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Just a quick update
I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other specialists. Seems all is good so far with a few suprises. My ANA was positive at 1:80 and speckeled pattern. I also tested positive for Lyme
I thought I had done this a couple weeks ago but I can't seem to find my post anywhere... I had the visit to the rheumy and many other visits with other specialists. Seems all is good so far with a few suprises. My ANA was positive at 1:80 and speckeled pattern. I also tested positive for Lyme
Hidden
in
Hughes Syndrome APS Forum
12 years ago
Do my symptoms sound like it could be APLS? Just sent bloodwork in. Trying to figure out what has been wrong with me for over 3 years!
My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but
My arms turn purple and get tight, cold and weak when I do physical activities or stand. I'm always lightheaded and have trouble with thinking and memory. I have not had a stroke or major hospitalization from a blood clot. Is it possible to have "small" blood clots that cause cumulative damage but
Tighidden
in
Hughes Syndrome APS Forum
13 years ago
My Experience With Deep Brain Stimulation
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
jeffjennings
in
Cure Parkinson's
12 years ago
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Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
12 years ago
RE: On being Affaid
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
Captsteve
in
Cure Parkinson's
12 years ago
Something new
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
DANIEL
in
Cure Parkinson's
12 years ago
Is it really a disease?
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
dalo
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Finally joining the fight, a brief history of my life with parkinson's dbs before during and after
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Captsteve
in
Cure Parkinson's
12 years ago
Can PD symptoms remain on one side of the body?
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
jazzfan53
in
Cure Parkinson's
12 years ago
DBS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
paloma
in
Cure Parkinson's
12 years ago
Newly diagnosed and a concept called 48...
'Its Parkinson's' he said, I was relieved, better to know your enemy so you can form your attack. I thanked him, he looked surprised, I was calm, smiling and told him it was OK. Outside in the Hospital car park an autumn chill suddenly cut me, I wasn't brave anymore and I sobbed. All of us can tell a
'Its Parkinson's' he said, I was relieved, better to know your enemy so you can form your attack. I thanked him, he looked surprised, I was calm, smiling and told him it was OK. Outside in the Hospital car park an autumn chill suddenly cut me, I wasn't brave anymore and I sobbed. All of us can tell a
Hidden
in
Cure Parkinson's
13 years ago
Many pieces-no puzzle
Honestly, just try to write a book about pd and keep the science current! Good luck! Just as we are finally sending chapters of The Peripatetic Pursuit of Parkinson off to the editors, here are the newest developments from just the last several weeks. - alpha synuclein
Honestly, just try to write a book about pd and keep the science current! Good luck! Just as we are finally sending chapters of The Peripatetic Pursuit of Parkinson off to the editors, here are the newest developments from just the last several weeks. - alpha synuclein
paulaw
in
Cure Parkinson's
13 years ago
DBS - what event changes everything
A friend just had DBS, Until this past spring she had maintained an absolute unwillingness to consider the procedure. Then when the flowers bloomed she did a 180 and her decision was absolute and irrevocable. My friend is a few years ahead of me but not so many. This about-face of hers has me looking
A friend just had DBS, Until this past spring she had maintained an absolute unwillingness to consider the procedure. Then when the flowers bloomed she did a 180 and her decision was absolute and irrevocable. My friend is a few years ahead of me but not so many. This about-face of hers has me looking
pkell
in
Cure Parkinson's
13 years ago
Fox FactorNot a big fan Micheal J Fox
I am sure I am going to catch hell for this but I need to get it out. I am not a big fan of the way Micheal J Fox goes around to all these talk shows without taking his meds and twitching around. Then I see him on tv HBO's Curb your Whatever or the red carpet not nearly as bad as he was on Regis and
I am sure I am going to catch hell for this but I need to get it out. I am not a big fan of the way Micheal J Fox goes around to all these talk shows without taking his meds and twitching around. Then I see him on tv HBO's Curb your Whatever or the red carpet not nearly as bad as he was on Regis and
Captsteve
in
Cure Parkinson's
12 years ago
Parkinsons Disease With A Small Injection Of Humor.
I would like to begin a chronicled look at my life with Parkinsons Disease, contributing to this effort as often as I feel up to doing so. But I must warn you, with a topic as interesting as this one, I may not miss a single day. Some days I may seem inspired and the juices may flow, while at other
I would like to begin a chronicled look at my life with Parkinsons Disease, contributing to this effort as often as I feel up to doing so. But I must warn you, with a topic as interesting as this one, I may not miss a single day. Some days I may seem inspired and the juices may flow, while at other
jeffjennings
in
Cure Parkinson's
12 years ago
I have to fight the Beast
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
I was 33 yrs when I was diagnosis with the Beast . In 2007 I was laid off for 2 yrs I was looking for work and for 2yrs my parkinsons got worse my doctor suggested that I go on SS disability . I was up to 2 pills of L- Dopa every 2hours and not lasting as long . That's when I decided to look in clinical
Hidden
in
Cure Parkinson's
12 years ago
positive thinking and dealing with parkinsons,
Hi i am maria and i am a 53 mother of 3 grown up daughters me and my husband became grandparents in march with a grandson, + another grandchild dew in feb 2012 next year, basically was diagnosed at 40 went as far as i could on meds so went on the 10 year trial for deep brain stimulation in newcastle
Hi i am maria and i am a 53 mother of 3 grown up daughters me and my husband became grandparents in march with a grandson, + another grandchild dew in feb 2012 next year, basically was diagnosed at 40 went as far as i could on meds so went on the 10 year trial for deep brain stimulation in newcastle
mazpar
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Deep Brain Stimlation (DBS)
I recently (June2nd) had the DBS op at the John Radcliffe Hospital in Oxford. Having had PD for 17 years I would say the op has been a success. It is early days yet, but I hope to be back playing golf & tennis in the not too distant future. I can now manage an hour's workout at the gym 2-3 times per
I recently (June2nd) had the DBS op at the John Radcliffe Hospital in Oxford. Having had PD for 17 years I would say the op has been a success. It is early days yet, but I hope to be back playing golf & tennis in the not too distant future. I can now manage an hour's workout at the gym 2-3 times per
compucure
in
Cure Parkinson's
13 years ago
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