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Anyone else have Eosinophilic Asthma with chronic rhinosinusitis?

H0peful profile image
8 Replies

Shortly after my 5th stomach operation (4 failed for acid reflux) I was told I had Bronchiectasis along with mild asthma this was after being taken to hospital as could not breathe and blue ventolin did not work. This diagnosis eventually changed to Eosinophilic Asthma under my Respiratory Dept. at hospital, which, when read about, states '5 percent of all adults with asthma have EA' so pretty rare. Would be interested to hear from others, as have had this diagnosis since 2014, I take 2 inhalers daily 2 puffs of cartridge Spriva Respimat and 1 of powder Fluticasone. I have not had any admissions since and can walk my dog easily, but my polyps in nose need an operation.

Not sure how much mucus is from nose or chest, so would like to hear of any similar persons with this please?

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Patk1 profile image
Patk1

I've severe Eosinophilic asthma,with severe bronch(+multiple other lung diseases) + have had rhinosinusitis all my life.i use a steroid nose spray twice a day,am on 2 different antihistamines + montelukast.they help to dry nose+ sinuses

H0peful profile image
H0peful in reply toPatk1

Thanks for reply, I did try montelukast but they did not help, I was told as polyps are part of EA, just last year, that I could have a 4hr operation to help remove polyps. But a week later was diagnosed with heart failure and leaky aorta valve, which caused the big heart failure it seems, that I could not now have that op'. I read somewhere on here that coughing a lot (which I used to do severely) is not good for heart, though it is more probab le to be be genetic, main thing is at least discovered and being monitored. By the way have seen top valve man in Southampton and he said if it stays the same I can have operation....we will see.

Patk1 profile image
Patk1 in reply toH0peful

I spread antihistamines out,am/pm & montelukast at night.i use budesonide nose spray morn and t time.whn sinuses are more painful,I irrigate them using a " bulb"& cooled boiled water - it gives temporary,instant relief.ru on biologics?

ks1966 profile image
ks1966

hello. I hope you feel better. Are you eosinophil levels low or high ? Thanks

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H0peful in reply toks1966

Many thanks for reply, no idea of level but called severe asthma, I know it is too many white blood cells after looking for information but have not had a blood test for this for a while, as thankfully managing on that front at least, though recently also diagnosed with heart failure and leaky aorta valve, which caused the big heart failure it seems. I read somewhere on here that coughing a lot (which I used to do severely) is not good for heart, though it may well be genetic, main thing is at least discovered and being monitored.

Tykelady profile image
Tykelady

I was recently prescribed a nasal spray as I knew that a lot of my mucus was due to post nasal drip. I occasionally still have "waterfalls" from my nose when I first stand up in the morning.

H0peful profile image
H0peful

Thanks for advice but seems polyps that go with EA are the problem and possibly can be operated on. Saying that I also have a nasal spray and fluctisone drops as well but this has been ongoing over 8yrs now.

Mel2805 profile image
Mel2805

Hi ya I have been diagnosed with it too. Blue ventolin never working and antibiotics but nothing helped.

Yes it is very rare apparently I have fostair nexthaler which I find great. But still produce alot of speutum or clearing of throat which is so annoying .

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