP.

By the way I am almost done writing a comprehensive short story story about my ITP journey. I'll post on this website as well as others once it is done.

Please keep me posted with your good news. I want to compile all success stories so we can help more and more people.

Best,

Cindy

CDmom profile image
CDmom in reply to lounaalouzi

Hi lounaalouzi,

I am hoping you are doing well.

Please let me know.

Thanks,

Cindy

CDmom profile image
CDmom in reply to lounaalouzi

Dear Louna,How are you doing? I've started a list of ITP cases who have improved dramatically and/or completely after parasite meds, homeopathics, and or rife etc. So far I have 4 people who have improved. Please keep me posted if you go that route or have improved from alternative medicine.

Best,

Cindy

I got it in Cambodia

My son got ITP at 18months old, after his 18month immunisations.

He is now just over 3 and still has relapses. His remissions only last roughly 3 months. He has had steroids which had no affect on him, but IVIG worked great!

My son has never left Australia. However I've researched that one in 40,000 get ITP from immunisations. However I would rather him be immunised as this can be managed!

CDmom profile image
CDmom in reply to Shoni89

Hi,

Maybe look into some type of homeopathic medicines. I used Avatar and Rife ultrasonic treatment.

Good luck!

What's your homeopathy a traditional dose or a constitutional?

Hi CDmom!

This is a very interest topic for me too.

I went to Mexico exactly a year ago. After visiting a water park where you snorkel and all that jazz, I noticed these little red spots on my stomach very similar to mosquito bites but not quite as much inflammation. When I returned to the UK there were quite a lot on my stomach, after a few more days new ones developed.

That’s when I went to see the doc who sent me for a blood test (or 20 lol). All the tests came back clear apart from low platelets (2-10k). After steroid treatment, rituximab infusions and a bone marrow biopsy I was told I had ITP.

Whilst in a Mexico for the first few days I had a bad cough and was coughing up blood at times. My doctor said this was trigger for the ITP. The spots were Pityriasis Rosea totally unrelated apparently.

Since being diagnosed I have travelled to Tunisia and am currently backpacking around Vietnam. My doc has had no issues with me travelling just given the standard advice of not doing Anything silly.

CDmom profile image
CDmom in reply to pats113

Hi Pats113,Following up. How are you doing?

I've started a list of ITP cases who have improved dramatically and/or completely after parasite meds, homeopathics, and or rife etc. So far I have 4 people who have improved. Please keep me posted if you go that route.

Best,

Cindy

Humm. I also had small raised bumps all over my stomach and much lethargy and night sweats the April I caught the issue in April 2017. No drs could figure out my problem other than calling it ITP cause my platelets went down to as low as 1,000. I got bandaid treatments from April 2017 till Oct 2017 of IVIg every 2 weeks , prednisone, and promacta, Anyway, after one month after the Rife ultrasonic treatment and Parastroy medicine Sept 2017, I never needed any IVIg life saving treatments again; it was miraculous. Thanks for reaching out and please stay in touch. My best to you!

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