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Brain arteriovenous malformation (AVM)
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Light Interview
Dear Ladies. I have been to light Sheffield today to offer my services. They said they don’t want me to do peer support work at the moment, whilst I am getting counselling myself. She has asked me whether I want to become an ambassador and do some admin work for them. I have taken all my qualifications
Dear Ladies. I have been to light Sheffield today to offer my services. They said they don’t want me to do peer support work at the moment, whilst I am getting counselling myself. She has asked me whether I want to become an ambassador and do some admin work for them. I have taken all my qualifications
Poulson
in
Action on Postpartum Psychosis
5 years ago
DBS for non tremor
Hi all. An acquaintance of mine who has the wonderful disease was told by their PD nurse that DBS wasn’t really an option as he had no tremor. I’m a little surprised at this remark and wondered what the community thinks about this. Thanks and best wishes 😊
Hi all. An acquaintance of mine who has the wonderful disease was told by their PD nurse that DBS wasn’t really an option as he had no tremor. I’m a little surprised at this remark and wondered what the community thinks about this. Thanks and best wishes 😊
jeeves19
in
Cure Parkinson's
5 years ago
DBS truly reversible?
Hi all, In all the DBS vs FUS posts the argument is that DBS is reversible. The two people I know who had DBS pulled are in horrible shape - one had a stroke from it. I also know of a number of people where DBS made them worse or did nothing. So for my own knowledge - do you know people where it has
Hi all, In all the DBS vs FUS posts the argument is that DBS is reversible. The two people I know who had DBS pulled are in horrible shape - one had a stroke from it. I also know of a number of people where DBS made them worse or did nothing. So for my own knowledge - do you know people where it has
lenamm
in
Cure Parkinson's
5 years ago
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DBS and meds
DBS and meds. I can’t get my meds correct after my first DBS programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got DBS and how much meds they take.
DBS and meds. I can’t get my meds correct after my first DBS programming. I used to take stalevo 200 every 2 1/2 hours. The doctor got me on rytary now two 245 mg capsules then following my old schedule. Now I’m overdosing. Who’s got DBS and how much meds they take.
dfasci
in
Cure Parkinson's
5 years ago
Ok, I'm bad. I just turned 63 and my home general DR. insists on a colonoscopy. I have never.... I mean you know "exit only" had one.
My question is: Should I be concerned about my DBS considering they are giving me a "party girl" drip? I tolerated Cateract procedure 5 years ago w/o any concerns but the dr. says this will take a little longer and I am a few years further into noticeable progressions than I was at that time. For
My question is: Should I be concerned about my DBS considering they are giving me a "party girl" drip? I tolerated Cateract procedure 5 years ago w/o any concerns but the dr. says this will take a little longer and I am a few years further into noticeable progressions than I was at that time. For
Pelley
in
Cure Parkinson's
5 years ago
Viral meningitis multiple times
I just went through my 4th time getting Viral Meningitis. I’m curious if anyone else has had this multiple times.
I just went through my 4th time getting Viral Meningitis. I’m curious if anyone else has had this multiple times.
Subarugirl
in
Meningitis Now
5 years ago
When can you not get DBS?
When I went for my last neurology visit right before Christmas, it was suggested that I consider DBS... I was taken aback, because I can still get good results with c/l (although since my PD honeymoon ended it has gotten a lot harder), and I thought I would have a lot more time until I needed to consider
When I went for my last neurology visit right before Christmas, it was suggested that I consider DBS... I was taken aback, because I can still get good results with c/l (although since my PD honeymoon ended it has gotten a lot harder), and I thought I would have a lot more time until I needed to consider
Hidden
in
Cure Parkinson's
5 years ago
I need help and answers on meningitis please!!!!
Hi my baby has meningitis and has been hospitalized for a week and two days now...she is eating and drinking but refuses to move her body and always cries out for pain in her feet anytime its touched or moved...how long does it take to recover from meningitis when will she be able to sit up and move
Hi my baby has meningitis and has been hospitalized for a week and two days now...she is eating and drinking but refuses to move her body and always cries out for pain in her feet anytime its touched or moved...how long does it take to recover from meningitis when will she be able to sit up and move
Isoke
in
Meningitis Now
5 years ago
DBS revision
I’m curious if anyone has experience or knowledge of the new generation of DBS units that have “steerable “ current. More specifically, I am interested in the St. Jude Infinity units ability to be used after the Medtronic units have seemed to lose therapeutic efficacy.
I’m curious if anyone has experience or knowledge of the new generation of DBS units that have “steerable “ current. More specifically, I am interested in the St. Jude Infinity units ability to be used after the Medtronic units have seemed to lose therapeutic efficacy.
