Getting in touch second time not used to emailing!H

[Selsey]

Hi everyone thank you so much for your messages already.A little about myself. Am 81 systemic scleroderma for 26 years. 0steoporosis for 8 years.I find fatigue and muscle pain the most difficult. I receive IVIG has helped but skin like leather.I have no wrinkles because my face is so tight my friends are envious but I say I would like their wrinkles!!My thoughts are with you all xx

[GGhere]

Hi again Selsey. I thought I was the granny in this group but you've beat me by 3 years. Re the scleroderma - I have this too and would describe myself to be like a smoked kipper. I joke that I'm growing my own facelift as my skin gets tighter and one day my eyebrows will disappear to the back of my head. It's very troublesome on my feet and I feel like my skin in not big enough to contain my bones. What fun we have! Keep as well as you can - we look forward to your news.

[honeybug in reply to GGhere]

Hi sweet Betsie

😊🌸🌿🦋

I love your sense of humor about your condition. Everything I wrote in my response to Selsey I feel for you too.

🌸🌿🌸🌿🌸🌿🌸🌿🌸

I’m sooo very sorry that you have this cruel and very serious condition. I can relate to your humor as that is how I deal with my conditions too.

🦋💗🦋💗🦋💗🦋💗🦋

If I had a healing wand 🥢 I would touch and heal you. Because I don’t I send you my sincerest empathy and support. Please take care and know that I have prayed for you.

🙏🕊🙏🕊🙏🕊🙏🕊🙏

Best wishes and abundant blessings sweetie.

Love ♥️ Hugs 🤗 and kisses 😘

EvaJo 😊🌸🌿🦋🙏

[honeybug]

Hi dear Selsey

😊🌸🌿🦋

Nice to meet you sweetie but sooo very sorry under these circumstances.

🌿🌹🌿🌹🌿🌹🌿🌹🌿🌹

I’m 67 I have Raynauds Phenomenon. I don’t have scleroderma but from what you and Betsie have described my heart ♥️ goes out to you for the suffering you’re enduring.

🌸🌿🌸🌿🌸🌿🌸🌿🌸

I have very severe edema at the moment and for about a year now. It’s so bad it produces water blisters. The tissues are dense and it makes movement difficult. What I have described isn’t even a pinprick of the agony you must be going through. I am sooo very sorry and if I had a healing wand 🥢 I would touch and heal you dear.

🙏🥢🙏🥢🙏🥢🙏🥢🙏

I have a friend who is suffering from your condition. She was taking the infusions for a very long time but now they aren’t working. I hope and pray yours continue as long as you’ll need them.

🌈💦🌈💦🌈💦🌈💦🌈💦

Please take care sweetie and know that you have a special place in my heart ♥️ ♥️♥️♥️♥️♥️♥️♥️ Abundant blessings sweetie.

EvaJo 😊🌸🌿🦋🙏🤗💗😘