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Bone Marrow Transplant Aftermath
Some people have serious problems from chronic
graft
versus host disease (GvHD) after a
bone
marrow transplant, so I still have room to be thankful that I don't have those.
Some people have serious problems from chronic
graft
versus host disease (GvHD) after a
bone
marrow transplant, so I still have room to be thankful that I don't have those.
Beauxman
in
Advanced Prostate Cancer
5 years ago
ED after Leukaemia (CML)
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
New to this. Anyone part of this group had Leukaemia and bone marrow transplant and suffered ED?
Cryptogamia
in
Erectile Dysfunction Support
5 years ago
Transplant birthday/Mental Health Awareness Week/Lung Transplant Consultation
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
Today marks 15 years since my bone marrow transplant for leukaemia. Crazy to think so many years have gone by and a definite cause for celebration tonight with my Dad and wife - we're going for a curry. Been a lot of up and downs along the way not least the development of my PPFE which as you many of
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 years ago
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Just started c25k this week. Never run in my life ( unless for an ice cream van ) . Just had all clear after stem cell transplant so decided to get fit and loose weight . Oh my god it’s hard , knees really hurt after yesterday , think I just run really badly not naturally like people I see , but determined
Just started c25k this week. Never run in my life ( unless for an ice cream van ) . Just had all clear after stem cell transplant so decided to get fit and loose weight . Oh my god it’s hard , knees really hurt after yesterday , think I just run really badly not naturally like people I see , but determined
Strugglingsurvivor
in
Couch to 5K
5 years ago
Angiogram and next chapter of my cardiac rollercoaster to come
Hello my fellow hearties, I haven't posted on this forum for quite some time, since I was first diagnosed aged 48 with CAD in Oct 2017 and was terried. I drew then, and still draw on now, massive comfort from how kind eveyone here is in sharing their worries, experiences, thoughts and kindnesses
Hello my fellow hearties, I haven't posted on this forum for quite some time, since I was first diagnosed aged 48 with CAD in Oct 2017 and was terried. I drew then, and still draw on now, massive comfort from how kind eveyone here is in sharing their worries, experiences, thoughts and kindnesses
spros
in
British Heart Foundation
5 years ago
Sternotomy discomfort / anxiety
I am now coming up to 2 years post CABG and still getting mild non specific discomfort in my chest. I am regularly walking 10+ miles without any issues. My twinges can come when I am sat down. I can walk up 8 flights of stairs with minimal breathlessness. Doctors assure me that my discomfort is unlikely
I am now coming up to 2 years post CABG and still getting mild non specific discomfort in my chest. I am regularly walking 10+ miles without any issues. My twinges can come when I am sat down. I can walk up 8 flights of stairs with minimal breathlessness. Doctors assure me that my discomfort is unlikely
glezz
in
British Heart Foundation
5 years ago
Ectopic Beats Holter Results from Cardiologist
Hello Again Just received a letter from Cardiologist/ GP with follow up to Holter Monitor, they sent me all the results which didn't mean very much to me, now letter explains more !!. This gentleman was seen in my Clinic recently with a History of palpitations and breathlessness. As you know he has
Hello Again Just received a letter from Cardiologist/ GP with follow up to Holter Monitor, they sent me all the results which didn't mean very much to me, now letter explains more !!. This gentleman was seen in my Clinic recently with a History of palpitations and breathlessness. As you know he has
Prada47
in
British Heart Foundation
5 years ago
Cabg harvest sites
Hi community I'm new here and am after some general advice. I am 16 weeks post op from a quintrupel heart bypass. The vein harvest sites are my forearm and lower leg, I was advised by the surgical team that after 12 weeks these sites should be back to normal, but I am still experiencing lack of power
Hi community I'm new here and am after some general advice. I am 16 weeks post op from a quintrupel heart bypass. The vein harvest sites are my forearm and lower leg, I was advised by the surgical team that after 12 weeks these sites should be back to normal, but I am still experiencing lack of power
KH501
in
British Heart Foundation
5 years ago
Caught a cold after AVR and CABG 4 weeks ago
My husband has caught a cold after his surgery 4 weeks ago, or we think it is a cold - really cold and can’t warm up, exhausted and in bed, runny nose and off his food. Is there anything I need to keep an eye on or just let it run it’s course?
My husband has caught a cold after his surgery 4 weeks ago, or we think it is a cold - really cold and can’t warm up, exhausted and in bed, runny nose and off his food. Is there anything I need to keep an eye on or just let it run it’s course?
Oldmasons
in
British Heart Foundation
5 years ago
Bio-oil skin use
I'm three weeks post 4x CABG and the leg where the vein was taken is still bruised and swollen, but the wounds are healing well. The skin on my leg is so dry and flaking and uncomfortable. I've been given some Bio-oil and told it will improve the dryness and reduce scarring. Has anyone else used this
I'm three weeks post 4x CABG and the leg where the vein was taken is still bruised and swollen, but the wounds are healing well. The skin on my leg is so dry and flaking and uncomfortable. I've been given some Bio-oil and told it will improve the dryness and reduce scarring. Has anyone else used this
Lancs-one
in
British Heart Foundation
5 years ago
Involuntary puff of breathe out....
