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Brain arteriovenous malformation (AVM)
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shingles
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
been to Aand E I’ve now got shingles in my hair and face 😱think someone dosent like me🥲
Shaza123
in
PMRGCAuk
2 years ago
DBS and Sinemet
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
I had the DBS surgery last October. After DBS, Sinemet made my PD symptoms worse...especially balance (It's like I am constantly falling forward and my legs are trying to keep up). I told my neurologist about it and she thought is odd that Sinemet would do that. I feel better without the Sinemet.
DeanGreen
in
Cure Parkinson's
2 years ago
DBS surgery to help with “ frozen feet “
I was first diagnosed with PD in 2005, over the years my symptoms were for the most part mild and controlled with meds. However several months ago I developed “ frozen feet “ it has altered my quality of life substantially. I have switched exercise workouts to a stationary bicycle, PT therapy 3 times
I was first diagnosed with PD in 2005, over the years my symptoms were for the most part mild and controlled with meds. However several months ago I developed “ frozen feet “ it has altered my quality of life substantially. I have switched exercise workouts to a stationary bicycle, PT therapy 3 times
NewHope1961
in
Cure Parkinson's
2 years ago
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Can Adaptive Deep Brain Stimulation Cure Parkinson’s Disease?
Good essay from Benjamin Stecher: https://tmrwedition.com/2022/10/20/can-adaptive-deep-brain-stimulation-cure-parkinsons-disease/ Benjamin has PD. This is his blog: https://tmrwedition.com/my-pd-journey/
Good essay from Benjamin Stecher: https://tmrwedition.com/2022/10/20/can-adaptive-deep-brain-stimulation-cure-parkinsons-disease/ Benjamin has PD. This is his blog: https://tmrwedition.com/my-pd-journey/
Bolt_Upright
in
Cure Parkinson's
2 years ago
non live shingles vaccine
I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine ok if on less than 7.5 mg but check with nurse - should I go private if GP won’t let offer non live vaccine?
I will be having my shingles vaccine soon (70 in May) - should I ask for non live vaccine - Shingrax? I take 6 mg of prednisolone a day - GP says live vaccine ok if on less than 7.5 mg but check with nurse - should I go private if GP won’t let offer non live vaccine?
Daffodilia
in
PMRGCAuk
2 years ago
OCD and Deep Brain stimulation in New York
Hello! I am new here. Could anyone help me please? I need to find out how much is the approximate cost of the surgery called deep brain stimulation in the state of New York. I would like to opt for that surgery if I qualify as suitable. I hope it's not too expensive. Thank you very much in advance. I
Hello! I am new here. Could anyone help me please? I need to find out how much is the approximate cost of the surgery called deep brain stimulation in the state of New York. I would like to opt for that surgery if I qualify as suitable. I hope it's not too expensive. Thank you very much in advance. I
KurtNash
in
My OCD Community
2 years ago
Making plans to go forward?
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
Hi folks, this is my first post. I'm a year into my brain injury caused by encephalitis. This is the second injury, the first was 5 years ago and I recovered fairly quickly and fully. This second was a surprise to everyone, but apparently I probably have a rare disease that makes recurrent encephalitis
PurpleOverlord
in
Headway
2 years ago
A New Parkinson's Treatment - DBS Plus
A New Parkinson's Treatment - DBS Plus - Feb 11, 2020 Learn about a new treatment for Parkinson's being studied at the University of Kentucky HealthCare Brain Restoration Center. https://youtu.be/mdpCPXGtxug
A New Parkinson's Treatment - DBS Plus - Feb 11, 2020 Learn about a new treatment for Parkinson's being studied at the University of Kentucky HealthCare Brain Restoration Center. https://youtu.be/mdpCPXGtxug
Bolt_Upright
in
Cure Parkinson's
2 years ago
Vagal Nerve Stimulation (tVNS) Research Summary
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
Some definitions for clarity. Neuromodulation, stimulating nerves (usually with electricity) to change (hopefully improve) or control their function. Deep Brain Stimulation (DBS) is a form of neuromodulation. Neuromodulation can be invasive, requiring surgery (like DBS) or noninvasive which provides
House2
in
Cure Parkinson's
2 years ago
A LOW BUDGET DIY VIBROTACTILE STIMULATOR FOR EXPERIMENTAL CRS
