Hi I'm hoping someone can shed a bit of light on my pain. I have endo in lots of places in POD on ligaments and my bowel.I also have a 5cm endometrioma.
I am down for surgery for hysterectomy as I have adenomyosis and endo extraction.
I've opted out of a bowel resection as the waiting list is longer for 2 surgeons and to be honest I'm scared of the chances of a stoma and the long recovery.
Anyway I'm now doubting my decision as I'm in a lot of pain but can't work out if it's bowel or endometrioma pain.
I get pain on bowel movement but also a lot of achey/stingy/ tugging pain around there too.
I'm worried I will still be in a lot of pain with my bowel and I should perhaps have opted in for the whole lot.
Can anyone help to describe the pain they get from bowel or endometrioma?
Has anyone had bowel resection or endometrioma removed?
Thankyou
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Loveneige
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hi 🌻I was told after MRI I need join surgery with possible bowel resection. I was waiting for 10 months. Had hysterectomy last month. Colorectal surgeon said that bowel is clear ,which is good. But I had horrible pain on bowel movement, especially around periods. So I think sometimes it could be referral pain from other organs 🤷 No pain now.
Possibly will be better to check everything in one operation. First few days after was very hard and you don't want this experience again 🙈💛
I had a 4 cm endometrioma on the left removed. In lap they found obliterated pod with endo near sigmoid colon very low down, bladder wall and appendix. I had cyst removed, bladder sorted but everything else was left due to complexity and no bowel surgeon being present. Before surgery I had pain in me left side, groin walking. When I beared down for loo I could get pain in my lower pelvic area. I’d get a pain and pressure up my bum as well as heavy periods. And gastric symptoms, bloating, trapped wind, constipation etc. after surgery it’s much better the front pelvic pain has gone ( which must’ve been the bladder) if I need a poo a get a pressure and some discomfort up my bum which is relieved when I go. I get lots of tugging and pulling and stabbing on my left side where you think an ovary was. I still get pain with sex in certain positions. I actually thought I’d got another cyst but nothing showed on ultrasound so I can only assume it’s the endo in the colon which is also in that area 🤷♀️
Thankyou. You sound very similar to what I experience. Has your gastric symptoms gone away since surgery? I get that too, especially with a flare up. The gynecologist also said the uterus causes a lot of pain and I'm due a hysterectomy so hope that help too.
I appreciate your reply, it really does help having other peoples opinions and experiences.
They're better since taking desogestral and also a probiotic which helps with constipation. I also have ademenoysis and lots of adhesions so it's really hard to know what causes what. I've doing ok but this month I've just gone 48 day cycle and now I'm bleeding really heavy. Thankfully not too painful but toilet every two hours max 🤦 be glad when I've hit menopause!
I'm exactly the same as you Loveneige but they won't touch mine as they've said it will probably end up with a stoma bag which may not be reversible. My endo has pulled my rectum really high too so every poo is now tricky. They can't even get to my endometrioma as everything is fused. I'd have the hysterectomy then see how you are. You may find with organ removal you have more space in your abdomen and the pain may improve. If your cervix is not attached to your bowel then get that done first and fingers crossed that the pain will subside.
Thankyou sunsetlady. I've read some of your posts and I think I am very much like you in age and a lot of the problems. I hope when I finally get surgery that they can do something. My fear is that it may have gone too far. Its a year since my scans and mri so who knows. That's a very good point about a bit more space may help. Fingers crossed! Just getting shot of my uterus and endometrioma would be good. 🥳
I think you one brave lady dealing with all you've gone through and going through! 💪🏽I guess when we have no choice we have to be but I know how tough it can be. 🤗
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