left shoulder hurting again: been on pred since... - PMRGCAuk

PMRGCAuk

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left shoulder hurting again

arvine profile image
arvine

been on pred since oct 2016, 40 to start, then tapered well to 10 up til august 2017, rheu my wanted to keep me at that dose of 10 until into new year 2018, as my son who was diagnosed with multiple myeloma was having stem cell transplant in jan 2018, she said with the additional stress, did not want me to reduce any lower for that number of mos, from last aug until this feb, 2018, so started with dead slow method, and went to 9, no problems, then month ago continued with same method, until now im at 8 mg each day, thing is, started noticing bout week ago left shoulder hurting again, she still wants me to continue on 8 until i see her in august this year, i m wondering, as about a yr ago or so, had exray of shoulder done maybe longer ago, showed calcium build up, then few mos later in 2017 had exray again, could not detect calcium build up, so i don,t know if this is like a flare, or am i getting calcium build up in shoulder joint again, i take vit d3, and calcium on my gp,s advice, any ideas please

8 Replies
PMRpro profile image
PMRproAmbassador

Perhaps another x-ray? Returning PMR tends to be both sides and obviously ther eis something going on in that shoulder.

arvine profile image
arvine in reply to PMRpro

yes, im wondering if it,s calcium build up again,will check with dr next week about another exray, thank you

arvine profile image
arvine in reply to PMRpro

yes, i think i will try to see dr , and actually, it was "calcification" dr had told me after seeing results of initial exray, over year ago, but 2nd exray lst yr mos after first, didnt show calcification anymore, that was last year, so i don,t know how that could happen, at any rate i will see about another exray

Sounds like a sensible doctor. How is your son arvine?

arvine profile image
arvine in reply to SheffieldJane

he is doing fairly well, had stem cell transplant in january,and did have some downtime, fatigue, etc, but now energy level seems to be coming up some, blood work is good, they dont use the term "remission" for this cancer,multiplemyeloma,but instead "very good partial response" which is very positive, he is on a maintenance drug now "revlamid" which he is tolerating well, and dr says good things about, and my son is a very positive guy, determined to fight this all the way, there is no cure yet, but he remains positive, and intends to live as close a quality lifestyle as he can, with his two children 14 and 16, two of my grandchildren, so all is good right now, hoping and praying will stay like that for many years,

SheffieldJane profile image
SheffieldJane in reply to arvine

Oh bless you arvine, can I add my prayers too. I have wondered how you are all doing. As PMRPro advises, have that shoulder investigated separately. I think you are probably right in your theory. Our old troubles re-emerge as we reduce Pred.🌸

arvine profile image
arvine in reply to SheffieldJane

thank you, but i used the word calcium build up, it was actually "calcification" dr had said, i think that,s different,

Good to hear from you again! All the very best for your further investigations and your son's continued recovery. Xx

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