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Brain arteriovenous malformation (AVM)
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Pineal cyst and TBI
Hi, further to my first post a few days ago, I’ve received the below report from my mri with contrast. has anyone else suffered a mild TBI and also had a large cyst with the below findings? I’m worried if I risk surgery I will only see minor improvement due to TBI or could be hopeful removing the
Hi, further to my first post a few days ago, I’ve received the below report from my mri with contrast. has anyone else suffered a mild TBI and also had a large cyst with the below findings? I’m worried if I risk surgery I will only see minor improvement due to TBI or could be hopeful removing the
Juventini
in
Headway
4 days ago
Pineal Cyst and TBI
Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any
Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any
Juventini
in
Headway
15 days ago
Pineal Cyst and TBI
Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any
Hi, this is my first post but I have been reading others as sometimes they help confirm how I feel. In August 2023 I was hit by a drunk driver and still suffer with mild TBI issues with cognition, memory, fatigue, vistibular issues and pressure around my ears. Everything is worse when tired or any
Juventini
in
Headway
15 days ago
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Confusion
Sharing, how in life something can simply change your life. And do the best we can to carry on, the way we are now in life! That was a the day , a decision for operation date. Did have a further MRI in August ,before operation 3 September 2018, Eye sight was fine until 2 weeks before op ,my left eye
Sharing, how in life something can simply change your life. And do the best we can to carry on, the way we are now in life! That was a the day , a decision for operation date. Did have a further MRI in August ,before operation 3 September 2018, Eye sight was fine until 2 weeks before op ,my left eye
Rayzonanewme
in
Headway
2 months ago
Ringing in Ear
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Hi, I read this forum every day, and always have a takeaway from it about something I didn't know, so I'm hoping the group can help me with this new, delightful (ha!) ringing in my left ear that started about six weeks ago. I saw an ENT on Tuesday, and was diagnosed with Tinnitus. I had an audiogram
Dottie44
in
Thyroid UK
2 months ago
whenever i raise euthyrox100mg i get hbp headache nausea
is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down
is two weeks now i raised euthyrox from 75 yo 100mg and i dont think i can tolerate twice i tried and got hbp that even pills dont take it down
morcan54
in
Thyroid UK
5 months ago
Separation/Divorce
Hi all, My husband and I are separating due to me having a brain cancer surgery injury. Can you recommend solicitors that are/have been really helpful with this sort of thing? Thanks in advance
Hi all, My husband and I are separating due to me having a brain cancer surgery injury. Can you recommend solicitors that are/have been really helpful with this sort of thing? Thanks in advance
NewGoldie
in
Headway
6 months ago
Crack in cranioplasty
I had a TBI when I was 6 years old and had plastic fitted into the back of my head to close it (cranioplasty). Some time ago however, I started getting some sudden pain (once I felt an electric current running through the back of my head; at age 40). After an MRI and CT Scan, it was found that I somehow
I had a TBI when I was 6 years old and had plastic fitted into the back of my head to close it (cranioplasty). Some time ago however, I started getting some sudden pain (once I felt an electric current running through the back of my head; at age 40). After an MRI and CT Scan, it was found that I somehow
ghost_writer
in
Headway
8 months ago
General anesthetic and Parkinsons
In preparation for my DBS procedure next month im going to hospital to have an MRI under general anesthetic this coming Sunday. I've read that the most common drugs used to anesthiatise are not good for people with Parkinsons given they Disrupt dopamine, and can really affect their post procedure recovery
In preparation for my DBS procedure next month im going to hospital to have an MRI under general anesthetic this coming Sunday. I've read that the most common drugs used to anesthiatise are not good for people with Parkinsons given they Disrupt dopamine, and can really affect their post procedure recovery
gingerj
in
Cure Parkinson's
11 days ago
Carnivore Diet for Parkinson’s
I have been on a carnivore diet for 6 days and already noticed that I don’t have to take medication as often. I did DBS in 01/23 but take C/L extended release every 6 hours. I saw multiple YouTube videos and read 2 books about the diet. A few videos featured Mimi Morgan who completely reversed PD or
I have been on a carnivore diet for 6 days and already noticed that I don’t have to take medication as often. I did DBS in 01/23 but take C/L extended release every 6 hours. I saw multiple YouTube videos and read 2 books about the diet. A few videos featured Mimi Morgan who completely reversed PD or
Payparky
in
Cure Parkinson's
12 days ago
Shingles or lupus rash ?
Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?
Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary immunocompromised with my lupus.Suffering quite a bit of stress at the moment with a poorly dog so not sure if it's just a flare of lupus or what it is?