etterus
in
Cure Parkinson's
5 years ago
Update on tapering
One of the gals asked if I would update my progress or process..it depends on the day what I call it. Like everyone...I was having a rough time tapering. Of course, I was anxious about my one eye and that would concern me when the headache would get so severe on the right side of my head. Naturally
One of the gals asked if I would update my progress or process..it depends on the day what I call it. Like everyone...I was having a rough time tapering. Of course, I was anxious about my one eye and that would concern me when the headache would get so severe on the right side of my head. Naturally
Grammy80
in
PMRGCAuk
5 years ago
Fifth time getting viral meningitis
Hi there. I thought I’ve been going crazy because of all these symptoms I’ve been left with. I just got out of the hospital with viral meningitis and Th. on my brain .. (2nd time with that) fifth time with viral meningitis... Has anyone else had it that many times? And what can I expect to look forward
Hi there. I thought I’ve been going crazy because of all these symptoms I’ve been left with. I just got out of the hospital with viral meningitis and Th. on my brain .. (2nd time with that) fifth time with viral meningitis... Has anyone else had it that many times? And what can I expect to look forward
BeautifulDisastr74
in
Meningitis Now
5 years ago
01/11/2020 neurologist appointment
Recommends again DBS for tremor. Says to qualify you must first show good response with medications. In my case that is carbidopa levodopa. Increased, for effort to control tremor, my CL dose interval to two hours. Doc.- “...we might be able to consolidate those doses into a longer acting form such as
Recommends again DBS for tremor. Says to qualify you must first show good response with medications. In my case that is carbidopa levodopa. Increased, for effort to control tremor, my CL dose interval to two hours. Doc.- “...we might be able to consolidate those doses into a longer acting form such as
Hidden
in
Cure Parkinson's
5 years ago
Kent - Baby Observation
Hi everyone I’m Katherine :) I hope it's okay to post on here! Advice so far on here has been really helpful, so giving the post another go! I am doing an NHS training Masters in child development which I am doing in the evenings after work. ( I live in Kent and study in London) The main part of
Hi everyone I’m Katherine :) I hope it's okay to post on here! Advice so far on here has been really helpful, so giving the post another go! I am doing an NHS training Masters in child development which I am doing in the evenings after work. ( I live in Kent and study in London) The main part of
galliek
in
Pregnancy and Parenting Support
5 years ago
Shingles vaccine
Hi, I have been having mepolizumab injections for over a year now with amazing results. I have just been offered the shingles vaccine. Does anyone know if this is contraindicated.
Hi, I have been having mepolizumab injections for over a year now with amazing results. I have just been offered the shingles vaccine. Does anyone know if this is contraindicated.
Jeecamgunn
in
Lung Conditions Community Forum
5 years ago
RLS and meningitis
I just wondered how many of you sufferers of RLS had viral or bacterial meningitis previously in your lives?
I just wondered how many of you sufferers of RLS had viral or bacterial meningitis previously in your lives?
sjw_1978
in
Meningitis Now
5 years ago
Hello I am a newbie, this is my story so far
So I collapsed at home with no warning, followed by headache and light sensitivity. Got emergency drop in doctors appointment and by this time I couldn’t walk. Ambo blue lighted me to A&E with suspected subarachnoid haemorrhage. CT head showed no bleed on brain. By this time I felt very unwell, I couldn
So I collapsed at home with no warning, followed by headache and light sensitivity. Got emergency drop in doctors appointment and by this time I couldn’t walk. Ambo blue lighted me to A&E with suspected subarachnoid haemorrhage. CT head showed no bleed on brain. By this time I felt very unwell, I couldn
Hidden
in
Meningitis Now
5 years ago
Fox's PDIQ + YOU Conference in Phoenix . . .
Where were the DBS Manufacturers and what about Duopa (Levodopa pump) at this conference.? Is there therapy after oral medications flame out ? I heard from one person Fox didn't invite them.. Anyone know more? Otherwise, every vendor in the universe seemed to be there. It;s unlikely these companies
Where were the DBS Manufacturers and what about Duopa (Levodopa pump) at this conference.? Is there therapy after oral medications flame out ? I heard from one person Fox didn't invite them.. Anyone know more? Otherwise, every vendor in the universe seemed to be there. It;s unlikely these companies
FMundo
in
Cure Parkinson's
5 years ago
Shingles
I have spent all day at the hospital with severe pain on breast rib and back was told I have shingles absolutely agony nothing is stopping this pain it’s constantly there has anyone else had this ?? I’m losing the Will to live pain so so bad ???
I have spent all day at the hospital with severe pain on breast rib and back was told I have shingles absolutely agony nothing is stopping this pain it’s constantly there has anyone else had this ?? I’m losing the Will to live pain so so bad ???
Lynnsashalily
in
Pain Concern
5 years ago
What's New in MS Research - January 2020
Catch up on some of the latest findings from studies conducted about MS-related issues in MSAA's January edition of What's New in MS Research: https://mymsaa.org/news/whats-new-in-ms-research-january-2020/ Topics covered include: 1. Deep brain stimulation for tremors 2. Language impairment and speech
Catch up on some of the latest findings from studies conducted about MS-related issues in MSAA's January edition of What's New in MS Research: https://mymsaa.org/news/whats-new-in-ms-research-january-2020/ Topics covered include: 1. Deep brain stimulation for tremors 2. Language impairment and speech
MSAA_Staff
in
My MSAA Community
5 years ago
Impressive Benefits Of Neem
There are certain anti-inflammatory properties in neem leaves. This is especially exciting for arthritis research. The paste or oil, when applied to aching joints and muscles due to arthritis can significantly reduce pain and discomfort, and even increase flexibility if consistently used. https://www.organicfacts.net
There are certain anti-inflammatory properties in neem leaves. This is especially exciting for arthritis research. The paste or oil, when applied to aching joints and muscles due to arthritis can significantly reduce pain and discomfort, and even increase flexibility if consistently used. https://www.organicfacts.net
Kia17
in
Cure Parkinson's
5 years ago
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