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Brain arteriovenous malformation (AVM)
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Shingles vaccine
I'm booked to have a Shingles jab shortly. Has anyone had this while on Prednisolone? Were you okay? Any side effects.
I'm booked to have a Shingles jab shortly. Has anyone had this while on Prednisolone? Were you okay? Any side effects.
guineapigharriet
in
PMRGCAuk
3 years ago
Do brain implants (like DBS) change your personality?
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
From the New Yorker Magazine For the great majority of patients, deep-brain stimulation was beneficial and life-changing, but there were occasional reports of strange behavioral reactions, such as hypomania and hypersexuality. Then, in 2006, a French team published a study about the unexpected consequences
jackedmonston
in
Cure Parkinson's
3 years ago
PAINFUL NEUROMAS IN STUMP
My sister DEBWEB has APS RA SOJERNS AND POLYSYTHMUA VERA. She lost her leg in 2015 due to a blood clot in her foot. This was caused by APS She los just below the knee. She did well fitted with artificial leg and was great. About 1 Year ago she developed neuromas in the stump. It was caused by an ill
My sister DEBWEB has APS RA SOJERNS AND POLYSYTHMUA VERA. She lost her leg in 2015 due to a blood clot in her foot. This was caused by APS She los just below the knee. She did well fitted with artificial leg and was great. About 1 Year ago she developed neuromas in the stump. It was caused by an ill
Nanny23
in
Pain Concern
3 years ago
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More Encouraging Focused Ultrasound News
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
I readily admit that I don't understand much of this article, but I do understand that it's another encouraging bit of information regarding focused ultrasound with specific potential for treatment of Parkinson's Disease and may other ailments. "Parkinson’s Disease, epilepsy and insomnia are just a few
jimcaster
in
Cure Parkinson's
3 years ago
Pioneering neural recordings lay the groundwork for personalized Parkinson's treatments
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (DBS) therapy. Pairing the brain recordings with wearable monitors of
In a study published May 3rd in Nature Biotechnology, UCSF Weill Institute for Neurosciences researchers implanted novel neurostimulation devices that monitor brain activity for many months, with and without deep brain stimulation (DBS) therapy. Pairing the brain recordings with wearable monitors of
Farooqji
in
Cure Parkinson's
3 years ago
Advances in deep brain stimulation
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of DBS in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
A friend who is an electronics engineer sent me this article about an experiment to monitor brain activity remotely using WiFi and Bluetooth, and to use the results to improve the tuning of DBS in 5 patients with parkinson's disease https://gizmodo.com/in-a-first-people-had-their-brain-activity-tracked-rem
WinnieThePoo
in
Cure Parkinson's
3 years ago
To studied benefits of DBS
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
The study below says that the benefits last at least 10 years. https://www.michaeljfox.org/news/news-context-deep-brain-stimulation-offers-long-term-benefits-parkinsons
pdpatient
in
Cure Parkinson's
3 years ago
Shingles
SHINGLES could be a new but rare side effect of the coronavirus vaccine, doctors have discovered. Experts in Israel found that patients with certain autoimmune diseases who received the Pfizer/BioNTech jab were more likely to develop the rash than those without the condition. 🔵 Read our coronavirus
SHINGLES could be a new but rare side effect of the coronavirus vaccine, doctors have discovered. Experts in Israel found that patients with certain autoimmune diseases who received the Pfizer/BioNTech jab were more likely to develop the rash than those without the condition. 🔵 Read our coronavirus
Strumpet
in
Thyroid UK
3 years ago
Shingles and covid vaccine !
