Could it be B12 deficiency? - Pernicious Anaemi...

Pernicious Anaemia Society

32,673 members24,070 posts

Could it be B12 deficiency?

SpringerMom profile image
4 Replies

I have been guided to this forum from Thyroid Uk and I’m hoping that, with your help, I can make sense of the fatigue and weakness I have been experiencing. In October last year I experienced what I can only describe as a crash. I am normally fit and active and had a lovely summer with many trips camping with walking and watersports. Towards the end of an extended break I began feeling quite tired and a couple of weeks later was not functioning at all well. I put this down to thyroid changes and GP increased my Levothyroxine and prescribed 5mg folic acid (as a result of the red flag by Medicheck). I also began taking 1200mcg B12 oral spray, B complex (no B12 or folate), D3 with K2 spray and 3 in 1 magnesium. Initially I felt a bit better but have now slipped back so I am now wondering if I could have developed a B12 deficiency. I have a GP telephone consultation next week as I have expressed concern about B12 deficiency symptoms and would welcome advice as to the best way to tackle this. Will the supplements I have been taking skew any tests I’m offered?

Test results attached.

Thank you in advance.

Written by
SpringerMom profile image
SpringerMom
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Sleepybunny profile image
Sleepybunny

Hi,

Welcome to the forum.

Do you mind me asking which country you are in?

Knowing where you are could help people to post relevant info. Patterns of treatment and diagnostic process may vary according to where you are. Type of B12 used in treatment can vary.

A few B12 links to get you started

Two useful B12 books

"What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency" by Martyn Hooper

Martyn Hooper is the former chair of PAS (Pernicious Anaemia Society).

"Could it Be B12?: An Epidemic of Misdiagnoses" by Sally Pacholok and JJ. Stuart (US authors)

Very comprehensive with lots of case studies. There is also a paediatric version of this book "Could It Be B12? Paediatric Edition: What Every Parent Needs to Know".

B12 websites

PAS (Pernicious Anaemia Society)

Based in Wales, UK. Welcomes members worldwide.

pernicious-anaemia-society....

PAS membership is separate to membership of this forum.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring and an online contact form.

There is a PAS support group in Chicago area.

pernicious-anaemia-society....

Testing for PA

pernicious-anaemia-society....

B12Info.com website

b12info.com/

B12 Awareness (US website)

b12awareness.org/

Stichting B12 Tekort (Dutch website with English articles)

stichtingb12tekort.nl/weten...

If you're in UK there's a lot more info I can pass on.

I'm not medically trained.

SpringerMom profile image
SpringerMom in reply toSleepybunny

Thank you for your reply Sleepbunny, I am in England. The PAS and B12info websites have been very useful and have led me to believe that I may have a problem. I began supplementing before reading the warning on this forum and the websites so am a bit worried how much this will skew any further testing. Martyn Hoopers book is also on its way.

Sleepybunny profile image
Sleepybunny in reply toSpringerMom

Hi,

Apologies as in a rush..

I put a lot of info that might be useful on this thread below.

healthunlocked.com/pasoc/po...

SpringerMom profile image
SpringerMom in reply toSleepybunny

Thank you. I have been following this post as there are many similarities.

Not what you're looking for?

You may also like...

B12 deficiency

I have just been diagnosed with b12 deficiency and also iron deficiency. I was initially told I was...
Poodoo profile image

B12 deficiency

I was told in December 12th I am vitamin b12 deficiency and peri menopause.. I had 5 injections for...

Could it not be PA/B12 deficiency?

Hi, after getting weekly injections for the past year, my ferritin level is no 7 (range 10-225), so...
palmtop profile image

Could it be B12 deficiency the cause?

Hi everyone! This is my fist post here (I am opening this as a new post as suggested) and I am...

Is it B12 deficiency?

I’m new to this site. Wondered if anyone was experiencing the same thing as me. I have been...
EJG79 profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.