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DBS SURGERY
With my DBS surgery scheduled for bright and early on December 15th, I have to say that the last nine months have passed quickly. I sometimes regret taking a year to make my decision that DBS was not only an option, but a "must do" for me. This website is a wonderful forum - I believe that the experiences
With my DBS surgery scheduled for bright and early on December 15th, I have to say that the last nine months have passed quickly. I sometimes regret taking a year to make my decision that DBS was not only an option, but a "must do" for me. This website is a wonderful forum - I believe that the experiences
annmariebaird
in
Cure Parkinson's
6 years ago
VIral Meningitis
I was hospitalized for viral meningitis 1 month ago. I'm having issues with a sore/weak neck and what feels like nerve issues going into the base of my skull/back of my head that cause some headaches. I'm also tired alot. I've seen my PCP about it and they seem to be not worried about it. Am I the only
I was hospitalized for viral meningitis 1 month ago. I'm having issues with a sore/weak neck and what feels like nerve issues going into the base of my skull/back of my head that cause some headaches. I'm also tired alot. I've seen my PCP about it and they seem to be not worried about it. Am I the only
Tobywayne10
in
Meningitis Now
7 years ago
Shingles
Hi I think my partner as shingles I’m on benepali I had chicken pox when I was 15, the man is a fool he won’t go the doctors until Monday , ami likely to catch it, he won’t listen he drives me nuts.
Hi I think my partner as shingles I’m on benepali I had chicken pox when I was 15, the man is a fool he won’t go the doctors until Monday , ami likely to catch it, he won’t listen he drives me nuts.
Vonnie10
in
NRAS
7 years ago
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DBS SURGERY SCHEDULED
I am 70 years old and was diagnosed in 2002 with symptoms being lack of flexibility in writing, walking. Have done very well with Sinemet until about 2 years ago. At present I take a total of 10 Sinemet 25/100 (one at a time), 2 time release Sinemet 50/100 (one at a time), and wear the Nupro patch
I am 70 years old and was diagnosed in 2002 with symptoms being lack of flexibility in writing, walking. Have done very well with Sinemet until about 2 years ago. At present I take a total of 10 Sinemet 25/100 (one at a time), 2 time release Sinemet 50/100 (one at a time), and wear the Nupro patch
annmariebaird
in
Cure Parkinson's
7 years ago
Will someone please help me
I'm so scared. I keep having this burning smell in my nose, and I feel like I keep blanking out. I'm writing this so I guess I'm okay. I just keep thinking I'm gonna have a stroke or a seizure or.maybe I have a brain tumor. Why oh why can't I feel good for one day in my dang life?! I'm so tired of
I'm so scared. I keep having this burning smell in my nose, and I feel like I keep blanking out. I'm writing this so I guess I'm okay. I just keep thinking I'm gonna have a stroke or a seizure or.maybe I have a brain tumor. Why oh why can't I feel good for one day in my dang life?! I'm so tired of
Elizabeth04
in
Anxiety Support
7 years ago
A belated intro'
This is what I should have posted yesterday when discovering the site. My name is Frederick I am 61 years of age, I have Acquired Brain Injury (ABI) following surgery on a thankfully benign brain tumour back in early 2015, I was discharged from hospital in a wheelchair, most distressing considering the
This is what I should have posted yesterday when discovering the site. My name is Frederick I am 61 years of age, I have Acquired Brain Injury (ABI) following surgery on a thankfully benign brain tumour back in early 2015, I was discharged from hospital in a wheelchair, most distressing considering the
fredikins
in
Headway
7 years ago
Brain Issues
Dr. Kharrazian sent out a newsletter today and thought this might help. "However, the brain has no pain receptors, so brain inflammation doesn't hurt. Instead, it shows up as as brain fog, neurological issues, depression, anxiety, gut problems, dementia, and many other symptoms. In the case of traumatic
Dr. Kharrazian sent out a newsletter today and thought this might help. "However, the brain has no pain receptors, so brain inflammation doesn't hurt. Instead, it shows up as as brain fog, neurological issues, depression, anxiety, gut problems, dementia, and many other symptoms. In the case of traumatic
Heloise
in
Thyroid UK
7 years ago
Random nerve firings with anxiety