Ava0
in
LUPUS UK
12 days ago
Abs Lymphs going up after shingles
We saw the doctor for the first time after having shingles. Before shingles his Abs. Lymphs were 2.3 1000/mm3. Now 5 months later it is 3.5 1000/mm3. The Dr. was concerned. We were surprised that he started talking ( not now) about starting treatment. He stated that studies have shown it is better
We saw the doctor for the first time after having shingles. Before shingles his Abs. Lymphs were 2.3 1000/mm3. Now 5 months later it is 3.5 1000/mm3. The Dr. was concerned. We were surprised that he started talking ( not now) about starting treatment. He stated that studies have shown it is better
Pinhead1
in
CLL Support
14 days ago
Abbott starts TRANSCEND study to evaluate the use of its DBS system to manage severe depression
Abbott announced it has initiated a pivotal clinical trial, called the TRANSCEND study, to evaluate the use of the company's deep brain stimulation (DBS) system to manage treatment-resistant depression (TRD), a form of major depressive disorder. The US Food and Drug Administration (FDA) granted Abbott
Abbott announced it has initiated a pivotal clinical trial, called the TRANSCEND study, to evaluate the use of the company's deep brain stimulation (DBS) system to manage treatment-resistant depression (TRD), a form of major depressive disorder. The US Food and Drug Administration (FDA) granted Abbott
Farooqji
in
Cure Parkinson's
22 days ago
My DBS (Deep Brain Stimulation) opinions and experiences
Last falI had been incredibly impressed by the moderator of the DBS Facebook page in his responses, and I thought If I can be as well-spoken as he is 25 years after I’ve had DBS like he is, so I decided to proceed with the surgery. The surgery did not go well. The surgeon nicked an artery in my brain
Last falI had been incredibly impressed by the moderator of the DBS Facebook page in his responses, and I thought If I can be as well-spoken as he is 25 years after I’ve had DBS like he is, so I decided to proceed with the surgery. The surgery did not go well. The surgeon nicked an artery in my brain
Megafone
in
Cure Parkinson's
28 days ago
Adaptive DBS - non technical article
There was a post to the technical paper in Nature Medicine a few weeks ago about an innovation to traditional DBS. Adaptive DBS involves putting in brain sensors to automatically increase or reduce the amount of stimulation. Medscape had an optimistic review of the technology here: https://www.medscape.com
There was a post to the technical paper in Nature Medicine a few weeks ago about an innovation to traditional DBS. Adaptive DBS involves putting in brain sensors to automatically increase or reduce the amount of stimulation. Medscape had an optimistic review of the technology here: https://www.medscape.com
Ctime
in
Cure Parkinson's
1 month ago
brain pacemaker for pwp
my name is Jude and I was diagnosed with PD about 16 years ago. 18 months ago I had DBS and the result was amazing. I had diskynesia badly enough for friends to say that I made them feel Seasick! Well, I woke from the anesthetic cured of it. It felt great to be still. The downside was a loss of
my name is Jude and I was diagnosed with PD about 16 years ago. 18 months ago I had DBS and the result was amazing. I had diskynesia badly enough for friends to say that I made them feel Seasick! Well, I woke from the anesthetic cured of it. It felt great to be still. The downside was a loss of
Stopfalling
in
Cure Parkinson's
1 month ago
DBS and it's benefits
My neurologist has recommended for DBS . As per the data ,I am informed that the success rate is 90%.Here also the neurologists are divided in two. Few says that medicine will continue even after DBS while other say no. I would request those who have been operated for DBS to share their actual experience
My neurologist has recommended for DBS . As per the data ,I am informed that the success rate is 90%.Here also the neurologists are divided in two. Few says that medicine will continue even after DBS while other say no. I would request those who have been operated for DBS to share their actual experience
MerckK
in
Cure Parkinson's
1 month ago
adaptive deep brain stimulation
Chronic adaptive deep brain stimulation versus conventional stimulation in Parkinson’s disease: a blinded randomized feasibility trial. https://www.nature.com/articles/s41591-024-03196-z.epdf
Chronic adaptive deep brain stimulation versus conventional stimulation in Parkinson’s disease: a blinded randomized feasibility trial. https://www.nature.com/articles/s41591-024-03196-z.epdf
claudejgreengrass
in
Cure Parkinson's
1 month ago
DBS cancelled due to improvement of UDPRS measurement
Hello all, I am new here and wanted to share my story. In Feb. 2018, my left foot started to drag and for many years before my left arm would not swing. I probably had this symptom for years and considered it my normal way of walking. It has been 7 years with increasing dosages of levodopa. Throughout
Hello all, I am new here and wanted to share my story. In Feb. 2018, my left foot started to drag and for many years before my left arm would not swing. I probably had this symptom for years and considered it my normal way of walking. It has been 7 years with increasing dosages of levodopa. Throughout
DragonMind
in
Cure Parkinson's
1 month ago
dopamine club!
Hi! I’m at the end of the road for CL. Can’t take more and can’t boost it more. And only get 10 minutes of on time. Wait listed for DBS, appointment is months away Exercise 90 minutes per day with walking and stretches. Strict plant based oil free diet. 90 minutes of prayer each day So anyway I’m not
Hi! I’m at the end of the road for CL. Can’t take more and can’t boost it more. And only get 10 minutes of on time. Wait listed for DBS, appointment is months away Exercise 90 minutes per day with walking and stretches. Strict plant based oil free diet. 90 minutes of prayer each day So anyway I’m not
Gallowglass
in
Cure Parkinson's
1 month ago
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