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Brittle asthma
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Ilieostomy - waistband issue
We're gradually feeling our way through things but my husband has advised me that he is having difficulties with waistbands - he either needs to pull his trousers up really high or have his trousers hanging really low. Is there any solution, for instance to the support belts help. I did buy him ilieostomy
We're gradually feeling our way through things but my husband has advised me that he is having difficulties with waistbands - he either needs to pull his trousers up really high or have his trousers hanging really low. Is there any solution, for instance to the support belts help. I did buy him ilieostomy
Suebedoo
in
Living with a Stoma
3 months ago
Bowel or endometrioma pain?
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma. I am down for surgery for hysterectomy as I have adenomyosis and endo extraction. I've opted out of a bowel resection as the waiting list is longer
Loveneige
in
Endometriosis UK
3 months ago
Chest Clinic
My GP/ Asthma Nurse has referred me to the Chest Clinic at the hospital because my scores at my last asthma check-up were pretty low, and I've got my appointment on Wednesday, but I'm not sure what I should mention. I get frequent flare-ups and chest infections- flare-ups probably between every 4-6 weeks
My GP/ Asthma Nurse has referred me to the Chest Clinic at the hospital because my scores at my last asthma check-up were pretty low, and I've got my appointment on Wednesday, but I'm not sure what I should mention. I get frequent flare-ups and chest infections- flare-ups probably between every 4-6 weeks
Lilmix03
in
Asthma Community Forum
1 year ago
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Catheters and travel
Hello everyoneI am a 64 year old woman, treated for rectal cancer with chemoradiotherapy with temporary stoma in 2009. I have had endless bladder and bowel issues since, and been hospitalized with numerous infections since the temporary stoma reversal - last infection of that type 2017, but now lots
Hello everyoneI am a 64 year old woman, treated for rectal cancer with chemoradiotherapy with temporary stoma in 2009. I have had endless bladder and bowel issues since, and been hospitalized with numerous infections since the temporary stoma reversal - last infection of that type 2017, but now lots
Hopeful-one
in
Pelvic Radiation Disease Association
3 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
4 months ago
FDG elements of PSMA scan
I had a FDG scan a few days ago . At the heart of my confusion is the function of FDG in giving a positive outcome to Pluvicto infusions. Is it a good thing to have lots of 'FDG Avid' showing up, or do you want those aspects of the scan to be as hidden as possible (so that the PSMA -Avid cells can be
I had a FDG scan a few days ago . At the heart of my confusion is the function of FDG in giving a positive outcome to Pluvicto infusions. Is it a good thing to have lots of 'FDG Avid' showing up, or do you want those aspects of the scan to be as hidden as possible (so that the PSMA -Avid cells can be
CrocodileShoes
in
Advanced Prostate Cancer
4 months ago
What is normal after surgery and what isn't
My husband had stoma surgery two weeks ago and got home a week later. Since coming home he seems to be deteriorating not improving. On the advice of his stoma nurse, we are going to see the GP to get bloods taken, etc this morning. However, is it normal to go off your food, be scared to eat in case
My husband had stoma surgery two weeks ago and got home a week later. Since coming home he seems to be deteriorating not improving. On the advice of his stoma nurse, we are going to see the GP to get bloods taken, etc this morning. However, is it normal to go off your food, be scared to eat in case
Suebedoo
in
Living with a Stoma
4 months ago
Stoma with Denosumab osteoporosis medication
Hi, I am posting the same thing in the osteoporosis forum and the stoma forum at the suggestion of my friend. My mum has had a stoma for over 50 years and is also on osteoporosis medication. Her doctor has suggested she moves to Denosumab which contains sorbitol and is a twice yearly injection. She
Hi, I am posting the same thing in the osteoporosis forum and the stoma forum at the suggestion of my friend. My mum has had a stoma for over 50 years and is also on osteoporosis medication. Her doctor has suggested she moves to Denosumab which contains sorbitol and is a twice yearly injection. She
Florrie2
in
Bone Health and Osteoporosis UK
4 months ago
Pale skin during flare ups
Does anyone else get a really washed out, pale almost grey skin during flare ups? My Mum often comments on me looking very pale but I caught sight of myself in the mirror yesterday and my eyes were dark underneath (despite having had a long nap), skin so pale with an almost greenish grey tint. Not very
Does anyone else get a really washed out, pale almost grey skin during flare ups? My Mum often comments on me looking very pale but I caught sight of myself in the mirror yesterday and my eyes were dark underneath (despite having had a long nap), skin so pale with an almost greenish grey tint. Not very
Lily1986
in
Endometriosis UK
4 months ago
Recently had stoma
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
I was diagnosed 2 years ago stage 4 high serious ovarian part bowel removed and 6 sessions chemo lived normal 18months then recurrence and more chemo then total hysterectomy omentom removed and shock when I woke I had stoma that is pernament finding it hard deal with and see consultant next week
PaumicB123
in
Living with a Stoma
4 months ago
Is there a firm way to distinguish sinus issues from asthma symptoms
This might sound like a stupid question but I have a nasal condition - chronic rhinitis with polyps which is relatively managed however my nose/nasopharynx has changed somehow in the past year in that it makes whistling noises when I breath in. Particularly my left nostril it feels a bit like breathing
