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Feel like giving up.
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
For unknown reasons other than we think Rituxumab is not working for you any more my medication was changed to Kevzera (Sarilulmab) in November. The work up checks were done and good to go apart from a Chest X Ray as I hadn't had one for a while. A shadow area was found on my lung with suspected
3LittleBirds2
in
NRAS
3 months ago
Shingles jab
Hi everyone, just had second shingles vaccine and suddenly thought should I stop taking methotrexate this week also on sulfasalazine as is recommended after covid jab, I didn't stop taking meds after the first shingles jab,it just didn't even enter my head, think I'm losing it š wishing you all as much
Hi everyone, just had second shingles vaccine and suddenly thought should I stop taking methotrexate this week also on sulfasalazine as is recommended after covid jab, I didn't stop taking meds after the first shingles jab,it just didn't even enter my head, think I'm losing it š wishing you all as much
Jeremycfc
in
NRAS
5 months ago
Vestibular Neuritis
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Hi everyone, I woke up on New Year's Day with the room spinning around me. Very scary! Diagnosed as vestibular neuritis. My question is, I usually self inject weekly which I have continued to do. I don't know if I'm imagining it but the vertigo symptoms seem to greatly improve for a couple of days
Ipsofacto01
in
Pernicious Anaemia Society
5 months ago
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Sutherlandia mentioned by a medical herbalist
We all like to hear good news stories to brighten our day and we all know that here we are not medically trained and don't make any claims to have found heart or other cures. Also don't take anything without running it past your trusted medic. That said here are some recent newsletter extracts that
We all like to hear good news stories to brighten our day and we all know that here we are not medically trained and don't make any claims to have found heart or other cures. Also don't take anything without running it past your trusted medic. That said here are some recent newsletter extracts that
secondtry
in
AF Association
9 months ago
Severely bitter taste when eating & drinking - ?FostairNEXThaler
Wondering if anyone else has experienced a very bitter taste in the mouth - both whilst eating & drinking (& generally too) when taking FostairNEXThaler? Iāve recently been discharged home after another hospital admission (asthma exacerbation secondary to Covid) so the dysguesia may very well be Covid-related
Wondering if anyone else has experienced a very bitter taste in the mouth - both whilst eating & drinking (& generally too) when taking FostairNEXThaler? Iāve recently been discharged home after another hospital admission (asthma exacerbation secondary to Covid) so the dysguesia may very well be Covid-related
Easybreath
in
Asthma Community Forum
5 months ago
friend has shingles - advice please
hi, Can I have some advice please. my friend who is a beautician is scheduled to do a facial & nails for me tomorrow. Iāve had chicken pox and her Dr has said she shouldnāt pass it in because itās on her bottom and she wonāt be touching it so in that respect itās in a good place. Any thoughts? Thank
hi, Can I have some advice please. my friend who is a beautician is scheduled to do a facial & nails for me tomorrow. Iāve had chicken pox and her Dr has said she shouldnāt pass it in because itās on her bottom and she wonāt be touching it so in that respect itās in a good place. Any thoughts? Thank
MalloryMoss
in
PMRGCAuk
5 months ago
PSA SCREEN VS SYMPTOMATIC
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
My current PSA test is called PROSTATE SPC AG, SCREEN. My previous PSA test from the same lab was called PROSTATE SPC AG, SYMPTOMATIC. Both labs were off the same order from my MO. Whats the difference?
6357axbz
in
Advanced Prostate Cancer
9 months ago
Anti inflammatory pain killer
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight ā¦couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight ā¦couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
davina70
in
Pernicious Anaemia Society
9 months ago
Spring COVID Vaccine 2024 booster eligibility
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Spring COVID Vaccine 2024 booster eligibility The government has announced a Spring 2024 dose of COVID-19 vaccine for: people aged 75 years and over those in care homes those with a weakened immune system (aged 6 months and over) https://www.vasculitis.org.uk/news/covid-boosters
Suzi70
Administrator
in
Vasculitis UK
3 months ago
Covid booster
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you canāt book through that line and hangs up. Both
Hi. I am travelling abroad to Asia at the end of April and have been trying to find out if I can get my Covid booster before I go. Gp not doing them. NHS website says booking service no longer available and no Clinics open. 119 recorded message says you canāt book through that line and hangs up. Both
grumpygirl
in
NRAS
3 months ago
Bursitis of toes & Steroid Injection
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
Scleroderma & Raynaud's UK (SRUK)
3 months ago
Bursitis of the toes & Steroid Injection.
