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Mistake in my notes
I now have jsut discovered that in the comments part of my report it says cabg x4 which mean quadrouple bypass this is a complete nonsense unless you can do a quadrouple bypass when inserting a pacemaker in my shoulder. the only other surgery is a gall bladder removal
I now have jsut discovered that in the comments part of my report it says cabg x4 which mean quadrouple bypass this is a complete nonsense unless you can do a quadrouple bypass when inserting a pacemaker in my shoulder. the only other surgery is a gall bladder removal
sam295
in
British Heart Foundation
6 years ago
Further Melanoma lump
Hi My original melanoma was removed last August with a wide local excision done in September and all lymph nodes removed from groin in November due to a positive SLB. A new lump appeared next to the original site in March and following a biopsy it has come back positive for residual melanoma. I’
Hi My original melanoma was removed last August with a wide local excision done in September and all lymph nodes removed from groin in November due to a positive SLB. A new lump appeared next to the original site in March and following a biopsy it has come back positive for residual melanoma. I’
hezzamj
in
Melanoma UK
6 years ago
What if venetoclax and/or ibritinib stops working?
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
Hi all, I am a 33 year old dutch male. I have had CLL since i am 24 and have been dealing with CLL for 9 years. I have mutated genes wich put me into a poor prognossis. I have had FCR when i was arround 26/27. I gave me 2 years of no threatment. Then it came back and i was place in a studie group
JanAmsterdam
in
CLL Support
6 years ago
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Symptoms masked
Was active plumber, civil engineer, blacksmith. 14 weeks in local hospital -underwent 2 operations,
bone
graft
, screws, rods and cage- diagnosed with R frontal lobe traumatic brain injury. Transferred to rehab hospital in Sydney (2.5 hrs) away for 4 months - SPC inserted.
Was active plumber, civil engineer, blacksmith. 14 weeks in local hospital -underwent 2 operations,
bone
graft
, screws, rods and cage- diagnosed with R frontal lobe traumatic brain injury. Transferred to rehab hospital in Sydney (2.5 hrs) away for 4 months - SPC inserted.
Caz49
in
PSP Association
6 years ago
So confusing continued
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Long talk with GP today and getting a better understanding of his reasoning I have pmr...... amongst other things. I had a large shwanoma removed from my spine as well as a second attempt at a 3 level fusion, which still isn't fused. I get two different pain collections from these. Layer over leukemia
Angiejnz
in
PMRGCAuk
6 years ago
VISION LOSS
I am only able to in 1 eye the left but have issues with the eye as I have glucoma and a cataract causing sensitivity to light and a constant blurred vision with corrective lenses. However the right eye not so lucky, after about 4 hours of receiving a blood transfusion I suffer a stroke from a blood
I am only able to in 1 eye the left but have issues with the eye as I have glucoma and a cataract causing sensitivity to light and a constant blurred vision with corrective lenses. However the right eye not so lucky, after about 4 hours of receiving a blood transfusion I suffer a stroke from a blood
appjg
in
Thyroid UK
6 years ago
Managing the Complications of Chronic Lymphocytic Leukemia (CLL) Online Program by The CancerCare Education Department (USA)
Host Disease (GVHD) Post Allogeneic Stem Cell or
Bone
Marrow Transplantation: New Treatment Approaches 6/15 ∙ Emerging Treatments for Metastatic Melanoma, Part II of Living with Advanced Skin Cancer 6/19 ∙ Current Perspectives on Cancer Survivorship 6/20 ∙ Progress in the Treatment of Oral and
Host Disease (GVHD) Post Allogeneic Stem Cell or
Bone
Marrow Transplantation: New Treatment Approaches 6/15 ∙ Emerging Treatments for Metastatic Melanoma, Part II of Living with Advanced Skin Cancer 6/19 ∙ Current Perspectives on Cancer Survivorship 6/20 ∙ Progress in the Treatment of Oral and
lankisterguy
Volunteer
in
CLL Support
6 years ago
Male hypo's support and advice
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Hello everyone. I'm 41 male in the United States. I had aplastic anemia and a follow-up bone marrow transplant in 1998. The complications are GVH of the gut, low thyroid, and skin vitiligo. 200 mcg levo. Blood tests in April are the following Vit D 25, D3 19mg/dl Vit D D2 6mg D 25mg Folate 7.8 ng/ml
Jeffreyt
in
Thyroid UK
6 years ago
Looking a second coronary bypass surgery
Nuclear stress test results revealed that the arterial grafts I had implanted in my first coronary artery bypass surgery are failing and the odds are that I will need to undergo open heart surgery again. Having had my cognitive capabilities sliced to ribbons by ICU delirium both before and after my first
