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Anyone with symptoms like mine?
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
Chopper201
in
Meningitis Now
6 years ago
Shingles vaccine
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
barbthy
in
PMRGCAuk
6 years ago
Something to be aware of when taking Gapbapentin or Pregabalin.
Several years ago, a 2009 study published in the journal Cell found that both Neurontin and Lyrica are, in essence, a
death
sentence for new
brain
synapses.
Several years ago, a 2009 study published in the journal Cell found that both Neurontin and Lyrica are, in essence, a
death
sentence for new
brain
synapses.
Goldy700
in
Restless Legs Syndrome
6 years ago
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Gene Therapy: A possible future rival to DBS (and even stem-cell therapy)?
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
An interesting SoPD blog post from Simon, about an unexpected result from a gene-therapy trial. https://scienceofparkinsons.com/2018/12/08/gad/
jeffreyn
in
Cure Parkinson's
6 years ago
continuing dizziness after cranioplasty
hello everyone, first off thank you so much for this forum it has helped me and my family enormously My mom suffered TBI and craniectomy was performed (June 2018), and she just got a titanium mesh skull placed in for cranioplasty. (a month ago) she feels ok but she feels dizzy and the balance is still
hello everyone, first off thank you so much for this forum it has helped me and my family enormously My mom suffered TBI and craniectomy was performed (June 2018), and she just got a titanium mesh skull placed in for cranioplasty. (a month ago) she feels ok but she feels dizzy and the balance is still
LindsayJo
in
Headway
6 years ago
ANYONE HEARD ABOUT THE NEW 2 HR. DBS?
ANYONE TRIED THE NEW 2 HR. ASLEEP DBS BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE DBS AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE
ANYONE TRIED THE NEW 2 HR. ASLEEP DBS BY DR. DAVID VANSICKLE?HE HAS BEEN PERFORMING THIS SURGERY FOR THE LAST TWO YEARS IN LITTLETON, COLORADO. IT SOUNDS BETTER THAN THE AWAKE DBS AS FAR AS ACCURACY AND TYPICAL 4-6 HR SURGERY TIME. HE USES THE ABBOTT SYSTEM THAT HAS 8 ELECTRODES INSTEAD OF 4. I LIVE
ktbate
in
Cure Parkinson's
6 years ago
Head pain in back of head after Gamma
I had gamma knife on Oct 22 and I have head pain in back of my head in the middle. Dr says too soon to be tumor...us this normal. I also have alot of balance issues and noies in one ear. I had a skull base tumor in cerebellum. It feels like pressure if some kind ..pain is different than before gamma
I had gamma knife on Oct 22 and I have head pain in back of my head in the middle. Dr says too soon to be tumor...us this normal. I also have alot of balance issues and noies in one ear. I had a skull base tumor in cerebellum. It feels like pressure if some kind ..pain is different than before gamma
Kit-kid
in
Headway
6 years ago
New here.
Hi all. Found this through a suggestion on DMRF. I am 33 year old female with cervical dystonia that started 11 years ago. Recently started developing Blepharospasm and hemifacial dystonia (also have spasms in both cheeks when smiling). Mother has severe blepharospasm and slight cervical dystonia. She
Hi all. Found this through a suggestion on DMRF. I am 33 year old female with cervical dystonia that started 11 years ago. Recently started developing Blepharospasm and hemifacial dystonia (also have spasms in both cheeks when smiling). Mother has severe blepharospasm and slight cervical dystonia. She
talynn
in
Dystonia Society
6 years ago
Thiamine dosage
This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try
This is my first post! Hello, I’m Gail. 58 years old, diagnosed at 50. Was doing pretty well up until about six months ago. Daily I take 9MG Ropinirole, 6 x 100/25 levodopa/carbidopa and 1 Rasagiline. My problem is dyskinesia, sometimes pretty bad.I am seriously considering DBS but would like to try
Gailsnail
in
Cure Parkinson's
6 years ago
Flying after suffering a brain abscess
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
LittleDiddle
in
Headway
6 years ago
O-CHOP
How I am going to wind up with chemo
brain
and I will need someone to change my diapers, etc.,
death
with dignity, yada yada yada. I told him that they are NOT me and I am trying to stay positive and if I get to that point, I pray that I have the grace that my Mom had and say I've had enough.
