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Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
Host Disease (GVHD) Post Allogeneic Stem Cell or
Bone
Marrow Transplantation: New Treatment Approaches 6/15 ∙ Emerging Treatments for Metastatic Melanoma, Part II of Living with Advanced Skin Cancer 6/19 ∙ Current Perspectives on Cancer Survivorship 6/20 ∙ Progress in the Treatment of Oral and
Host Disease (GVHD) Post Allogeneic Stem Cell or
Bone
Marrow Transplantation: New Treatment Approaches 6/15 ∙ Emerging Treatments for Metastatic Melanoma, Part II of Living with Advanced Skin Cancer 6/19 ∙ Current Perspectives on Cancer Survivorship 6/20 ∙ Progress in the Treatment of Oral and
lankisterguy
Volunteer
in
CLL Support
6 years ago
Male hypo's support and advice
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Jeffreyt
in
Thyroid UK
6 years ago
Looking a second coronary bypass surgery
Nuclear stress test results revealed that the arterial grafts I had implanted in my first coronary artery bypass surgery are failing and the odds are that I will need to undergo open heart surgery again. Having had my cognitive capabilities sliced to ribbons by ICU delirium both before and after my first
Nuclear stress test results revealed that the arterial grafts I had implanted in my first coronary artery bypass surgery are failing and the odds are that I will need to undergo open heart surgery again. Having had my cognitive capabilities sliced to ribbons by ICU delirium both before and after my first
kimzeys
in
ICUsteps
6 years ago
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Quick Bio - new poster
Had the first of a series of HA at 5-30am 25/12/1997 - age 44 Progressed to 4 x CABG in Feb 1999 Everything OK up to late 2015 when I started to get Angina again Stented in March2016, April 2016, & May 2017 - unfortunately no better now Diagnosed as CHF May 2017 Awaiting MPS for possible Rotablation
Had the first of a series of HA at 5-30am 25/12/1997 - age 44 Progressed to 4 x CABG in Feb 1999 Everything OK up to late 2015 when I started to get Angina again Stented in March2016, April 2016, & May 2017 - unfortunately no better now Diagnosed as CHF May 2017 Awaiting MPS for possible Rotablation
shopman
in
British Heart Foundation
6 years ago
Thoughts on CLL treatment and watch and wait
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
AdrianUK
in
CLL Support
6 years ago
Waiting times for a CABG
Hi Would anyone know whether the NHS has set targets for heart bypass surgery? Researching online there appears to be guidelines for non-urgent elective surgery giving examples of cataract and hip replacement surgeries which should be conducted within an 18 week period. I also read on an NHS website
Hi Would anyone know whether the NHS has set targets for heart bypass surgery? Researching online there appears to be guidelines for non-urgent elective surgery giving examples of cataract and hip replacement surgeries which should be conducted within an 18 week period. I also read on an NHS website
Evans123
in
British Heart Foundation
6 years ago
Here it is. Times piece today on CLL and access to drugs. Skip dumb comments....
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
romarin
in
CLL Support
6 years ago
Stem cell transplant outcomes
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
jane13
in
MPN Voice
6 years ago
High GGT post treatment for Acute Myeloid Leukaemia
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hidden
in
British Liver Trust
6 years ago
My post op CABG 13 days experience
Just thought I’d let everyone know how thing are going. 13 days ago today I had my CABG x 3 & seemed fine, however my oxygen levels crashed & the only way to rectify this was a mask like a “Darth Vader” one. Delirious by then & totally unaware of anything my daughter said if I’d had boxing gloves I
Just thought I’d let everyone know how thing are going. 13 days ago today I had my CABG x 3 & seemed fine, however my oxygen levels crashed & the only way to rectify this was a mask like a “Darth Vader” one. Delirious by then & totally unaware of anything my daughter said if I’d had boxing gloves I
thetidders
in
British Heart Foundation
6 years ago
reducing
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
arvine
in
PMRGCAuk
6 years ago
Another malignant melanoma
Hi all feeling a bit low as just had another mole biopsy result and it's another malignant melanoma my 3rd one now seeing a plastic surgeon on Wednesday for further surgery and possible skin graft has any one here had any similar experience
Hi all feeling a bit low as just had another mole biopsy result and it's another malignant melanoma my 3rd one now seeing a plastic surgeon on Wednesday for further surgery and possible skin graft has any one here had any similar experience
Tatty10
in
MY SKIN
6 years ago
CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
Heart Disease Symptoms
Hi Folks. I'm a long term CAD suffere and havee had multiple stents and a Quad CABG. Everything has been ok since the CABG until recently i have started getting a 'numbness/pins and needles feeling in my shoulder blade and some mild chest pain. Has anyone ever had this feeling in their back/shoulder
Hi Folks. I'm a long term CAD suffere and havee had multiple stents and a Quad CABG. Everything has been ok since the CABG until recently i have started getting a 'numbness/pins and needles feeling in my shoulder blade and some mild chest pain. Has anyone ever had this feeling in their back/shoulder
smithy
in
British Heart Foundation
6 years ago
My doctors will drive me to... death due to conflicting medications.
Health insurers hate me. I am on about 15-10 medications. At age 53, I had a small heart attack. I was born with a defective heart valve that was replaced 7 years ago (Afib was the sign it needed replacement). I thought the afib was gone. Then, 2 months ago, that valve was again replaced along with
Health insurers hate me. I am on about 15-10 medications. At age 53, I had a small heart attack. I was born with a defective heart valve that was replaced 7 years ago (Afib was the sign it needed replacement). I thought the afib was gone. Then, 2 months ago, that valve was again replaced along with
Fish109
in
AF Association
6 years ago
12 months after Quadruple By-pass
Today is it 12 months since my 4 X CABG and I thought it would be a good time to reflect on my experience. I suppose the first lesson I learnt was not to put off going to the doctors in the first place! I realised some time ago that I was becoming breathless when even doing the most simple tasks. Like
Today is it 12 months since my 4 X CABG and I thought it would be a good time to reflect on my experience. I suppose the first lesson I learnt was not to put off going to the doctors in the first place! I realised some time ago that I was becoming breathless when even doing the most simple tasks. Like
Zimmies
in
British Heart Foundation
6 years ago
Transplant Viability
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
I started showing visible signs of AMN when I was 21 and am currently experiencing a constant, stiff aching pain in my legs from mid thigh down. I was diagnosed last year and the amount of study into my condition by the various health care teams has been admirable. Before the disease started having a
Laird_Mac
in
AMN EASIER
6 years ago
Driving after surgery
My husband is now 3 weeks in after CABG x 3 he hasn't had his appointment for clinic review yet. My question is can his gp give him the go ahead to start driving again if he is waiting beyond the 4 to 6 recommended time? THANKS!
My husband is now 3 weeks in after CABG x 3 he hasn't had his appointment for clinic review yet. My question is can his gp give him the go ahead to start driving again if he is waiting beyond the 4 to 6 recommended time? THANKS!
Traceytracey
in
British Heart Foundation
6 years ago
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