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Newbie w/DBS
I'm not a newbie to PD, buy this is my first day (and first post) on this site.. I've was diagnosed w/PD about 15yrs ago, but, gratefully, it progressed very slowly... until about 3 yrs ago when I went downhill at an alarming rate. I had DBS surgery in 2009 and would be happy to share my experience
I'm not a newbie to PD, buy this is my first day (and first post) on this site.. I've was diagnosed w/PD about 15yrs ago, but, gratefully, it progressed very slowly... until about 3 yrs ago when I went downhill at an alarming rate. I had DBS surgery in 2009 and would be happy to share my experience
Thumbpick
in
Cure Parkinson's
12 years ago
My Experience With Deep Brain Stimulation
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
I have not spent a lot of time discussing Deep Brain Stimulation, or how it has affected my lifestyle. The reason for this is simple. I'm not quite sure I am qualified. Yes, I was the one that endured the hours of surgery, and yes, I was the one who dealt with all the unknowns that brain surgery brings
jeffjennings
in
Cure Parkinson's
13 years ago
I was dx 9 years ago, had DBS last year. Recently all toes and fingers feel ridged and sometimes lose my grip. Is this a PD progression?
Pelley
in
Cure Parkinson's
13 years ago
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Has anyone had DBS, deep brain surgery?
Hidden
in
Cure Parkinson's
13 years ago
RE: On being Affaid
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
While i was having my dbs surgery i got a staff infection in my brain with gave me grand mal seizure in my garage I don't want to scare anyone but i wrote about my experience If you read my stories you know me pretty well by now. However I did leave a year out. During September 2009 though March of
Captsteve
in
Cure Parkinson's
13 years ago
Something new
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
Daniel had an appointment with his neuro Monday morning. Commented to her that I thought he had and a sezure Wednesday night before Thanksgiving. Had an eeg and sure enough during the 2 hour procedure there were plenty of tiny sezures going on. It's happening on the left side. the side he's complain
DANIEL
in
Cure Parkinson's
13 years ago
Is it really a disease?
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
I have never thought much about healthcare, medication, research and definitely not about Parkinson’s disease. Well, here I am, 48 years old, cursing myself because I may have forgotten my meds at home and I have hundreds of questions and views on research, medication and healthcare organization. I went
dalo
in
Cure Parkinson's
13 years ago
Happy days ... re-implantation date in site
I can't remeber if I shared my story with this forum or not so to offset my absent mind here is the short version. I am 36 now. Symptoms started at 30, with Dx at 32 (my better half corrected me). C/L-Dopa etc was working ok until mid-2010 when it kept switching off on me. I was upto ~9 sinimet /day
I can't remeber if I shared my story with this forum or not so to offset my absent mind here is the short version. I am 36 now. Symptoms started at 30, with Dx at 32 (my better half corrected me). C/L-Dopa etc was working ok until mid-2010 when it kept switching off on me. I was upto ~9 sinimet /day
NoSringsAussie
in
Cure Parkinson's
12 years ago
23andme - an update on LRRK2
Studies are focused on whether decreased autophagy may make cells in the
brain
more susceptible to Parkinson’s-related cell
death
. Researchers want to know if this is a cause for the disease or simply an effect from it, said Fiske.
Studies are focused on whether decreased autophagy may make cells in the
brain
more susceptible to Parkinson’s-related cell
death
. Researchers want to know if this is a cause for the disease or simply an effect from it, said Fiske.
CPT_Helen
Administrator
in
Cure Parkinson's
12 years ago
PARKINSONS CURE WHIT ,IM QUITE RAATTY LOOKING
FOR MANY YEARS PARKINSONS RESEARCH HAS PLAYED AT RESEARCHING,.NO SWEAT NO RUSH , NO HEAT TO GET A RESULT PARKINSONS RESEARCH EMPLOYS ALOT OF PEOPLE, BANG,, SUDDENLY A CURE, IS ANNOUNCED, LIKE THE HORMONE PUMP FROM BRISTOL UNIVERSITY, THEN IT WAS REVERSE GEAR THE HORMONE /DRUGSWERE WITHDRAWN
FOR MANY YEARS PARKINSONS RESEARCH HAS PLAYED AT RESEARCHING,.NO SWEAT NO RUSH , NO HEAT TO GET A RESULT PARKINSONS RESEARCH EMPLOYS ALOT OF PEOPLE, BANG,, SUDDENLY A CURE, IS ANNOUNCED, LIKE THE HORMONE PUMP FROM BRISTOL UNIVERSITY, THEN IT WAS REVERSE GEAR THE HORMONE /DRUGSWERE WITHDRAWN
professor
in
Cure Parkinson's
12 years ago
When to decide to get DBS ?