Does anyone experience some brief nerve symptoms like buzzing, burning, flutter, electric shock in various areas like skin on my hands, roots if my teeth, inner thighs under the skin or behind eyes for example? I know anxiety can mimic anything but this sounds like some neuropathy to me or Lyme disease
Does anyone experience some brief nerve symptoms like buzzing, burning, flutter, electric shock in various areas like skin on my hands, roots if my teeth, inner thighs under the skin or behind eyes for example? I know anxiety can mimic anything but this sounds like some neuropathy to me or Lyme disease
mags78
in
Anxiety Support
7 years ago
If you have a super strong eyeglass prescription please read this
OK so for months and months and months I have been struggling with dizziness and thinking it was a brain tumor. I am 18 years old and I’m pretty sure I could be legally blind without my glasses (my eyesight is super bad guys) I legit thought it was a tumor in my brain, I went to my eye doctor and she
OK so for months and months and months I have been struggling with dizziness and thinking it was a brain tumor. I am 18 years old and I’m pretty sure I could be legally blind without my glasses (my eyesight is super bad guys) I legit thought it was a tumor in my brain, I went to my eye doctor and she
plushiesaremyjam
in
Anxiety Support
7 years ago
Deep brain surgery (DBS) dystonia
Hi, Just have had a DBS surgery three months ago and yesterday , been having some pain on my chest and shortness of breath as it hurt when I try to take a deep breath what should I do ?
Hi, Just have had a DBS surgery three months ago and yesterday , been having some pain on my chest and shortness of breath as it hurt when I try to take a deep breath what should I do ?
Josh_l
in
Cure Parkinson's
7 years ago
Helping my Younger Brother
My 51-year-old brother was diagnosed with Young Onset, 4.5 years ago. He has been on many different meds, is still having problems. He & his doctor agrees that he's ready for DBS, we just wish his Medical insurance was. I'm helping him and my mom in any way I can with obtaining information on this Disease
My 51-year-old brother was diagnosed with Young Onset, 4.5 years ago. He has been on many different meds, is still having problems. He & his doctor agrees that he's ready for DBS, we just wish his Medical insurance was. I'm helping him and my mom in any way I can with obtaining information on this Disease
Soberangel06
in
Cure Parkinson's
7 years ago
Introduction
I stumbled across site today. I contracted Bacterial Meningitis back in 1993 (news article: https://www.deseretnews.com/article/326398/CLUB-IS-COMMON-LINK-TO-6-CASES-OF-MENINGITIS.html ---> I was the sixth). I spent 26 days in the hospital, a week of which was spent on life support. They told my
I stumbled across site today. I contracted Bacterial Meningitis back in 1993 (news article: https://www.deseretnews.com/article/326398/CLUB-IS-COMMON-LINK-TO-6-CASES-OF-MENINGITIS.html ---> I was the sixth). I spent 26 days in the hospital, a week of which was spent on life support. They told my
watsonda
in
Meningitis Now
7 years ago
“Clinical outcomes of asleep vs awake deep brain stimulation for Parkinson disease,”
Good to know: "The results, published in the journal Neurology, suggested that it is better for patients to sleep through the surgery. Additionally, traditional forms of deep brain stimulation surgery often cause patients to lose speech fluency. Matthew Brodsky, MD, an associate professor of neurology
Good to know: "The results, published in the journal Neurology, suggested that it is better for patients to sleep through the surgery. Additionally, traditional forms of deep brain stimulation surgery often cause patients to lose speech fluency. Matthew Brodsky, MD, an associate professor of neurology
stepan13
in
Cure Parkinson's
7 years ago
Small region of mature gliosis
Hi everybody!. Had MRI done after 9 month post aneurism clipping. On MRI report written small region of mature gliosis. Is anybody experience the same conditions or have some knowledge of the effect of this condition. At the moment I experience a lot of dizziness where doctors are not sure if this related
Hi everybody!. Had MRI done after 9 month post aneurism clipping. On MRI report written small region of mature gliosis. Is anybody experience the same conditions or have some knowledge of the effect of this condition. At the moment I experience a lot of dizziness where doctors are not sure if this related
maya72
in
Headway
7 years ago
How can I continue to function?