Nuclear stress test results revealed that the arterial grafts I had implanted in my first coronary artery bypass surgery are failing and the odds are that I will need to undergo open heart surgery again. Having had my cognitive capabilities sliced to ribbons by ICU delirium both before and after my first
kimzeys
in
ICUsteps
6 years ago
Quick Bio - new poster
Had the first of a series of HA at 5-30am 25/12/1997 - age 44 Progressed to 4 x CABG in Feb 1999 Everything OK up to late 2015 when I started to get Angina again Stented in March2016, April 2016, & May 2017 - unfortunately no better now Diagnosed as CHF May 2017 Awaiting MPS for possible Rotablation
Had the first of a series of HA at 5-30am 25/12/1997 - age 44 Progressed to 4 x CABG in Feb 1999 Everything OK up to late 2015 when I started to get Angina again Stented in March2016, April 2016, & May 2017 - unfortunately no better now Diagnosed as CHF May 2017 Awaiting MPS for possible Rotablation
shopman
in
British Heart Foundation
6 years ago
Thoughts on CLL treatment and watch and wait
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
AdrianUK
in
CLL Support
6 years ago
Waiting times for a CABG
Hi Would anyone know whether the NHS has set targets for heart bypass surgery? Researching online there appears to be guidelines for non-urgent elective surgery giving examples of cataract and hip replacement surgeries which should be conducted within an 18 week period. I also read on an NHS website
Hi Would anyone know whether the NHS has set targets for heart bypass surgery? Researching online there appears to be guidelines for non-urgent elective surgery giving examples of cataract and hip replacement surgeries which should be conducted within an 18 week period. I also read on an NHS website
Evans123
in
British Heart Foundation
6 years ago
Here it is. Times piece today on CLL and access to drugs. Skip dumb comments....
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
The Times chief reporter, Sean O’Neill, is writing about his leukaemia for the first time to highlight the unfair NHS policy on who can be offered life-saving drugs We had spent a glorious August day high in the Picos mountains in northern Spain, whizzing by cable car to the 1,800m peak of Fuenta De
romarin
in
CLL Support
6 years ago
Stem cell transplant outcomes
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
Hi Y'All, I have post-PV Myelofibrosis and am getting to the stage where I can see transfusions looming and therefore my best chance for stem cell transplant (SCT) will soon be gone. I have so far resisted SCT because the outcomes are so unpredictable (especially if u don't have a related donor, which
jane13
in
MPN Voice
6 years ago
My post op CABG 13 days experience
Just thought I’d let everyone know how thing are going. 13 days ago today I had my CABG x 3 & seemed fine, however my oxygen levels crashed & the only way to rectify this was a mask like a “Darth Vader” one. Delirious by then & totally unaware of anything my daughter said if I’d had boxing gloves I
Just thought I’d let everyone know how thing are going. 13 days ago today I had my CABG x 3 & seemed fine, however my oxygen levels crashed & the only way to rectify this was a mask like a “Darth Vader” one. Delirious by then & totally unaware of anything my daughter said if I’d had boxing gloves I
thetidders
in
British Heart Foundation
6 years ago
High GGT post treatment for Acute Myeloid Leukaemia
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hi I have a GGT reading of 900. It has been rising steadily since a successful stem cell transplant in August. I drink very little and am only a bit overweight. My disease is in remission but am still not feeling well. Many of my symptoms - nausea, fatigue and loss of appetite could be caused by liver
Hidden
in
British Liver Trust
6 years ago
reducing
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
haven,t posted for long time, but been reading some of your reduction plans, i started at 40 mg, oct 2016, got down to 10 mg last spring, when i told my rheumy in august last yr about my 49 yr son diagnosed , with cancer, multiple myeloma, and that he would be having a stem cell transplant in januar
arvine
in
PMRGCAuk
6 years ago
Another malignant melanoma
Hi all feeling a bit low as just had another mole biopsy result and it's another malignant melanoma my 3rd one now seeing a plastic surgeon on Wednesday for further surgery and possible skin graft has any one here had any similar experience
Hi all feeling a bit low as just had another mole biopsy result and it's another malignant melanoma my 3rd one now seeing a plastic surgeon on Wednesday for further surgery and possible skin graft has any one here had any similar experience
Tatty10
in
MY SKIN
6 years ago
CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
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