Could it be B12 deficiency? - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

Could it be B12 deficiency?

SpringerMom profile image
4 Replies

I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping with walking and watersports. Towards the end of an extended break I began feeling quite tired and a couple of weeks later was not functioning at all well. I put this down to thyroid changes and GP increased my Levothyroxine and prescribed 5mg folic acid (as a result of the red flag by Medicheck). I also began taking 1200mcg B12 oral spray, B complex (no B12 or folate), D3 with K2 spray and 3 in 1 magnesium. Initially I felt a bit better but have now slipped back so I am now wondering if I could have developed a B12 deficiency. I have a GP telephone consultation next week as I have expressed concern about B12 deficiency symptoms and would welcome advice as to the best way to tackle this. Will the supplements I have been taking skew any tests I’m offered?

Test results attached.

Thank you in advance.

Written by
SpringerMom profile image
SpringerMom
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Sleepybunny profile image
Sleepybunny

Hi,

Welcome to the forum.

Do you mind me asking which country you are in?

Knowing where you are could help people to post relevant info. Patterns of treatment and diagnostic process may vary according to where you are. Type of B12 used in treatment can vary.

A few B12 links to get you started

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Martyn Hooper is the former chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies. There is also a paediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".

B12 websites

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Welcomes members worldwide.

pernicious-anaemia-society....

PAS membership is separate to membership of this forum.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring and an online contact form.

There is a PAS support group in Chicago area.

pernicious-anaemia-society....

Testing for PA

pernicious-anaemia-society....

B12Info.com website

b12info.com/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

If you're in UK there's a lot more info I can pass on.

I'm not medically trained.

SpringerMom profile image
SpringerMom in reply to Sleepybunny

Thank you for your reply Sleepbunny, I am in England. The PAS and B12info websites have been very useful and have led me to believe that I may have a problem. I began supplementing before reading the warning on this forum and the websites so am a bit worried how much this will skew any further testing. Martyn Hoopers book is also on its way.

Sleepybunny profile image
Sleepybunny in reply to SpringerMom

Hi,

Apologies as in a rush..

I put a lot of info that might be useful on this thread below.

healthunlocked.com/pasoc/po...

SpringerMom profile image
SpringerMom in reply to Sleepybunny

Thank you. I have been following this post as there are many similarities.

You may also like...

Could it not be PA/B12 deficiency?

are also low. B12 is 1470 (range 189-883), but seems useless. Now I think my B12 deficiency is not...

Could I be B12 deficient?

advice on whether I could be B12 deficient with a normal serum B12 level? I have been trying to get...

Could b12 deficiency be my problem?

range but a lot of symptoms I have are those of b12 and I scored 90 on the test on here. My...

Could I have B12 deficiency or PA

an answer, below are the results. Do you think I could have a B12 deficiency and /or PA I spoke to...

Normal B12 test - could I have a deficiency?

suffering from a vitamin B12 deficiency. This is a list of the symptoms I've experienced at one...