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Experiences with
Brain arteriovenous malformation (AVM)
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Shingles jab
Thank you all for your replies about the 2 types of shingles jabs and for PMRpro's site redirection... mmmm... all responses indicate missing this generous offer! Do GPs read the info? I have very little faith in my current GP so will tackle the surgery forewarned and, if necessary, forearmed.
Thank you all for your replies about the 2 types of shingles jabs and for PMRpro's site redirection... mmmm... all responses indicate missing this generous offer! Do GPs read the info? I have very little faith in my current GP so will tackle the surgery forewarned and, if necessary, forearmed.
tgca
in
PMRGCAuk
5 years ago
Teva to Activis
Hi, I've been taking Teva Levothyroxine since diagnosed hypo for 3 years....no side effects. My pharmacist gave me Activis, Northstar which I have taken for 9 days. I noticed slight headaches throughout the days leading up to this morning when I woke up at 5.15am with a headache and feeling nauseous.
Hi, I've been taking Teva Levothyroxine since diagnosed hypo for 3 years....no side effects. My pharmacist gave me Activis, Northstar which I have taken for 9 days. I noticed slight headaches throughout the days leading up to this morning when I woke up at 5.15am with a headache and feeling nauseous.
geegee888
in
Thyroid UK
5 years ago
DBS for Mom who is 85
My Mom was initially not ready for DBS. Now she would like to go that direction. I contacted her Neuro and they said she is not a candidate for DBS and mentioned her age of 85. Now what? Do I push for another opinion from another Neuro? Or is there typically a cutoff for this type of surgery
My Mom was initially not ready for DBS. Now she would like to go that direction. I contacted her Neuro and they said she is not a candidate for DBS and mentioned her age of 85. Now what? Do I push for another opinion from another Neuro? Or is there typically a cutoff for this type of surgery
Hidden
in
Cure Parkinson's
5 years ago
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Tapering again.
Hello to all you lovely people who have helped me over the last week. Things have now progressed further and this morning I noticed a rash where the pain had been. A visit to the doctor confirmed my suspicion of shingles. So I think I did have a PMR flare but I now also have shingles. Life is such fun
Hello to all you lovely people who have helped me over the last week. Things have now progressed further and this morning I noticed a rash where the pain had been. A visit to the doctor confirmed my suspicion of shingles. So I think I did have a PMR flare but I now also have shingles. Life is such fun
Seraphina56
in
PMRGCAuk
5 years ago
Struggling after moving to a new city
I have recently moved to a new city. I know some people here but don’t see them much as they are often busy. I am waiting for DBS and other work documents to go through soo have several weeks before my job starts. I am struggling not knowing many people, not having a purpose and having very little money
I have recently moved to a new city. I know some people here but don’t see them much as they are often busy. I am waiting for DBS and other work documents to go through soo have several weeks before my job starts. I am struggling not knowing many people, not having a purpose and having very little money
benbt
in
Mental Health Support
5 years ago
Advice
Hi Has anyone had a craniotomy then a cranioplasty with the original bone flap being put back in( hopefully I’ve got those the right was round) I’m so worried every day it feels like my brain is bulging and pushing the bone flap outwards and sometimes it’s more bulging and sometimes it’s just flat I’
Hi Has anyone had a craniotomy then a cranioplasty with the original bone flap being put back in( hopefully I’ve got those the right was round) I’m so worried every day it feels like my brain is bulging and pushing the bone flap outwards and sometimes it’s more bulging and sometimes it’s just flat I’
Braininjurysurvivor
in
Headway
5 years ago
ITP and shingles
If you've had ITP, can you take acyclovir? As having been given these for shingles, but knowing that they lower your immune system,? Cheers
If you've had ITP, can you take acyclovir? As having been given these for shingles, but knowing that they lower your immune system,? Cheers
Mazmeadows
in
CLL Support
5 years ago
I'm new here
I '. been thur thyroidectomy. Due to CANCER. Then in 2015 had a rare tumor removed. Today I got my bloodwork back Dr says my tsh 4 lvls was off the charts. He ordered a lower dose. Every 6 months I have my bloodwork done
I '. been thur thyroidectomy. Due to CANCER. Then in 2015 had a rare tumor removed. Today I got my bloodwork back Dr says my tsh 4 lvls was off the charts. He ordered a lower dose. Every 6 months I have my bloodwork done
curity
in
Thyroid UK
5 years ago
Neurologist Examination
Neurologist exam this morning, 1/9/2020, review: I was diagnosed 2012 Bedtime C/L 50-200 ER: Because it is ER, I take with or w/o food. 5 x day C/L 25 - 100 IR: 6:30, 9:30, 12:30, 3:30, 6:30 B1 (8 am 2g, and 12:30 pm 2g) vitamin B1 as thiamine HCL. 500mg, easy swallow capsules Assessment and Plan
Neurologist exam this morning, 1/9/2020, review: I was diagnosed 2012 Bedtime C/L 50-200 ER: Because it is ER, I take with or w/o food. 5 x day C/L 25 - 100 IR: 6:30, 9:30, 12:30, 3:30, 6:30 B1 (8 am 2g, and 12:30 pm 2g) vitamin B1 as thiamine HCL. 500mg, easy swallow capsules Assessment and Plan
Hidden
in
Cure Parkinson's
5 years ago
Anxiety
So my main anxiety is tumors and aneurysm’s. I’m 19, no family history of either. But I still worry about it on a constant. I vape, and it’s been making me feel like complete crap lately, headaches and what not. But I just want to know the likeliness of an aneurysm at 19. I just constantly worry about
So my main anxiety is tumors and aneurysm’s. I’m 19, no family history of either. But I still worry about it on a constant. I vape, and it’s been making me feel like complete crap lately, headaches and what not. But I just want to know the likeliness of an aneurysm at 19. I just constantly worry about
DoggieLoverbon
in
Anxiety Support
5 years ago
Shingles jab and PMR
A lady I know believes her PMR was caused by the shingles jab she was recently offered at the age of 70. I’d never heard this before and I wondered if it’s a widely shared view and if so is there any evidence to back it up?