How I am going to wind up with chemo
brain
and I will need someone to change my diapers, etc.,
death
with dignity, yada yada yada. I told him that they are NOT me and I am trying to stay positive and if I get to that point, I pray that I have the grace that my Mom had and say I've had enough.
kstan8
in
Non Hodgkin's Lymphoma Friends
6 years ago
cymbalta and rivotril
I had insomnia for 2 days and then doc gave me xanor, then 1 week after insomnia again, went back to doc and prescribed me cymbalta and rivotril. it’s my 2nd night taking it cymbalta for lunch and rivotril at bedtime but I still gets 1-2 hr sleep and then stayed up all night. Anyone who had this before
I had insomnia for 2 days and then doc gave me xanor, then 1 week after insomnia again, went back to doc and prescribed me cymbalta and rivotril. it’s my 2nd night taking it cymbalta for lunch and rivotril at bedtime but I still gets 1-2 hr sleep and then stayed up all night. Anyone who had this before
Maryankyle
in
Anxiety Support
6 years ago
I am wondering if anyone had their DBS done in gainsville Florida by dr Foote and dr okum?
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
I am sceduled to have it done there in January. I’m starting to get very nervous as I will be awake. Just thought it would be good to hear from others who went through it. Thanks
Lheinlel
in
Cure Parkinson's
6 years ago
DBS and head-aces
I had DBS surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
I had DBS surgery 5 month ago and since than I suffer from bad head-aces one or twice a week. Surgery went well and with connection with Parkinson symptoms it is great. but the haedaces are hard to endure. Any one has it too?
imani100
in
Cure Parkinson's
6 years ago
Higher the ANA more likely it’s Lupus?
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
Hursty77
in
LUPUS UK
6 years ago
Shingles
Well have shingles for the third time, although this is considered rare! Seems that treatment for one thing leads to susceptibility to so many other things! Moan finished
Well have shingles for the third time, although this is considered rare! Seems that treatment for one thing leads to susceptibility to so many other things! Moan finished
Hidden
in
Lung Conditions Community Forum
6 years ago
DBS for Non-Tremor PD?
Has anyone here with non-tremor dominant PD undergone Deep Brain Stimulation? Did it help w/ balance? Couple of weeks ago, my neurologist suggested DBS to ease the dystonia in my arm and help my balance. This stunned me b/c I had thought that while DBS was good for reducing tremors and dyskinesia
Has anyone here with non-tremor dominant PD undergone Deep Brain Stimulation? Did it help w/ balance? Couple of weeks ago, my neurologist suggested DBS to ease the dystonia in my arm and help my balance. This stunned me b/c I had thought that while DBS was good for reducing tremors and dyskinesia
Motal
in
Cure Parkinson's
6 years ago
Questions about high risk donors
death
(DBD).
death
(DBD).
IAintNoMensaBut
in
British Liver Trust
6 years ago
Lyme disease
Hi I'm trying to get some help for my 22 year daughter she has had a nhs negative lymes test has been suffering from mental health problems and doctors are now referring her to chronic fatigue clinic as she can sleep forever and still be tired also has had ready now b12 results and on injections for
Hi I'm trying to get some help for my 22 year daughter she has had a nhs negative lymes test has been suffering from mental health problems and doctors are now referring her to chronic fatigue clinic as she can sleep forever and still be tired also has had ready now b12 results and on injections for
Bradish2712
in
Thyroid UK
6 years ago
Recovering from a cranioplasty head feels strange
I had a stroke in January had a craniotomy due to a bleed after clots were removed had my cranioplasty in July my head still feels strange on the side where I had the cranioplasty they used my bone for the flap replacement not sure how to describe the feeling except to say it feels heavy or numb and
I had a stroke in January had a craniotomy due to a bleed after clots were removed had my cranioplasty in July my head still feels strange on the side where I had the cranioplasty they used my bone for the flap replacement not sure how to describe the feeling except to say it feels heavy or numb and
Dnichol
in
Headway
6 years ago
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