Hidden
in
Cure Parkinson's
13 years ago
Parkinson's and Quality of Life - a patient's perspective
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
Quality of life (QoL) for the individual with Parkinson’s disease relies heavily on the effectiveness of communication between patient and healthcare providers. It is only through a successful interaction between clinical expertise and patient experience together with lifestyle choice that the most appropriate
CPT_Tom
in
Cure Parkinson's
13 years ago
Finally joining the fight, a brief history of my life with parkinson's dbs before during and after
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Well I was told I had Parknsons about the year 2000 I was 30 years old .I had to retire from law enforcement in 2005 . This was total hell and I became seriously depressed .So I started doing a lot of fishing. Then social security took away my monthly benefits b/c I was getting better . No stupids
Captsteve
in
Cure Parkinson's
13 years ago
Can PD symptoms remain on one side of the body?
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
I was diagnosed 8 years ago, and my left side has gotten really bad but I still have no symptoms on my right side. Very strange since everything I have read says that PD always starts on one side of the body and then spreads to the other. My left side got SO bad (dystonia, arm muscle cramps, stiffness
jazzfan53
in
Cure Parkinson's
13 years ago
Poem 4 - DBS - 1 procedure down and 2 to go
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
Poem 4 The day began before dawn but it wasn’t too bad, I want all to know. I can report - That’s one procedure down but still two more to go. By 9:00 AM I had a few extra holes in the top of my almost bald head. And by Noon, I was home comfy under the covers in my very own bed. The second
FifteenyearsPD
in
Cure Parkinson's
13 years ago
DBS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
IF I HAVE THE BRAIN STIMULATION WIRES IVE BEEN TOLD I CANNOT BE NEAR ANYTHING WITH MAGNETS. AM I GOING TO BECOME A PRISONER OF A SURGERY THAT IS SUPPOSE TO HELP ME . I DON'T WANT TO BECOME A HERMIT..AND ALMOST EVERYTHING HAS MAGNETS
paloma
in
Cure Parkinson's
13 years ago
DBS I WOULD LIKE TO HERE FROM ANY ONE WHO HAS ONE.
Hi would like to here from any one who has a DBS and know,s how many volts . Since you have had the DBS Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
Hi would like to here from any one who has a DBS and know,s how many volts . Since you have had the DBS Has any one had the volt,s move . I would like to here about it, how ever small . yours EXPORT.
export
in
Cure Parkinson's
13 years ago
To have or to have not
I have had PD (diagnosised) since 2002. In 2004, I was so bad that I taught my self how to write lefthanded, I walked with a cane and my right side had constant tremors. In the summer of 2004, I started having complications from one of the many medications I was taking. So it was determined that I would
I have had PD (diagnosised) since 2002. In 2004, I was so bad that I taught my self how to write lefthanded, I walked with a cane and my right side had constant tremors. In the summer of 2004, I started having complications from one of the many medications I was taking. So it was determined that I would
Sadiesadie
in
Cure Parkinson's
12 years ago
Letting Go-The daughter of a Parkinson's patient urges her Dad not to give up.
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Letting Go 2011 My heart feels like it has broken in two at the realization that my dad is gone. I say the words to myself, and cringe at their impact: “My dad is gone, and he’s never coming back.” I think this as I am looking straight at him, sitting up in his chair, a familiar pose; right foot
Maryt1967
in
Cure Parkinson's
13 years ago
HI DOES ANY ONE GET VERY BAD PAIN IN THE FACE ???
HI could any one tel me, who has had bad pain in the face. Face swollen My GP can see my face HAS ANY ONE WHO HAS A DBS HAD BAD PAIN WHICH THEY PUT DOWN TO THE DBS. CAN DBS GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
HI could any one tel me, who has had bad pain in the face. Face swollen My GP can see my face HAS ANY ONE WHO HAS A DBS HAD BAD PAIN WHICH THEY PUT DOWN TO THE DBS. CAN DBS GIVE YOU PAIN ??? PS Sorry about the grammar yours EXPORT.
export
in
Cure Parkinson's
13 years ago
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