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Tapering with new issues ongoing
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
Tapering while new issues arvine profile image arvine• 8 hours ago•1 Reply well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma
arvine
in
PMRGCAuk
1 year ago
Tapering while new issues
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see
arvine
in
Pain Concern
1 year ago
FDA Approves Cell Therapy for Patients with Blood Cancers to Reduce Risk of Infection Following Stem Cell Transplantation- Released 4/17/23
Similar to all approved umbilical cord products, the label carries a Boxed Warning for infusion reactions,
graft
versus host disease (GvHD – a condition that occurs when donor
bone
marrow or stem cells attack the
graft
recipient), engraftment syndrome (characterized by a noninfectious fever and rash)
Similar to all approved umbilical cord products, the label carries a Boxed Warning for infusion reactions,
graft
versus host disease (GvHD – a condition that occurs when donor
bone
marrow or stem cells attack the
graft
recipient), engraftment syndrome (characterized by a noninfectious fever and rash)
PhysAssist
in
MPN Voice
1 year ago
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First day at Gym
I've been trying to get to the gym and been thrawted for some time.I have an over protective partner.She didn't like me going to the gym pre op and now even less so.However an overnight trip to Manchester with her chum means that while she waits for the Coronation street tour to start i am able to go
I've been trying to get to the gym and been thrawted for some time.I have an over protective partner.She didn't like me going to the gym pre op and now even less so.However an overnight trip to Manchester with her chum means that while she waits for the Coronation street tour to start i am able to go
bagsypartime
in
British Heart Foundation
1 year ago
A success story ? Could be you?
Hi - I respect all the problems / experiences forum members face . However after double cabg on 9th January 2023 ( urgent , following angiogram) my recovery has been-I believe - amazing..I have not suffered the side effects of medication felt by others ( bisoprolol especially ) did exactly what doctor
Hi - I respect all the problems / experiences forum members face . However after double cabg on 9th January 2023 ( urgent , following angiogram) my recovery has been-I believe - amazing..I have not suffered the side effects of medication felt by others ( bisoprolol especially ) did exactly what doctor
BlindRef
in
British Heart Foundation
1 year ago
Depression ?
5 years now since bypass surgery, and my depression (if that's what it is) is getting worse. Nothing ever phased me before CABG, but now... I find myself crying at something sad on tv. I find myself crying at something happy on tv ! I find myself crying in a restaurant or pub, for no apparent reason
5 years now since bypass surgery, and my depression (if that's what it is) is getting worse. Nothing ever phased me before CABG, but now... I find myself crying at something sad on tv. I find myself crying at something happy on tv ! I find myself crying in a restaurant or pub, for no apparent reason
Normy24
in
British Heart Foundation
1 year ago
post op consultation
Well yesterday was 13 weeks post op double cabg, and I was waiting for a follow up phone call from my surgeon at 10.40 am. It cam to 1pm and I had heard nothing so phoned his secretary who was so lovely and extremely helpful, although she did not know why he hadn't phoned as he had not left a message
Well yesterday was 13 weeks post op double cabg, and I was waiting for a follow up phone call from my surgeon at 10.40 am. It cam to 1pm and I had heard nothing so phoned his secretary who was so lovely and extremely helpful, although she did not know why he hadn't phoned as he had not left a message
momander
in
British Heart Foundation
1 year ago
Red face / flushing. Possible rosacea
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Hi I am 200 plus days post stem cell transplant. Since then I get flushed very easily. I have suffered with this in the past and still have it now but maybe worse I take a few medications still which may or may not help and wondered on any good way of controlling it my consultant has recommended me
Kraskie1915
in
CLL Support
1 year ago
Still breathless 6 1/2 wks post cabgx2
My recovery has been perfect- apart from being breathless or exhausted upon relatively small exertion.Today i carried a tv upstairs and was panting like a dog, later on my walk i was breathing heavily on every incline. I have been posting when it would be sensible to start running again, and following
My recovery has been perfect- apart from being breathless or exhausted upon relatively small exertion.Today i carried a tv upstairs and was panting like a dog, later on my walk i was breathing heavily on every incline. I have been posting when it would be sensible to start running again, and following
bagsypartime
in
British Heart Foundation
1 year ago
shoulder and back pain following CABG
I had a triple CABG 8 weeks ago now. I am finding it difficult to get back to moral activity because my shoulders ache and I have a strong ache between my shoulder blades at the top of my back. I kinda expected these aches in the early days because of positioning and trauma during surgery, But was not
I had a triple CABG 8 weeks ago now. I am finding it difficult to get back to moral activity because my shoulders ache and I have a strong ache between my shoulder blades at the top of my back. I kinda expected these aches in the early days because of positioning and trauma during surgery, But was not
Truffles2
in
British Heart Foundation
1 year ago
Life beyond Myelofibrosis
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
I progressed from ET to Myelofibrosis a couple of years ago. I had an enlarged spleen and ruxolitinib lowered the platelets too much so I was switched to fedratinib. Depending on what predictive tool was used, I had a median predicted life span of between 2 and 14 years - not terribly helpful! I was
Scaredy_cat
in
MPN Voice
1 year ago
introducing myself...
