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DBS...feeling pressured & can't decide!
How does one weigh out the risks & make the right decision as to having the DBS surgery? It's been 14+ years since my diagnosis at age 45. I am currently on Rytary 23.75/95 MG, taking 3 cap. 4-5 x day. With the first dose of the day I also take 1 tab. Ropinirole 0.5 MG. The 1st dose usually lasts about
How does one weigh out the risks & make the right decision as to having the DBS surgery? It's been 14+ years since my diagnosis at age 45. I am currently on Rytary 23.75/95 MG, taking 3 cap. 4-5 x day. With the first dose of the day I also take 1 tab. Ropinirole 0.5 MG. The 1st dose usually lasts about
Sedona
in
Cure Parkinson's
7 years ago
DBS without surgery
DBS without surgery is on the horizon. https://www.nytimes.com/2017/06/01/health/new-electrical-brain-stimulation-technique-shows-promise-in-mice.html
DBS without surgery is on the horizon. https://www.nytimes.com/2017/06/01/health/new-electrical-brain-stimulation-technique-shows-promise-in-mice.html
aspergerian
in
Cure Parkinson's
7 years ago
Neuro patch
I am having DBS surgery this fall, but in the meantime, am taking 10 Sinemet 25/100 tabs daily. On/off periods are the norm, so I am considering wearing the patch. Looking for anyone with experience (good/bad) with the patch.. Thanks!!
I am having DBS surgery this fall, but in the meantime, am taking 10 Sinemet 25/100 tabs daily. On/off periods are the norm, so I am considering wearing the patch. Looking for anyone with experience (good/bad) with the patch.. Thanks!!
annmariebaird
in
Cure Parkinson's
7 years ago
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Shingles post FCR
I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before. It's been 9 days now since the rash appeared and the pain has actually gotten worse in the
I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before. It's been 9 days now since the rash appeared and the pain has actually gotten worse in the
Kenn123
in
CLL Support
7 years ago
Falling over after DBS
I was very fortunate to gave undergone DBS surgery almost exactly two years ago at the JR in Oxford. Almost every aspect of my symptoms have improved dramatically, the only problems I am left with is my totally illegible handwriting; my weak voice and, worst of all, the occasional fall for no reason!
I was very fortunate to gave undergone DBS surgery almost exactly two years ago at the JR in Oxford. Almost every aspect of my symptoms have improved dramatically, the only problems I am left with is my totally illegible handwriting; my weak voice and, worst of all, the occasional fall for no reason!
Gaz1403
in
Cure Parkinson's
7 years ago
DBS Denied. Any recourse?
My sister was denied DBS after having been told she was an ideal candidate. The neuropsych evaluator decided she didn't meet the criteria. Initially she was told she would have to wait 6 months to be reevaluated, then it was a year. This was supposedly because she might remember too much about the
My sister was denied DBS after having been told she was an ideal candidate. The neuropsych evaluator decided she didn't meet the criteria. Initially she was told she would have to wait 6 months to be reevaluated, then it was a year. This was supposedly because she might remember too much about the
bibsie
in
Cure Parkinson's
7 years ago
Intermittent swelling/numb feeling
Hi guys, I have just joined this group and very grateful to have found it, Thank you. When I was 16(1999) I had none cancerous brain tumour removed(Nottingham qmc) located to the left temporal lobe, this tumour started to cause terrible headaches, memory loss, epilepsy and constant deja vus. My operation
Hi guys, I have just joined this group and very grateful to have found it, Thank you. When I was 16(1999) I had none cancerous brain tumour removed(Nottingham qmc) located to the left temporal lobe, this tumour started to cause terrible headaches, memory loss, epilepsy and constant deja vus. My operation
andyjmuk
in
Headway
7 years ago
I am 100% certain I have a brain tumour ??
I have constant daily mild headaches which get worse when straining and bending down. I feel dizzy and tired all the time. Also have had sudden weight gain and flashes of light in the corners of my eyes and blurry vision I am so scared please help??
I have constant daily mild headaches which get worse when straining and bending down. I feel dizzy and tired all the time. Also have had sudden weight gain and flashes of light in the corners of my eyes and blurry vision I am so scared please help??
sarah4856
in
Anxiety Support
7 years ago
Bacterial meningitis
Hi my Granddaughter had Bacterial meningitis last June she is still suffering with very painful bottom of her feet and finds it difficult to walk at times., any ideas, she is 20years. Chris
Hi my Granddaughter had Bacterial meningitis last June she is still suffering with very painful bottom of her feet and finds it difficult to walk at times., any ideas, she is 20years. Chris
Ch43351
in
Meningitis Now
7 years ago
LIFE-THREATENING sleeping pill resistant INSOMNIA please HELP!
Life threatening sleeping pill resistant insomnia please HELP! π’π’π’π’π’π’π’π’π’π’ I'm a 56 year old. 30 Years ago I was prescribed sleeping tablets. No one told me I would build up a resistance to it. Now I sleep ZERO, nothing. I've seen psychiatrists, a sleep specialist who is trying which I appreciate
Life threatening sleeping pill resistant insomnia please HELP! π’π’π’π’π’π’π’π’π’π’ I'm a 56 year old. 30 Years ago I was prescribed sleeping tablets. No one told me I would build up a resistance to it. Now I sleep ZERO, nothing. I've seen psychiatrists, a sleep specialist who is trying which I appreciate
Moytjie
in
Anxiety Support
7 years ago
Feeling horrible!
