Chronic inflammatory demylinating polyneuropathy (CIDP), MS, & autoimmune issues

[Julietkellykidwell]

I was diagnosed with chronic inflammatory demylinating polyneuropathy, ms, fibromyalgia, and an unspecified autoimmune disorder over ten years ago. I have had IVIG treatment for six years, but it it ceased being effective. I am now on a Rotuximab protocol infusion every five weeks. I am finding there is no adequate information on the the long term effects of Rotuximab use. It is infused through iv in the port that is placed in my chest. Does anyone else have experience with long term use of Rotuximab? If so, at what dosage and length? I'm experiencing some unsettling side effects, but my GP considers the side effects minimal. Any help or discussion would be helpful. Thanks in advance.

[Julietkellykidwell]

Thank you for your response. I do a low carb high protein diet. I no longer eat processed sugar.