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
I've had pain from between the second & third toe since last May. It hurts to stand & walk especially barefoot or in shoes. I tend to wear trainers when I can as the base is soft & spongy. I had surgery Oct 22 for severe arthritis in the large toe & at first I feared it had spread. Two trips to GP (
sarahsch
in
LUPUS UK
3 months ago
Treatment for fibro, MCAS, hypermobility syndrom (after catching covid) and long term covid sufferers
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Good afternoon to all. I wanted to go straight to the findings I have done, diagnostic tests with top consultants in London. I was diagnosed with hypermobility syndrome and I had a horrible reaction to a covid infection last xmas which caused me long covid: fatigue, pain in bones, muscles and joints,
Divinesoul
in
Fibromyalgia Action UK
3 months ago
Recovery from colds/flu whilst on Adalimumab
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
Hello,I was diagnosed with Crohn's 18 months ago and have been on Adalimumab for the last 12 months. In that time I have managed to avoid colds/flu until a couple of weeks ago. Have felt quite unwell and presently doesn't seem to be ending. My question is really to other people who have a reduced immune
UmaDaisy
in
Crohn's and Colitis Support
6 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
9 months ago
Covid
hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have fibromyalgia and long covid and canāt walk as far even with walking aids. I only have min daily living and wondered if I should update pip but will
hi all forum people hope your all as well as you can be. I have lupus and got covid and now as result been off work since mid December now advised I have fibromyalgia and long covid and canāt walk as far even with walking aids. I only have min daily living and wondered if I should update pip but will
Geeforce99
in
LUPUS UK
3 months ago
Covid booster vaccines
hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age. I am āhappyā to have it done privately at a cost of Ā£100 approx but would need to travel some distance at the moment. Thanks for any advice
hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age. I am āhappyā to have it done privately at a cost of Ā£100 approx but would need to travel some distance at the moment. Thanks for any advice
Main1234
in
Vasculitis UK
3 months ago
Spring 2024 Covid Vaccine invitation.
Good evening everyone. Iām enquiring if anyone has been contacted with an invitation to have a Spring Covid vaccination booster and if so, how many are or have taken this up? My G.Pās Surgery messaged me recently and I have an appointment for this on 1st May. I have since heard of three people who have
Good evening everyone. Iām enquiring if anyone has been contacted with an invitation to have a Spring Covid vaccination booster and if so, how many are or have taken this up? My G.Pās Surgery messaged me recently and I have an appointment for this on 1st May. I have since heard of three people who have
azaelea
in
MPN Voice
3 months ago
bed wetting has stopped but now child is highly emotional?
hi, just wondering if anyone here thatās had a child that wets the bed had any emotional problems when they stopped? I certainly didnāt expect that stopping bed wetting would cause us any problems š¤¦š¼āāļø. So this last wee my 9 year old girl has been dry at night. Great newsā¦ but now sheās so emotional
hi, just wondering if anyone here thatās had a child that wets the bed had any emotional problems when they stopped? I certainly didnāt expect that stopping bed wetting would cause us any problems š¤¦š¼āāļø. So this last wee my 9 year old girl has been dry at night. Great newsā¦ but now sheās so emotional
Skyfullofstars1
in
ERIC
9 months ago
Help with test results
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
Hi all. I've been having tests as my doctor believes I may have occupational asthma (I work with flour and other flour based ingredients). My blood results have come back as normal but my chest x-ray state the following which I don't understand... "Heart size and mediastinal contours are within normal
EMJAY1401
in
Asthma Community Forum
8 months ago
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