Don’t know if this is significant but I had my first dose of covid vaccine in January then 3 weeks later I got shingles on my upper torso I had my second dose of vaccine 3 weeks ago and now I have neuralgia which is also shingles I found out I have never experienced shingles in my life and have been
Don’t know if this is significant but I had my first dose of covid vaccine in January then 3 weeks later I got shingles on my upper torso I had my second dose of vaccine 3 weeks ago and now I have neuralgia which is also shingles I found out I have never experienced shingles in my life and have been
Strumpet
in
Thyroid UK
3 years ago
Dancing no more
Dose anyone who has Parkinson’s out there go dancing and if so what do you take to loosen up your body so you can dance , this is one thing I miss since getting Parkinson’s 7 years ago any help would be appreciated I have both sides completed with dbs if that matters thanks for any help
Dose anyone who has Parkinson’s out there go dancing and if so what do you take to loosen up your body so you can dance , this is one thing I miss since getting Parkinson’s 7 years ago any help would be appreciated I have both sides completed with dbs if that matters thanks for any help
hindle1245
in
Cure Parkinson's
3 years ago
Sinemet intake blocked by Proteins
I was diagnosed in 1992 and have had DBS surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins? Has anyone else
I was diagnosed in 1992 and have had DBS surgery. At 73, I am actually quite healthy. My question deals with protein intake due to Sinemet being blocked by animal and even quite a few plant proteins, namely amino acid foods. Are the other Parkinson drugs also sensitive to proteins? Has anyone else
annmariebaird
in
Cure Parkinson's
3 years ago
Parkinsons, DBS, Covid19 Pfizer Vaccine
My wife had DBS 10/2020. Everything isn't back to normal but they are much much much better than before DBS. All tremors and difficult times were gone. She received her 1st Pfizer Covid vaccine shot 3/29/2021. On 4/6/2021 she started to have breakthrough tremors and can barely walk without help. The
My wife had DBS 10/2020. Everything isn't back to normal but they are much much much better than before DBS. All tremors and difficult times were gone. She received her 1st Pfizer Covid vaccine shot 3/29/2021. On 4/6/2021 she started to have breakthrough tremors and can barely walk without help. The
royal57
in
Cure Parkinson's
3 years ago
Present and future of subthalamotomy in the management of Parkinson´s disease: a systematic review
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Article highlights The subthalamic nucleus (STN) plays a key role in the pathophysiology of Parkinson´s disease (PD). Neurosurgical targeting of the STN with Deep Brain Stimulation is a worldwide procedure for PD. Ablation of the STN with Radio Frequency has also been undertaken in several hundred
Farooqji
in
Cure Parkinson's
3 years ago
PTT - Pallidothalamic Tractotomy
Hi, My father has parkinson's for 15 years and I am trying to halt progression in some of the ways you all have. My father's issue has always been freezing and energy / just feeling unwell on days that freezing is predominant. PTT, are there any outcomes on freezing specifically? His DBS has essentially
Hi, My father has parkinson's for 15 years and I am trying to halt progression in some of the ways you all have. My father's issue has always been freezing and energy / just feeling unwell on days that freezing is predominant. PTT, are there any outcomes on freezing specifically? His DBS has essentially
simonasays
in
Cure Parkinson's
3 years ago
DBS
I want to know your experience with DBS
I want to know your experience with DBS
gigi9
in
Cure Parkinson's
3 years ago
Snoo
I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I had shingles badly about three years ago and this year will qualify for the shingles vaccine. Has anybody had the vaccine while on Pred and were
I have had PMR for many years and am in fact now labelled inflammatory arthritis. The signs and symptoms are the same as is the treatment on and off Pred. I had shingles badly about three years ago and this year will qualify for the shingles vaccine. Has anybody had the vaccine while on Pred and were
Snoopy7
in
PMRGCAuk
3 years ago
Viral meningitis
I have had VM, unfortunately the virus was not a usual strain so I did not respond to any IV treatments they usually give to VM patients. I had to fight it myself with a temp of 40.2. How long will the headaches last? Been in hospital 3 weeks only recently discharged and scared for the future .Any advice
I have had VM, unfortunately the virus was not a usual strain so I did not respond to any IV treatments they usually give to VM patients. I had to fight it myself with a temp of 40.2. How long will the headaches last? Been in hospital 3 weeks only recently discharged and scared for the future .Any advice
UptoonGirl1
in
Meningitis Now
4 years ago
Does shingles cause Hashimoto’s to flare up?
I have had Hashimoto’s now for about 3 years and I’m still finding it hard navigating my way through the symptoms and flare ups. I have suffered from very bad crippling anxiety over the last year and half which hasn’t helped with the lockdown and dealing a 4 year old and 1.5 year old while attempting
I have had Hashimoto’s now for about 3 years and I’m still finding it hard navigating my way through the symptoms and flare ups. I have suffered from very bad crippling anxiety over the last year and half which hasn’t helped with the lockdown and dealing a 4 year old and 1.5 year old while attempting
Purple_dog
in
Thyroid UK
4 years ago
Lyme's Disease long term arthritis
Is there anyone out there who has long term joint issues due to Lyme's Disease. I had it in 2019 but now struggle to walk 1 mile due to my knees apparently having crumbled and I have cysts on the cartlidge too. Is anyone having similar problems please ? Any advice too thanks.
Is there anyone out there who has long term joint issues due to Lyme's Disease. I had it in 2019 but now struggle to walk 1 mile due to my knees apparently having crumbled and I have cysts on the cartlidge too. Is anyone having similar problems please ? Any advice too thanks.
Bessie22
in
Pain Concern
4 years ago
MrHave PMR currently reducing am on 8mg...now have shingles should I increase pred?
PMR and Shingles
PMR and Shingles
Devon21
in
PMRGCAuk
4 years ago
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