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Modern techniques of Coordinated Reset Stimulation (CRS), which is usually administered with invasive deep brain stimulation, can have a miraculous effect on those suffering from Parkinson’s disease. However, the CRS technique can also apparently be administered via so-called vibrotactile CRS (vCRS)
Farooqji
in
Cure Parkinson's
2 years ago
pmr and now shingles
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
hi- I’m on day 6 of aciclovir for shingles. I cannot believe how bad I feel. The electric shock like pains up the side of my head 😱. And the general aches. Any advice? I’m down to 4 mg pred and was doing ok after the initial fatigue when I dropped down . Should I stay in bed? I really can’t believe
Fiddlemum
in
PMRGCAuk
2 years ago
chatGPT's opinion on PD - Simple and wise
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Unfortunately, there is no cure for Parkinson's disease, but there are several treatments available that can help manage the symptoms and improve quality of life. Here are some of the most common approaches to treating Parkinson's disease: Medications: There are several types of medications that
Xenos
in
Cure Parkinson's
2 years ago
New NICE Guideline - Thyroid cancer: assessment and management
Have not looked at it at all. [i]
Thyroid cancer: assessment and management
NICE guideline [NG230] Published: 19 December 2022 Guidance This guideline covers diagnosis and management of thyroid cancer in people aged 16 and over. It aims to reduce variation in practice and increase
Have not looked at it at all. [i]
Thyroid cancer: assessment and management
NICE guideline [NG230] Published: 19 December 2022 Guidance This guideline covers diagnosis and management of thyroid cancer in people aged 16 and over. It aims to reduce variation in practice and increase
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Shingles after GCA
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
I was dx with GCA in March/19, tapered off pred in Dec/20. July21 dx with vitiligo, yer another autoimmune. Dec/22 dx with shingles, which affected my left eye. Now I am pretty much over the shingles, but having terrible headaches esp overnight. Blood pressure which has always been low (100/60
pugrescue
in
PMRGCAuk
2 years ago
Off meds because of Shingles, but maybe answers to other concerns…..
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
So about 18 months ago I started feeling nauseous occasionally. Moved taking my mtx tablets to the evening, and upped folic acid from 1 a week to 3, then 5. Not making much difference so moved to mtx injections. Still feeling nauseous but RA team reluctant to pin on Mtx as nauseous is generally after
Hollyhock123
in
NRAS
2 years ago
Health update
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hello everyone, not sure if this helps... I went through genetic testing and they found my KMT2B gene activated. This is odd due to my age and how aggresive it is. My Dr has never seen this happen before. In actuality, there is nothing in written human history (as far as I know) that shows late stage
Hidden
in
Functional Neurological Disorder - FND Hope
2 years ago
PREPARING FOR DBS SURGERY. VERY WORRIED ABOUT THE INEVITABLE SIDE EFFECTS.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
Hi every Parkies on this forum. If you are a PIGD non tremor dominant, young onset PD person, and have done Deep brain stimulation, please respond to my questions, How was your experience with the Neuropsychologist? What was the computer test like? Please share the negatives, if any post surgery.
OREOLU
in
Cure Parkinson's
2 years ago
I despise to the stigma of mental illness
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
I have been doing a lot of promotion lately to help pulverize the stigma of mental illness. I strongly believe the stigma plays a very direct and prominent role in people dying. Specifcally for MDD, as that is my main diagnosis. I have uncovered a lot of insights about the stigma along my journey.
jnelson66
in
Major Depressive Disorder (MDD) Support
2 years ago
Shingles vaccine
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
Shingles vaccination. I’ve been offered this vaccination but as this is a live vaccine, is it a wise move ?
61Annie
in
LUPUS UK
2 years ago
Treatment Resistant Major Depressive Disorder: I am proof that there is hope.
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
I have been horrifically plagued by MDD for over a decade. In my journey I have tried literally every therapy and intervention possible including multiple medications, every psychotherapy possible, residential treatment programs, partial hospitalization plans, intensive outreach programs, TMS, ECT, ketamine
jnelson66
in
Major Depressive Disorder (MDD) Support
2 years ago
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