A lady I know believes her PMR was caused by the shingles jab she was recently offered at the age of 70. I’d never heard this before and I wondered if it’s a widely shared view and if so is there any evidence to back it up?
Casia
in
PMRGCAuk
5 years ago
Baffled
I have been feeling deaf in my left ear for years,to me it didn’t feel like true deafness as sometimes when I turned my head it totally cleared until I moved my head again.I also felt my head was full of cotton wool.I asked different GPs for years & they just looked in my ears & said they could see nothing.Eventually
I have been feeling deaf in my left ear for years,to me it didn’t feel like true deafness as sometimes when I turned my head it totally cleared until I moved my head again.I also felt my head was full of cotton wool.I asked different GPs for years & they just looked in my ears & said they could see nothing.Eventually
Ronald49
in
Pain Concern
5 years ago
Referred for MRI - Suspected benign tumour
Hi all Thanks everyone for sharing as much as you have on this forum. I have been reading through and everyone’s questions and responses are a great help in an unsure time for me. I have tinnitus and hearing loss in both ears but the ENT consultant advised there was a notable difference of 15 decibels
Hi all Thanks everyone for sharing as much as you have on this forum. I have been reading through and everyone’s questions and responses are a great help in an unsure time for me. I have tinnitus and hearing loss in both ears but the ENT consultant advised there was a notable difference of 15 decibels
Linseyb
in
Acoustic Neuroma Support
5 years ago
Misty Rushing is a CRNA (nurse anesthesiologist) and a Functional Medicine 25th Dec 2019
Misty Rushing is a CRNA (nurse anesthesiologist) and a Functional Medicine Advocate. She has been dealing with chronic illness since contracting lyme disease from a known tick bite in 2009. In 2010, she was diagnosed with lupus but later learned she had lyme disease after being tested. Doxycycline antibiotic
Misty Rushing is a CRNA (nurse anesthesiologist) and a Functional Medicine Advocate. She has been dealing with chronic illness since contracting lyme disease from a known tick bite in 2009. In 2010, she was diagnosed with lupus but later learned she had lyme disease after being tested. Doxycycline antibiotic
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Normal MRI, EEG -don’t feel normal Vm from shingles
Hi Things keep coming back ‘normal’ but I still get tired and have jerks and a little bit of “ataxia” when tired. I don’t think this is a “functional” or conversion disorder, since this only happened after meningitis but I keep wondering what’s wrong with me? Is it just meningitis recovery?
Hi Things keep coming back ‘normal’ but I still get tired and have jerks and a little bit of “ataxia” when tired. I don’t think this is a “functional” or conversion disorder, since this only happened after meningitis but I keep wondering what’s wrong with me? Is it just meningitis recovery?
greenocean
in
Meningitis Now
5 years ago
More information on DBS from Simon
https://scienceofparkinsons.com/2019/12/15/dbs/
https://scienceofparkinsons.com/2019/12/15/dbs/
parkie13
in
Cure Parkinson's
5 years ago
Chiropractic care to reduce “Pisa (leaning tower posture”.
Has anybody tried Chiropractic care to straighten spine? Husband with DBS, pd falls constantly, severe leaning to right. Interested in knowing if this helped you with posture.
Has anybody tried Chiropractic care to straighten spine? Husband with DBS, pd falls constantly, severe leaning to right. Interested in knowing if this helped you with posture.
Parkiewife
in
Cure Parkinson's
5 years ago
Job.
Hi ladies and gents. I have got a part-time cleaning job at a local school. I have applied for my enhanced DBS even though I already have one. I go to register on Wednesday and will probably start work after Christmas now. I am feeling very well in myself. I have been reading my books on Narcissistic
Hi ladies and gents. I have got a part-time cleaning job at a local school. I have applied for my enhanced DBS even though I already have one. I go to register on Wednesday and will probably start work after Christmas now. I am feeling very well in myself. I have been reading my books on Narcissistic
Poulson
in
Action on Postpartum Psychosis
5 years ago
Ongoing headaches three years after surgery
Hello, this is my first time on here but at the moment I’m open to any ideas. I had benign brain tumour removed three years ago. I am very lucky it wasn’t more serious than this. I pushed to return to ‘normal’, going back to work etc. I’ve tried numerous pain meds but the “thinking” required is causing
Hello, this is my first time on here but at the moment I’m open to any ideas. I had benign brain tumour removed three years ago. I am very lucky it wasn’t more serious than this. I pushed to return to ‘normal’, going back to work etc. I’ve tried numerous pain meds but the “thinking” required is causing
LauraGathercole
in
Headway
5 years ago
Helpful books to help children coping with parents brain injury
Following the car crash my husband was involved in 14 months ago he has diffuse axonal injury. My husband now lives with carers 24/7 as he is awaiting a leg operation. Recently our 3 and a half year old daughter has started to notice more that her Dads not how he used to be. When we stayed at my husband's
Following the car crash my husband was involved in 14 months ago he has diffuse axonal injury. My husband now lives with carers 24/7 as he is awaiting a leg operation. Recently our 3 and a half year old daughter has started to notice more that her Dads not how he used to be. When we stayed at my husband's
ZP1980
in
Headway
5 years ago
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