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
hello all, i'm new to this community and happy to be a part. i was diagnosed with AML in late august of last year and just underwent a Stem Cell Transplant at sloan kettering hospital in new york city in late march. i'm wondering if anyone out there has experienced the same? looking forward to hearing
jmcasbar
in
Leukaemia Support
1 year ago
'Astonishing' Results: Skip Salvage Chemo, Go Straight to HSCT from ASH 2022 [For Refractory AML/Relapsed AML]
NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
NEW ORLEANS — Investigators confessed to being "astonished" by results of a randomized trial showing that patients with acute myeloid leukemia who have a poor response following induction therapy do just as well going on to immediate allogeneic transplant as they would if they had received an intensive
PhysAssist
in
MPN Voice
1 year ago
Hi, im new here
Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment for blood cancer by having a stem cell transplant (14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin
Hi, im really wondering if i have developed fibromyalgia. I have recently recovered from treatment for blood cancer by having a stem cell transplant (14 months ago) im struggling to return to work full time, im suffering everyday with pain ,fatigue, weakness, dizziness, brain fog, sometimes my skin
Marchhare7
in
Fibromyalgia Action UK
1 year ago
Views on running after CABG?
I suppose this is a addressed to people who used to run before their operation.I used to run and I wasn't very good.Pre op on a treadmill I could run at 5mph, or twelve minute mile pace, if I veered over this I might have chest discomfort and had to take a rest.I was warned not to exert myself but felt
I suppose this is a addressed to people who used to run before their operation.I used to run and I wasn't very good.Pre op on a treadmill I could run at 5mph, or twelve minute mile pace, if I veered over this I might have chest discomfort and had to take a rest.I was warned not to exert myself but felt
bagsypartime
in
British Heart Foundation
1 year ago
billionaires
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
i dot know how many of you heard the " Doc vs Parkinson's" story A doctor who paid almost 20 million dollars to get a stem cell transplant of brain about 3 years ago. He had PD for 15 years and now his symptoms are reversing. Are people with money, power and PD are getting efficient treatment and
Rupa88
in
Cure Parkinson's
1 year ago
Post Cabg how soon do you think i can i lie on my side?
i asked the physiological this when i was still in and she said when i liked.To start with even slight movement was unthinkable,I lay and slept absolutely still.I would dream i was stretching and wake up with my arms braced. I've been lucky because i am fairly content on a pillow slope and laying stock
i asked the physiological this when i was still in and she said when i liked.To start with even slight movement was unthinkable,I lay and slept absolutely still.I would dream i was stretching and wake up with my arms braced. I've been lucky because i am fairly content on a pillow slope and laying stock
bagsypartime
in
British Heart Foundation
1 year ago
Bone Marrow Transplant
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
BONE MARROW TRANSPLANT:Why Mazi Henry Uroegbulam Eric Otulle Eke Sr Will Never Ever Forgive World-famous Hospital For Failing His Daughter - was the child used as a guinea-pig? BONE MARROW TRANSPLANT: Sub-Continent with world's highest prevalence of SCD/SCT goes into BMT - a whole new era for medical
sicklecellnews
in
Sickle Cell Society
1 year ago
Important to know, but sucks to have: TP53 Mutations Confer High Risk in Patients With Myelofibrosis Undergoing HSCT
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
Patients with myelofibrosis who harbored multi-hit TP53 mutations were at increased risk for relapse, shorter survival, and leukemic transformation after hematopoietic stem cell transplant (HSCT), according to results of a study published in the Blood. “TP53 mutations have been associated with poor
PhysAssist
in
MPN Voice
1 year ago
Why do I keep experiencing involuntary sharp intake of breath.
Hi I am m 3 weeks post CABG and increasingly I am experiencing sudden involuntary intake of breath. I can only describe it like when a child is sobbing and then suddenly draws in breath. My Sats are all good, breathing is otherwise normal. Has anyone else had this? 🥴
Hi I am m 3 weeks post CABG and increasingly I am experiencing sudden involuntary intake of breath. I can only describe it like when a child is sobbing and then suddenly draws in breath. My Sats are all good, breathing is otherwise normal. Has anyone else had this? 🥴
APC65
in
British Heart Foundation
1 year ago
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