I have problems and stresses, as always, like everyone does but when I feel like this the only solution my
brain
gives me is
death
. I'm not going to kill myself but it's upsetting that my usually sparkly, imaginative brain can only come up with that.. come on brain!! Start working!
I have problems and stresses, as always, like everyone does but when I feel like this the only solution my
brain
gives me is
death
. I'm not going to kill myself but it's upsetting that my usually sparkly, imaginative brain can only come up with that.. come on brain!! Start working!
Ftea
in
Mental Health Support
6 years ago
More about the shingles vaccine and its downsides
I have posted before about the shingles vaccine listing PMR as a possible adverse event. https://healthunlocked.com/pmrgcauk/posts/134436076/the-shingles-vaccine-debate-and-pmr Today I found this gem to add to it: http://info.cmsri.org/the-driven-researcher-blog/merck-admits-shingles-vaccine-can-cause-eye-damage-and-shingles
I have posted before about the shingles vaccine listing PMR as a possible adverse event. https://healthunlocked.com/pmrgcauk/posts/134436076/the-shingles-vaccine-debate-and-pmr Today I found this gem to add to it: http://info.cmsri.org/the-driven-researcher-blog/merck-admits-shingles-vaccine-can-cause-eye-damage-and-shingles
PMRpro
Ambassador
in
PMRGCAuk
7 years ago
Exposure to shingles.
My daughter, age 43, has been diagnosed with presumptive case of shingles. She's being treated with an antiviral. I had chicken pic, herpes zoster oticus ( same as daughter, coincidence?) And I have had the shingles vaccine? Should I stay away from her and if so for how long? Btw, the other potential
My daughter, age 43, has been diagnosed with presumptive case of shingles. She's being treated with an antiviral. I had chicken pic, herpes zoster oticus ( same as daughter, coincidence?) And I have had the shingles vaccine? Should I stay away from her and if so for how long? Btw, the other potential
Hindags
in
PMRGCAuk
7 years ago
"Off's" and Requip problems
Hi everyone, To"Parkies" who have a lot of "off" looks as if you need a revision of your medicines. A neurologist who has a special interest in Parkinsons is the best. Requip is a good medicine, but I have experienced vivid dreams, and not much REM sleep. The neuologist reduced Requip depå till 2mg/
Hi everyone, To"Parkies" who have a lot of "off" looks as if you need a revision of your medicines. A neurologist who has a special interest in Parkinsons is the best. Requip is a good medicine, but I have experienced vivid dreams, and not much REM sleep. The neuologist reduced Requip depå till 2mg/
Aussie
in
Cure Parkinson's
7 years ago
suffering from bacterial meningitis
hi...my husband just discharged from hospital two weeks ago due to bacterial meningitis, he was given ceftacidime and dexamenthasone....after a week of resting at home he has now fever and headache...what are the possible reasons of it? do inhave to rush him back to the hospital? please help me because
hi...my husband just discharged from hospital two weeks ago due to bacterial meningitis, he was given ceftacidime and dexamenthasone....after a week of resting at home he has now fever and headache...what are the possible reasons of it? do inhave to rush him back to the hospital? please help me because
ferdimarj
in
Meningitis Now
7 years ago
problems associated with encephalocele include cleft palate
Stranger than strange. I am Irish and being born in Ireland there is a problem with health records and in 2012 I was diagnosed with an unilateral cleft palate, in the 5 years since I have come to learn via on-line research that this mean I have always had a white matter volume loss and frontal lobe issues
Stranger than strange. I am Irish and being born in Ireland there is a problem with health records and in 2012 I was diagnosed with an unilateral cleft palate, in the 5 years since I have come to learn via on-line research that this mean I have always had a white matter volume loss and frontal lobe issues
Padmeister
in
Headway
7 years ago
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