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How important is it to have full time care taker when recovering from bone marrow transplant
I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,
I have to have bone marrow transplant. Problem is i live in New England. My family is out west(Seattle) , i only have my ex wife and 16 y.o son near me so i don't have anyone to help take care of me. Suggestions,
hossbball
in
CLL Support
4 years ago
Surgery day today CABG x3 or 4
My finance is now in hospital and will be going down for surgery at approx 8am (UK) Looks like it will now be a triple possibly quad bypass. Any spare positive thoughts please send them our way!
My finance is now in hospital and will be going down for surgery at approx 8am (UK) Looks like it will now be a triple possibly quad bypass. Any spare positive thoughts please send them our way!
Chickenlou
in
British Heart Foundation
4 years ago
Richter Transformation Testimonials. Survivors
Hi. As some of you will know, last week I formed a Facebook group to try to locate all possible Ricther and tell us your case. With your permission, I want to share keeping your story anonymous. For anyone who wants to locate them, just contact the Facebook group. In this group, everyone identifies with
Hi. As some of you will know, last week I formed a Facebook group to try to locate all possible Ricther and tell us your case. With your permission, I want to share keeping your story anonymous. For anyone who wants to locate them, just contact the Facebook group. In this group, everyone identifies with
Priss69
in
CLL Support
4 years ago
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Coronary artery bypass graft.
I had a quad heart bypass on Christmas Eve 2019 at Basildon Hospital, Essex...writing this exactly 1 month after, feeling good after terrible back/shoulder pain for the first 3 weeks...now sleeping better. Saw the cardiac nurse today and she stressed that it is quite a journey back to total fitness so
I had a quad heart bypass on Christmas Eve 2019 at Basildon Hospital, Essex...writing this exactly 1 month after, feeling good after terrible back/shoulder pain for the first 3 weeks...now sleeping better. Saw the cardiac nurse today and she stressed that it is quite a journey back to total fitness so
tjh990
in
British Heart Foundation
4 years ago
Costochondritis: have many of you been diagnosed with this a year or two after CABG?
Just been given diagnosis of this - Costochondritis - after an ECG and review by good Doctor. I had some increase in general chest pain for 2-3 weeks, and various other aches and pains. My concern was the pain was a sign of circulation issues but have been reassured this is non Cardiac but just a consequence
Just been given diagnosis of this - Costochondritis - after an ECG and review by good Doctor. I had some increase in general chest pain for 2-3 weeks, and various other aches and pains. My concern was the pain was a sign of circulation issues but have been reassured this is non Cardiac but just a consequence
Stilljogging23
in
British Heart Foundation
4 years ago
After 4th Xofigo injection, bone marrow 'crashed'? - Cancer or side effect from Xofigo?? Next step??
My husband seemed to be responding to the monthly Xofigo injections until the 4th one on Dec 5th, which caused his blood numbers to crash. He ended up in the ER 2 weeks later, on Dec 20th, with hemoglobin around 6, so they gave him 3 red blood cell transfusions which brought him up to 8.4. (we were
My husband seemed to be responding to the monthly Xofigo injections until the 4th one on Dec 5th, which caused his blood numbers to crash. He ended up in the ER 2 weeks later, on Dec 20th, with hemoglobin around 6, so they gave him 3 red blood cell transfusions which brought him up to 8.4. (we were
JLS1
in
Advanced Prostate Cancer
4 years ago
MRI Stress test
Anyone had the mri stress test ,where they inject dye to view your heart under stress .whats the procedure like ,is it anything to get anxious about .Having it done due to ectopics ,worried it will set my ectopics and palpitations off .Can I take diazepam to relax me prior to procedure and will
Anyone had the mri stress test ,where they inject dye to view your heart under stress .whats the procedure like ,is it anything to get anxious about .Having it done due to ectopics ,worried it will set my ectopics and palpitations off .Can I take diazepam to relax me prior to procedure and will
whiststev
in
British Heart Foundation
5 years ago
Follow-up...and perhaps hope for us all
Last month I posted about my son's sudden leukemia diagnosis (see below). Although he was not well enough to make it to MD Anderson as planned in December, he did get there this week. It was anticipated that their recommendation would be either stay the course with the intense chemo that he was in the
Last month I posted about my son's sudden leukemia diagnosis (see below). Although he was not well enough to make it to MD Anderson as planned in December, he did get there this week. It was anticipated that their recommendation would be either stay the course with the intense chemo that he was in the
shueswim
in
Advanced Prostate Cancer
4 years ago
