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Any body else like me?
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Emmacrispins
in
My Ovacome
7 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
4 months ago
Active B12 levels
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
I read that : The normal range for active vitamin B12 (holoTC) is around 20 – 134 pmol/L (picomoles per My recent blood test states my active B12 level is 83.2pmol/L but states this is optimal. (medichecks) Do I need to supplement this?
Fortie
in
Thyroid UK
4 months ago
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Coroner: Vitamin D packs should outline ‘serious risks’ after overdose death
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
Sometimes vitamin D dosing seems to be regarded as being of little importance provided we get enough. [u]This article and the report make it very clear that [/u][u]
excess
[/u][u] vitamin D is very much to be avoided.[/u] The company mentioned in the report offers products up to 5000 IU. But I
helvella
Thyroid UK
in
Thyroid UK
4 months ago
PSA rising after my 4th chemo
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
Maxone73
in
Advanced Prostate Cancer
7 months ago
Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
4 months ago
Indigestion Medications
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Hi All Can anyone recommend an effective indigestion tablet/liquid that is gluten free. I tried gaviscon advance recently which worked so well but then I reacted as if I’d eaten gluten, it is listed as gluten free so must have been another ingredient that I’m sensitive to, but don’t want to try it
Galaxy2
in
Gluten Free Guerrillas
4 months ago
COLONOSCOPY AND GASTROSCOPY TOMORROW
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
Hi everyone, having my first colonoscopy and gastroscopy tomorrow, to say I am stressed is an understatement, keep imagining all sorts of things, any advice on how to handle the anxiety would be greatly appreciated.
dojoman59
in
IBS Network
4 months ago
metistatic castrate sensetive bone Marrow prostate cancer
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
TMcgee
in
Advanced Prostate Cancer
7 months ago
low lobulated lesion of rectum
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
found large low lesion of rectum after sigmoidoscopy discharged me back to gp So much pain lost weight can’t eat pain all time feels like sitting on golf ball this happened after hospital did manual evacuation after had new hip last Oct Feel so unwell all the time
Perrie46
in
Bowel Disease Support
4 months ago
For ILC or Lobular ladies
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
ba5083
in
SHARE Metastatic Breast Cancer
7 months ago
stool withholding - dulcosoft liquid an option?
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Hi We have a nearly 4 y/o daughter who started withholding about 4 months ago. She point blank refused any mivicol or cosmocol, not even the flavoured ones so we were told to try lactulose. But even then we can only get about 15ml in her a day because she likes water. someone recommended Dulcosoft
Sugarrush575
in
ERIC
4 months ago
'Headspin'
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
Vindicatrix
in
CLL Support
7 months ago
Prednisalone
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
I have wrote recently about hydroxychloroquine upsetting my stomach I have tried them three times, each time I have been taken steriods also ,after stopping g hydroxychloroquine agian about a week ago ,I find mystomach still in a mess ,now I'm beginning to wonder if it the steriods that are giving me
Alice70
in
NRAS
4 months ago
Can't increase my iron levels
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Hi all, I posted in February 2023 my low iron results and started taking 200 Ferrous Sulphate daily then. My iron results after 3 months were Ferritin 39 (20-204) Serum iron 18.6 (4.4-27.9) Feb 23 was: serum iron 11, ferritin was 29. So not a huge improvement. But now, a year on, even worse! Despite
Suzanneharb
in
Thyroid UK
4 months ago
B12 Deficiency
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
Firstly I have it myself and due well on regular injections, however it is very poorly diagnosed and managed in this country, patients popped onto pills when they should be having jabs. 1. https://pernicious-anaemia-society.org/articles/nice-cks-b12-deficiency/#:~:text=Initially%20administer%20hydroxocobalamin
MaryF
Administrator
in
Hughes Syndrome APS Forum
4 months ago
Is there anyone on this forum on Aromatase Inhibitors?
I am taking AI (letrozole) as adjuvant therapy for last six years . Would like to know protocol for AI, duration and bisphosphonate injections. Thankyou.
I am taking AI (letrozole) as adjuvant therapy for last six years . Would like to know protocol for AI, duration and bisphosphonate injections. Thankyou.
gspsad
in
Breast Cancer India
7 months ago
folate and b12
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
hi all, after having bloods done im yet again low on folate. Folate: 2.2ug/l (2.7-34 normal range) B12: 310ng/l (180-914 normal range) My assumption is my gp will put me back on supplements for folate my question being do i need to take b12 also? And as folate and b12 are related could this
Confused1806
in
Pernicious Anaemia Society
4 months ago
Extremely bad acid heartburn
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
hi, On here about my mum again. She is suffering really bad with acid reflux. She hasn’t had chemo for 4 weeks but they did attempt debulking surgery which didn’t work. So we are not sure if it’s something to do with the blood thinners or she’s worried it is the cancer. has anyone else suffered
Holsgram
in
My Ovacome
4 months ago
Could it be B12 deficiency?
I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping
I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping
SpringerMom
in
Pernicious Anaemia Society
4 months ago
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