Last couple days I have ft pressure on my head off and on, then feel kind of dizzy, keep thinking I have a brain tumor or something! I've had anxiety for awhile now, but got better last year, thinks its coming back again, feel it coming on again now and trying to relax, but just isn't working,
Last couple days I have ft pressure on my head off and on, then feel kind of dizzy, keep thinking I have a brain tumor or something! I've had anxiety for awhile now, but got better last year, thinks its coming back again, feel it coming on again now and trying to relax, but just isn't working,
Lilmomma
in
Anxiety Support
7 years ago
Headache not going away??
Hi my headache is not going away even after i have taken pain killer? Its a dull ache all over, but I have sharp pains in both temples. I have had it for 5 days and its just not going away. I have health anxiety and I'm really scared its a brain tumour because i have other neurological symptoms such
Hi my headache is not going away even after i have taken pain killer? Its a dull ache all over, but I have sharp pains in both temples. I have had it for 5 days and its just not going away. I have health anxiety and I'm really scared its a brain tumour because i have other neurological symptoms such
sarah4856
in
Anxiety Support
7 years ago
Parkinson's Disease Symptom Progression
Hi all This is a link to my vlog about Parkinson's Disease Symptom Progression - from my very first symptom through to current day, post DBS. https://www.youtube.com/watch?v=2marj7uk62k Cheers, Ian
Hi all This is a link to my vlog about Parkinson's Disease Symptom Progression - from my very first symptom through to current day, post DBS. https://www.youtube.com/watch?v=2marj7uk62k Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
New with shingles
HiI am 82, male, I had a shingles attack 2 years ago R side of forehead and nose my problem is nerve pain mainly on the eyebrow I take Lyrica 250mg twice daily. pain killers don't help , some days bearable other days I just try to live with it, anyone with similar and can offer advise welcome
HiI am 82, male, I had a shingles attack 2 years ago R side of forehead and nose my problem is nerve pain mainly on the eyebrow I take Lyrica 250mg twice daily. pain killers don't help , some days bearable other days I just try to live with it, anyone with similar and can offer advise welcome
dumela
in
Lung Conditions Community Forum
7 years ago
How long should I have to wait for initial programming
I am having the battery pack implanted on 20 June. The initial programming of the dbs is scheduled for july7th. What do you think?
I am having the battery pack implanted on 20 June. The initial programming of the dbs is scheduled for july7th. What do you think?
eleniloporto
in
Cure Parkinson's
7 years ago
Anxitey
I have wrote a few posts now but I just like a bit of ressurance does anybody get stabbing pains in head pain in face behind eyes and in ears as well and are people's symptoms alot worse late at night or when your tired and when you sit down can you still feel dizzy and can the head pains be really sharp
I have wrote a few posts now but I just like a bit of ressurance does anybody get stabbing pains in head pain in face behind eyes and in ears as well and are people's symptoms alot worse late at night or when your tired and when you sit down can you still feel dizzy and can the head pains be really sharp
Eddy96
in
Anxiety Support
7 years ago
Another Cranioplasty
Hi. I due to have nother cranioplasty in jyst over three weeks time I think. Must admit I bit scared at prospect. Had to have previously cranioplasty removed last year in March 2016 because it broke down after being in my head for 30 years and caused a big infection. The plate was removed and then I
Hi. I due to have nother cranioplasty in jyst over three weeks time I think. Must admit I bit scared at prospect. Had to have previously cranioplasty removed last year in March 2016 because it broke down after being in my head for 30 years and caused a big infection. The plate was removed and then I
StevedeSouza70
in
Headway
7 years ago
Duopa pump
My fellow Parkie's, I went to my neuro yesterday and he told my about the Duopa pump and how successful it has been. It essentially pumps a steady stream of Sinimet through a feeding tube placed in your stomach and into your small intestine. The drug is pumped during your waking hours allowing you to
My fellow Parkie's, I went to my neuro yesterday and he told my about the Duopa pump and how successful it has been. It essentially pumps a steady stream of Sinimet through a feeding tube placed in your stomach and into your small intestine. The drug is pumped during your waking hours allowing you to
Sleeplessparki
in
Cure Parkinson's
7 years ago
pressure on cheekbone and head
I can feel this intense pressure between my right cheekbone and head, scaring me to
death
as I automatically think about a
brain
aneurysm! someone please reassure me!! Thank you x
I can feel this intense pressure between my right cheekbone and head, scaring me to
death
as I automatically think about a
brain
aneurysm! someone please reassure me!! Thank you x
Lilianxious
in
Anxiety Support
7 years ago
Insaine in da membrane
This is just another thing my episode of paranoia fear of
death
my
brain
makes up. We just finished dinner and I feel like a piece of food is stuck in my throat ..
This is just another thing my episode of paranoia fear of
death
my
brain
makes up. We just finished dinner and I feel like a piece of food is stuck in my throat ..
Hidden
in
Anxiety Support
7 years ago
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