What is your plan?: "YOU" do have a plan... - My MSAA Community

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What is your plan?

RoyceNewton profile image
3 Replies

"YOU" do have a plan don't "YOU"? Just breathing another day is a good start but it is not really a plan. Okay "YOU" have decided on your Disease Modifying Therapy(DMT), "YOU" have an eating plan that "YOU," think is healthy and "YOU" can stick to. Amazon has the cutest protective underwear on order and "YOU" are awaiting your delivery, better to be safe than sorry. For us Blokes, Fellas, Lads they do just have grey thankfully.

Now to the serious stuff, exercise, Core and walking in particular. The msgym.com is a great resource, especially for newbies, but I would think anybody can learn something. There is that word again "LEARN". My friend, "YOU" thought your school days were over, they have just started.

Here is your first lesson. ms is a lifelong chronic condition. It is not necessarily disabling and there are some things that can be recuperated from. "she who must be obeyed" found that a course of IVIG to be very helpful. She drives now after having not driven for years. Lesson over, it lasts until we are no longer here, it is chronic. "YOU" do not have to be in a wheelchair a nursing home, alone or any other thing that "YOU" may fear, or people tell "YOU". I will say in writing that Yes this is a bit or a surprise and rather inconvenient at times, but smile it is not going to kill "YOU" It is only Relapsing Remitting ms (RRms) it is sort of is a big deal, but a deal that with a plan even just an idea. "YOU" can get up every morning and face head-on. Just take a little time and make yourself a plan. Your very own "LIFE WITH ms SURVIVAL PLAN" WRITE IT DOWN IN PENCIL AS "YOU" will find yourself needing to make changes over your very long ms life.

We all have a very long ms life ahead of us, do not waste it. Have a plan for some goals. That way "YOU" have something to put in your positive memories vault and learn this disease. How it affects "YOU" how it actually works, some positive meditations, some core exercises. How to walk with poles, I still can't but I do not really care about walking like a drunk, it makes for amusing conversations.

Learn your condition, set some goals, get some great memories. This is a long journey, prepare yourself for it, and go forth and live it to your best. Avoid regrets and what-ifs. Just try, try, try and eventually "YOU will "DO". Remember no matter how challenging this in 2018 is a "DOABLE" condition.

Royce

The journey continues and the learning never ends.

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RoyceNewton
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Guava69 profile image
Guava69

"Well said!! You're words are right on time!! Thanks for sharing!! Keep them coming!!☺️👍"I put these words in quotes so I don't sound like a broken record the next time I read one of your posts. I'll just copy and paste my expected responses 😀I actually made a mental note to self to read your posts earlier in the day when my processing skills are at it's peak. With that said. I'm not familiar with Ivig.. so something new to learn about. The msgym website is also new. Even though I'm not a newbie I'm going to give them a shot. Because I had surgery last month and the recuperation time is approximately 6 weeks for normal patients. I've used Home physical therapy and it has not gone too well so I'm eager to give MS gym a shot. Thanks again the information shared is much appreciated ☺️

RoyceNewton profile image
RoyceNewton in reply to Guava69

IVIG intravenous gamma globulin. I am sure a professional explain it to you and trust me I am NOT a professional.

REDLIPS44 profile image
REDLIPS44

AMEN

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