I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there is no adequate information on the the long term effects of Rotuximab use. It is infused through iv in the port that is placed in my chest. Does anyone else have experience with long term use of Rotuximab? If so, at what dosage and length? I'm experiencing some unsettling side effects, but my GP considers the side effects minimal. Any help or discussion would be helpful. Thanks in advance.
Chronic inflammatory demylinating polyneu... - Healthy Evidence
Chronic inflammatory demylinating polyneuropathy (CIDP), MS, & autoimmune issues
![Julietkellykidwell profile image](https://images.hu-production.be/avatars/0154b627395b476da61c742b91b9b5f8_small@2x_100x100.jpg)
Written by
![Julietkellykidwell profile image](https://images.hu-production.be/avatars/0154b627395b476da61c742b91b9b5f8_small@2x_100x100.jpg)
Julietkellykidwell
To view profiles and participate in discussions please or .
Read more about...
1 Reply
•
Thank you for your response. I do a low carb high protein diet. I no longer eat processed sugar.
Not what you're looking for?
You may also like...
Is there any way of saying "Enough", I do not want to receive anymore medical care or medications, they are doing me more harm than good!
The medication I am receiving is causing me more pain than anything else! It is getting worse, more...
Any way of lessening essential tremors? Usually you should try this drug, or this, etc, would meditation be a relieving way?
I use my old faithful laptop a lot [okay just over two years old, but microsoft thinks it is old...
A rough list of what foods to eat or not with Diabetes 2?
I'm wanting to know what foods not to eat when I have Diabetes 2, should I stay off ?? should I eat...
Stop my hands shaking, I cannot type with two hands, last straw reaction to AZ vaccine, left hand useless, since feb. 2021, getting better?
I have absolutely no confidence, hands all over the place, especially left, high blood pressure,...
Is there meant to be a set time between various scans/MRI/XRays?
I am having various scans/MRI/Xrays done, but is there meant to be set time between certain ones as...