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Brain death
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21 public communities
Brain Aneurysm Support
803 members
We are a peer support community for people affected by brain aneurysms. Here we share our experiences, ask questions and support each other!
Survivors of Childhood Brain Tumours
90 members
Welcome to the Survivors of Childhood Brain Tumour Community Group, established by Success Charity. Success Charity is committed to enabling brighter futures for survivors of childhood brain tumours. We aim to support and empower survivors to live the lives they choose, and enable them to fulfill their true potential, post cure. Success is working to: • Assist: provide ‘joined up’ rehabilitative support services to address survivors’ ongoing clinical & therapeutic needs • Equip: provide direct access to better information, resources & key assessments • Connect & Empower: through distinct peer support networking programmes & events • Research: to better understand the consequences of brain injury acquired as a result of the tumour and treatment This community is for survivors, parents, carers and friends. Please join today to share your experiences, make new connections, ask questions, give and receive support to and from people who truly understand and can relate. We are all here to help.
Brain health
1,261 members
This Brain Health community is a safe space for those affected by brain conditions to connect, share their experiences and offer support to others.
Meningioma Support
650 members
About Meningioma Support Welcome to The Brain Tumour Charity Meningioma peer support online community for anyone affected by a meningioma diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
The Brain Tumour Charity
431 members
Welcome to The Brain Tumour Charity peer support online community for anyone affected by a brain tumour diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Acoustic Neuroma Support
2,690 members
Welcome to The Brain Tumour Charity Acoustic Neuroma peer support online community for those affected by Acoustic Neuroma (Vestibular Schwannoma), a rare but invariably benign brain tumour. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simple read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Glioblastoma Support
575 members
Welcome to The Brain Tumour Charity Glioblastoma peer support online community for anyone affected by a Glioblastoma diagnosis. You can ask questions, get support from others and share your experiences, at any time of the day or night- you can be totally open. Or you can simply read people’s stories, knowing there are others right there with you. As a charity, we will share useful resources, information and charity news. The Brain Tumour Charity is the world’s leading brain tumour charity and the largest dedicated funder of research into brain tumours globally. Committed to saving and improving lives, we’re moving further, faster to help every single person affected by a brain tumour. We’re set on finding new treatments, offering the highest level of support and driving urgent change. And we’re doing it right now. Because we understand that when you, or someone you love, is diagnosed with a brain tumour – a cure really can’t wait. If there is anything you would like to talk about with our Support team, please contact us at support@thebraintumourcharity.org, or call our Information and Support Line on 0808 800 0004.
Headway
10,510 members
Headway is the UK-wide charity that works to improve life after brain injury. Through a range of frontline services run from its Nottingham base and via a network of more than 100 groups and branches across the UK, it provides support, services and information to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. A brain injury can have devastating consequences for individuals and their families, affecting every aspect of life. Although we all think "it'll never happen to me", a brain injury can affect anyone at any time. When it does, we're here to help. Visit www.headway.org.uk to find out more, or contact our helpline on 0808 800 2244 or helpline@headway.org.uk for personal support.
Neuro Support
1,943 members
Welcome to the Neuro Support Community. This community exists to improve the quality of life of people affected by any neurological condition, including: ALS, Alzheimer’s disease, Back pain, Bell's palsy, birth defects of the brain and spinal cord, brain aneurysm, brain injury, brain tumors, cerebral palsy, chronic fatigue syndrome, concussion, dementia, disk disease of neck and lower back, epilepsy, Guillain-Barré syndrome, migraine, multiple sclerosis, muscular dystrophy, neuralgia, neuropathy, neuromuscular and related diseases, Parkinson's disease, scoliosis, seizures, spinal cord injury, spinal deformity, spinal disorder, spine tumors and stroke. Whether you're affected directly, caring for someone or know someone affected, everyone is welcome. Join today to share your experiences, receive support and exchange advise in a community of people who truly understand. Introduce yourself today: https://healthunlocked.com/neuro-support/write
Kidney Cancer Cure
100 members
The Kidney Cancer Research Alliance (KCCure) is a grassroots organization of patients, caregivers, doctors and medical researchers dedicated to eliminating suffering and death due to kidney cancer through increased funding to accelerate research that will lead to a cure for all patients and prevent future kidney cancer diagnoses.
Cavernoma Alliance UK
438 members
We are a community that supports those affected by cavernoma, otherwise known as cerebral cavernous malformations or cavernous angioma. What is a cavernoma? A cavernoma looks like a raspberry and are also known as cavernous angioma, cavernous haemangioma or cerebral cavernous malformation (CCM). A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord. Cavernomas can measure from a few millimetres to several centimetres. A cavernoma can get bigger, but this growth is not cancerous, and it does not spread to other parts of the body. Frequency 1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
British Liver Trust
36,518 members
The British Liver Trust helps everyone affected by any liver condition, providing support, information and guidance, and lobbying for improved services across the country. Liver Disease is the only cause of death on the increase and affects an estimated 20% of the population. Only by increasing awareness of the risks, campaigning and funding research will we reduce the impact of liver disease in the future.
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