My husband has had AVR and CABG surgery 4 weeks ago. Several times a day he gives an involuntary big puff of breathe out, does this happen to anyone else and/or do you know why it happens?
My husband has had AVR and CABG surgery 4 weeks ago. Several times a day he gives an involuntary big puff of breathe out, does this happen to anyone else and/or do you know why it happens?
Oldmasons
in
British Heart Foundation
5 years ago
New test for mutations to calculate the profession of MF
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months that will identify all a MF patients mutations and will assist in predicting the progression of the illness. He said it should allow for him to predict how the illness
Hi good folks, Hope you all are going OK. Last time I was speaking to my Hemo he told me that a test will be available in about 12 months that will identify all a MF patients mutations and will assist in predicting the progression of the illness. He said it should allow for him to predict how the illness
Hidden
in
MPN Voice
5 years ago
Hello!
Hi everybody! I'm Dave from SW Michigan. I was diagnosed with HCC about 15 months ago. PVVT meant no surgery or transplant. Has a Y90 procedure done last July in Ann Arbor. It killed 75% of the largest tumor but there was 2 new tumors in my lungs on the last MRI so the Dr. put me on Nexavar. Been taking
Hi everybody! I'm Dave from SW Michigan. I was diagnosed with HCC about 15 months ago. PVVT meant no surgery or transplant. Has a Y90 procedure done last July in Ann Arbor. It killed 75% of the largest tumor but there was 2 new tumors in my lungs on the last MRI so the Dr. put me on Nexavar. Been taking
reddog88
Patient
in
Blue Faery Liver Cancer
5 years ago
Living Alone after Heart Bypass
Hi everyone, I am Rob and looking for a little advice! My Father in Law is 68 and is 3 weeks post CABG x5 and staying with us at the moment, we live approx an hour away from him. He was in a lot of pain but was recently prescribed co-codamol which is managing the pain fairly well. He isn’t doing much
Hi everyone, I am Rob and looking for a little advice! My Father in Law is 68 and is 3 weeks post CABG x5 and staying with us at the moment, we live approx an hour away from him. He was in a lot of pain but was recently prescribed co-codamol which is managing the pain fairly well. He isn’t doing much
WorriedSonInLaw
in
British Heart Foundation
5 years ago
CAR T versus Stem Cell transplant for Richter's
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
Has anyone used CAR T or stem cell transplant for advanced CLL or Richter's?
profrich
in
CLL Support
5 years ago
kidney transplant support
last two years i am doing dialysis and i had a gallbladder removal surgery and Coronary artery bypass graft i am without a job for last two years i spend all my saving for dialysis and two surgery. i have to do three dialysis per week i have a donor for a kidney transplant i need some financial support
last two years i am doing dialysis and i had a gallbladder removal surgery and Coronary artery bypass graft i am without a job for last two years i spend all my saving for dialysis and two surgery. i have to do three dialysis per week i have a donor for a kidney transplant i need some financial support
Shami
in
Kidney Dialysis
5 years ago
Dent in Skin Graft on Nose
Hi, Can anyone suggest any camouflage ideas as I had MOHS/Plastic surgery on my poor nose for skin cancer and now can see a huge dent! I know that I have to wait a year to see if the plastic surgeon can amend/add fillers, but, in the meantime would love to hide it as best I can (it's in the worse place
Hi, Can anyone suggest any camouflage ideas as I had MOHS/Plastic surgery on my poor nose for skin cancer and now can see a huge dent! I know that I have to wait a year to see if the plastic surgeon can amend/add fillers, but, in the meantime would love to hide it as best I can (it's in the worse place
lp04
in
Changing Faces
5 years ago
All Fired Up
Hi I have been watching the BBC Race Across the World from London to Singapore without using Air Transport. This has fired me up to consult Maps of Europe and to see where we can travel without Planes. So looking at Ferry to France ( we live near to Poole ) then drive through France to Holland heading
Hi I have been watching the BBC Race Across the World from London to Singapore without using Air Transport. This has fired me up to consult Maps of Europe and to see where we can travel without Planes. So looking at Ferry to France ( we live near to Poole ) then drive through France to Holland heading
Prada47
in
British Heart Foundation
5 years ago
Ill Health Retirement from the NHS
Hi everyone As many others here I am on a bit of a journey with my dicky ticker. Following the failure of my CABG ( surgery July 18) and recent stents and the extent of the progression of my heart disease over a short 7 months (as discovered from my recent angiogram) I have decided to think about Ill
Hi everyone As many others here I am on a bit of a journey with my dicky ticker. Following the failure of my CABG ( surgery July 18) and recent stents and the extent of the progression of my heart disease over a short 7 months (as discovered from my recent angiogram) I have decided to think about Ill
Billyjean123
in
British Heart Foundation
5 years ago
reduced intensity transplant
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
If your over 50 and need a stem cell transplant it most likely will be low intensity. It also goes by mini-transplant or RIC transplant. It is NOT a standard stem cell transplant. all your cells are not replaced. you keep most of your own blood cells and have donor cells added to fight your cancer cells
Hidden
in
CLL Support
5 years ago
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