PMRGCAuk
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More about the shingles vaccine and its downsides

I have posted before about the shingles vaccine listing PMR as a possible adverse event.

healthunlocked.com/pmrgcauk...

Today I found this gem to add to it:

info.cmsri.org/the-driven-r...

Read right to the bottom of the page. Nothing would induce me to have it!

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Very interesting! Thanks.

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Thanks for that!

This might be old info but I will throw it in; If you google University of Colorado and shingles and GCA there is info on research in this area.

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Thanks for that, makes me even more inclined NOT to have the jab, my rheumatologist laughed when I said that I had read somewhere that because it was a live virus those suffering with PMR should not have the vaccine. :-( :-) and that was three 2 years ago. I hope sods law doesn't come into play here :-(

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Not so much the PMR but the pred used to treat it. But the blurb does suggest that the PMR doses are OK - but GCA ones are definitely not with 20mg formng the dividing line.

Doesn't alter the fact that I'm left to wonder where some rheumies aquire their knowledge...

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OK thank for clarification :-)

Your last comment, me too!! :-(

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Me too. PMRpro's last comment that is. 😟

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me to from what Ive read here, and gps from what Ive experienced!!

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I told my husband he couldn't have the shingles vaccine because I've never had chicken pox. Perhaps he dodged a bullet too. :)

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Just saw this posted on FB:

nytimes.com/2017/11/10/heal...

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Interesting.

Not yet cleared for Europe. And limited long term studies. But sounds feasible for immunocompromised.

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No doubt the down sides will become apparent over time. This article gives a good overview:

newswire.ca/news-releases/s...

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I think Shingles has become terrifically present in the US because we vaccinate children for chicken pox and no one is exposed (like a booster) to children with chicken pox. ... and in the US more and more young people under 50 are getting it. Still not sure about this vaccination certainly won't have it while I have PMR

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Thank you so much for sharing this info on the shingles vaccine. I would have been eligible for the vaccine next year and had intended having it. Since I have cardiomyopathy and have suffered congestive heart failure twice I wouldn’t now touch it with a barge pole. Thank you so much.

Liz.

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Many thanks for that, very interesting. Sounds much better than what is currently available here in Europe. Wouldn't have helped my son, he had shingles the day after his 12th birthday but didn't have any neuralgia afterwards . Doc said he was far too young to have shingles but that's what it is, no doubt about it. Freak? 😂

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This is all getting very scary!

I had the shingles vaccine in December 2012. PMR was diagnosed in March 2014. According to the physician who diagnosed PMR, I may have had it since 2006 based on major unresolved lag issues. So the vaccine may not have been the culprit.

What's next...concern with flu vaccine?!?!?!

I guess what scares me the most is that all the vaccine naysayers have not been totally off the mark.

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That is really interesting information. I had the shingles vaccine in April this year and afterwards I felt "not myself" in a non specific sort of way. Eventually I was diagnosed with PMR at the end of August.

I have been reading this forum since then and have found it very very helpful as my GP tells me nothing.

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As posted before. I had shingles three times after the shot and I never had shingles before. In fact I was extremely healthy. After the shot I developed shingles, Grover's Disease, Trocanteric hip bursitis and PMR (which I always blamed on the shot) Incidentally I have read that some consider Grover's Disease to be an autoimmune disease as PMR is. I firmly believe that the shot damaged my immune system and my Immunologist said a perfectly healthy person should not have the shot.

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"my Immunologist said a perfectly healthy person should not have the shot"

Says it all really doesn't it - and I'd trust an immunologist before I'd trust Big Pharma out to make money...

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I had the shingles vaccine a year ago...probably too long ago to blame on my PMR but once again... thank you for this information. In US they advertise on TV all the prescription drugs and say ASK your doctor!!! you too might want to play with your grandchildren in the idyllic country side ..my doc has said people have come in asking for a drug they absolutely do not need because of ads.

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Mercifully they aren't allowed to advertise directly to the patients in the UK - just the doctors. Who occasionally can be as gullible as patients...

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you should see the viagra ads !! haha SPARE US!

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I hate to think! But it has just been approved for OTC sales in the UK. Heaven help us if that's their priority...

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