Sudden Downturn

[3Fishies]

My spouse has the DBS in oct 2016.

The past 6 months, he’s been falling daily. Forgetting, occasionally leaving stove on...

Finally, the doctor convinced him to get a walker. We’re also testing him to see if he can drive.

I upped his devices to 3.7voltz a month ago but the dr put them at 4.0 yesterday.

They ran blood tests to check his B12 levels, we’ll know by Monday. And the social worker is supposed to call me also so we can talk.

They also ordered in-home occupational therapy because he won’t go to the hospital.

I guess, I thought I was ahead of the curveball by trying to move us to a condo ASAP. Still waiting to bid. (Private condo sale) And now that this has happened, it’s all so fast.

For years I’ve been wondering just how much he was hiding the true state of this disease, and it’s hitting all at once. I’m afraid he’ll need an aide soon, at least for a few hours in the mornings.

I’m just not sure at what point I’ll know if he needs it.

The doctor prescribed some kind of pill to help his memory. I’ll have to go to pharmacy tomorrow.

Anyway. Thanks for letting me talk through it.

[jeeves19]

How long has he had PD for exactly ?

[3Fishies in reply to jeeves19]

I’m guessing about 21 years

[Juliegrace]

It sounds like you're doing all you can. Has he been ill otherwise? Anything else wrong (cold, flu, sinus infection, etc) can be horrible for PWP.

[3Fishies in reply to Juliegrace]

No colds. Nothing I can see.

[mckchart]

Hi i had DBS around the same time then year later had implants set deeper as the results were not positve from first operation .As of today my balance isnt good and without medication my walking is very poor. I have learnt DBS doesnt do as good as what i expected and sooner rather than later will probably require a walking aid to , my settings are also R4.0 L 4.2 but still get severe muscle pain in left arm , hope this has been of help