Melanoma
I haven’t been around for a while as I’ve had some pretty devastating news. I have been diagnosed with a stage 3 melanoma. I haven’t had it too long but I did previously have it looked at by both my GP and the dermatology dept at the hospital who both said it was just a cyst. I have to have a further
I haven’t been around for a while as I’ve had some pretty devastating news. I have been diagnosed with a stage 3 melanoma. I haven’t had it too long but I did previously have it looked at by both my GP and the dermatology dept at the hospital who both said it was just a cyst. I have to have a further
Downtime
in
NRAS
5 years ago
Chairs/beds when first home from CABG - opinions and advice very welcome
Hi everyone Found out yesterday Partners double possibly treble Bypass is definitely going ahead - apparently now more urgent as his angina is now unstable. They will be using artery from his leg. All pre op stuff done and the hospital will call when they have a date (talking of doing it in private
Hi everyone Found out yesterday Partners double possibly treble Bypass is definitely going ahead - apparently now more urgent as his angina is now unstable. They will be using artery from his leg. All pre op stuff done and the hospital will call when they have a date (talking of doing it in private
Chickenlou
in
British Heart Foundation
5 years ago
Update and Best Wishes
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
Have just got out of hospital after three days of methylprednisolone infusions. The idea was to bring me into hospital and give me a boost so I could go on a holiday. Just as well I went in because it coincided with a fairly bad attack, so hopefully I’ll be OK now for a month or so. Mid February
lesleyg
in
Behçet's UK
5 years ago
Bone marrow transplant number 2
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
BONE MARROW TRANS PLANT PART TWO! So its a go At MSGH to receiver a bone marrow transplant early this January! Thank god my sister is a match and we are a go a. A scary go at that. Meaning all that is involved with procedure! I am having this pro procedure done 2000 miles away from home base. So this
Seifert_09
in
AMN EASIER
5 years ago
Waiting time for CABG
Hi. For anyone here who has had CABG surgery at the Royal Brompton, roughly how long following your pre-assessment appointments did you have to wait for your surgery? I know these things vary but it would be useful (reassuring) to get a vague idea how much longer I may have to wait for surgery? Thanks
Hi. For anyone here who has had CABG surgery at the Royal Brompton, roughly how long following your pre-assessment appointments did you have to wait for your surgery? I know these things vary but it would be useful (reassuring) to get a vague idea how much longer I may have to wait for surgery? Thanks
Hidden
in
British Heart Foundation
5 years ago
A cautionary tale
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
A cautionary tale for those of us who have used or are using opiates for pain. I have several autoimmune diseases. I’ve survived leukemia with two bone marrow transplants. I have latent effects from the chemo that manifest themselves in all kinds of ways. I have herniated discs at C5-C6 and L5-
Nitrobunny
in
PMRGCAuk
5 years ago
Abbreviations
Hi everyone. What is CABG please.
Hi everyone. What is CABG please.
stillaboveground
in
British Heart Foundation
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
Tearful and feeling low after cabg a week ago
Hi i had my CABG 1 on 21st nov after waiting 12 weeks since having a heart attack. Since having the cabg i keep crying n bursting out iv lost my appetite feel so lonely and its like since i became poorly all of people had backed of and i feel isolated iv gt a gd husband n kids so y do i feel so lonely
Hi i had my CABG 1 on 21st nov after waiting 12 weeks since having a heart attack. Since having the cabg i keep crying n bursting out iv lost my appetite feel so lonely and its like since i became poorly all of people had backed of and i feel isolated iv gt a gd husband n kids so y do i feel so lonely
Azy1
in
British Heart Foundation
5 years ago
Putting things in perspective
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
shueswim
in
Advanced Prostate Cancer
5 years ago
Clinical Utility of Chromosomal Microarray in Richter's Transformation
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Jm954
Administrator
in
CLL Support
5 years ago
Low blood pressure after triple CABG
Hi everyone. I hope you are all doing ok. My husband who is 36 had his operation 3 days ago (no HA). His blood pressure has been low since then (now 90/60 but was lower 2 days after the op). He never had any problems with his BP until now. He is cold most of the time and shivers a lot. He is drinking
Hi everyone. I hope you are all doing ok. My husband who is 36 had his operation 3 days ago (no HA). His blood pressure has been low since then (now 90/60 but was lower 2 days after the op). He never had any problems with his BP until now. He is cold most of the time and shivers a lot. He is drinking
WifeAnet
in
British Heart Foundation
5 years ago
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