This might sound like a stupid question but I have a nasal condition - chronic rhinitis with polyps which is relatively managed however my nose/nasopharynx has changed somehow in the past year in that it makes whistling noises when I breath in. Particularly my left nostril it feels a bit like breathing
Blueforest23
in
Asthma Community Forum
1 year ago
Tragic
My lovely 15 years old grandson died this week. He had ingested a very toxic fungus while looking for plant samples in woodland. After feeling unwell and in pain his mum took him to A&E where a scan showed his stomach had a hole in it. He had urgent surgery and thirty percent of his stomach was
My lovely 15 years old grandson died this week. He had ingested a very toxic fungus while looking for plant samples in woodland. After feeling unwell and in pain his mum took him to A&E where a scan showed his stomach had a hole in it. He had urgent surgery and thirty percent of his stomach was
littleloobs
in
Care Community
4 months ago
Moving to Symbicort from Budesonide and Salbutomol
Hi this is a simple question, I have had seasonal allergic Asthma for about 15 years, but in the last 5 years or so it was really under control and I was able to cut way down on medication, this year though the pollen has been off the scale her in the South West and I have been struggling, had a couple
Hi this is a simple question, I have had seasonal allergic Asthma for about 15 years, but in the last 5 years or so it was really under control and I was able to cut way down on medication, this year though the pollen has been off the scale her in the South West and I have been struggling, had a couple
shat1
in
Asthma Community Forum
1 year ago
PSMA Analysis needed
I'm awaiting the visual images from my PSMA FDG scan. In the meantime, I've got a written report and I could do with your help. The backdrop is that I'm hoping to be considered eligible for PSMA therapy in Melbourne in May-Aug. At the heart of it lies a really simple question (and apologies for my naivety
I'm awaiting the visual images from my PSMA FDG scan. In the meantime, I've got a written report and I could do with your help. The backdrop is that I'm hoping to be considered eligible for PSMA therapy in Melbourne in May-Aug. At the heart of it lies a really simple question (and apologies for my naivety
CrocodileShoes
in
Advanced Prostate Cancer
4 months ago
Variable Asthma and pain medication.
Good day to everyone, I hope you are all taking good care, especially with the warm weather! I would like to ask people from the community about pain medication and Asthma. I have a variable asthma of 5%, diagnosed at the same time as copd. 6 weeks ago I ended up in A&E with severe pain in my leg
Good day to everyone, I hope you are all taking good care, especially with the warm weather! I would like to ask people from the community about pain medication and Asthma. I have a variable asthma of 5%, diagnosed at the same time as copd. 6 weeks ago I ended up in A&E with severe pain in my leg
Shalz
in
Lung Conditions Community Forum
1 year ago
Anyone else have Eosinophilic Asthma with chronic rhinosinusitis?
Shortly after my 5th stomach operation (4 failed for acid reflux) I was told I had Bronchiectasis along with mild asthma this was after being taken to hospital as could not breathe and blue ventolin did not work. This diagnosis eventually changed to Eosinophilic Asthma under my Respiratory Dept
Shortly after my 5th stomach operation (4 failed for acid reflux) I was told I had Bronchiectasis along with mild asthma this was after being taken to hospital as could not breathe and blue ventolin did not work. This diagnosis eventually changed to Eosinophilic Asthma under my Respiratory Dept
H0peful
in
Lung Conditions Community Forum
1 year ago
Treatment help
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
just been told I have deep endometriosis on my uterus and my rectum. I already have a stoma due to Crohn’s disease and currently having prostap injections. Does anyone know what the treatment is for endo on the uterus and the rectum?
Red476
in
Endometriosis UK
4 months ago
Surgery etc.
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Hi All, I was diagnosed with Stage 4 OC in May 2023 with the cancer migrated into my colon. I had been feeling unwell for 6 months and was assured by my doctor in February that it was acid reflux. This was despite my mentioning I have gynaecological issues in the family. The symptoms were bizarre
Leopard2018
in
My Ovacome
5 months ago
hayfever triggering asthma
hi, I’m looking for some advice a couple of months ago I was hospitalised after 2 asthma attacks in 3 days and then I got pneumonia. Throughout the course of getting better I was prescribed 6 courses of steroids as well as antibiotics. Now it’s hayfever season and this seems to be playing havoc with
hi, I’m looking for some advice a couple of months ago I was hospitalised after 2 asthma attacks in 3 days and then I got pneumonia. Throughout the course of getting better I was prescribed 6 courses of steroids as well as antibiotics. Now it’s hayfever season and this seems to be playing havoc with
Shorty_89
in
Asthma Community Forum
1 year ago
Is eosinophilic asthma always severe?
I was wondering about the following 1) Does anyone know what percent of asthma is eosinophilic 2) what percentage of eosinophilic asthma is severe? I have looked at journal articles etc but couldn’t find an answer as different sites give totally different percentages
I was wondering about the following 1) Does anyone know what percent of asthma is eosinophilic 2) what percentage of eosinophilic asthma is severe? I have looked at journal articles etc but couldn’t find an answer as different sites give totally different percentages
Blueforest23
in
Asthma Community Forum
1 year ago
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