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Bladder infections
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26 public communities
Fight Bladder Cancer
1,202 members
Fight Bladder Cancer is a national charity supporting those with bladder cancer, campaigning to raise awareness and supporting medical research.
Aspergillosis and Rare Fungal Infection Support
3,873 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
Bladder Health UK
1,183 members
The Bladder Health UK Foundation gives support to people with all forms of cystitis, overactive bladder and continence issues together with their families and friends. We are the largest bladder patient support charity in the UK. We have the busiest message board forums in Europe and the most widely used website for those bladder illness sufferers seeking information, help and support.
BASHH
21,279 members
The British Association for Sexual Health and HIV or BASHH for short is the UK's leading organisation dealing with all aspects of sexual health including Contraception, sexual infections and HIV. At present there is no one to actively monitor or moderate posts here. We advise that if you seek specific healthcare advice regarding sexual health you go to our website www.bashh.org Here you will find a wealth of information for the public - particularly patient information leaflets on a range of sexual infections: www.bashh.org/pils Other good sources of information include for both sexual infections and contraception include: www.sexwise.org.uk and www.nhs.uk
ERIC
8,955 members
We are a community that supports families with children or teenagers who have bowel and/or bladder problems (including potty training, bedwetting, daytime wetting and constipation/soiling). Please feel free to ask our members any questions you might have about these conditions or to share your own experience of managing a continence problem in childhood or adolescence. Most of our members are parents but we do also have some young people who contribute. Whatever your situation, we hope you feel welcome here. If you would like to speak to an expertly trained continence advisor, please call the helpline run by ERIC, The Children's Bowel & Bladder Charity on 0808 169 9949. The telephone helpline is open Monday to Thursday 10am - 2pm and calls are free from landline and mobiles.
Living with a Stoma
1,020 members
We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your condition, ask questions and get quick advice from others like you!
Pelvic Pain Support Network
19,541 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Pelvic Radiation Disease Association
649 members
The PRDA community is a peer support group where people can ask questions and share their experiences as well as supporting each other in living with Pelvic Radiation Disease (PRD). The group is run by the Pelvic Radiation Disease Association which is a UK based, patient-led charity set up to provide information and support to people who experience PRD following cancer treatment. PRD is a long-term side-effect (‘late effect’) affecting an estimated 100,000 people in the UK. We understand that people living with PRD can often have a complex set of symptoms which may affect their bowel, bladder, sexual and/or other functions for many years after radiotherapy. These symptoms sometimes only appearing several years or even decades after their radiotherapy treatment. PRD is defined as one or more ongoing symptoms of variable complexity that may affect people who have previously had radiotherapy to the pelvic region to treat their cancer. This includes pelvic radiotherapy for cancers of the colon, rectum, anus, prostate, testes, bladder, cervix and womb, but also total body radiotherapy and radiotherapy in the pelvic area for other primary and secondary cancers. Other words that are sometimes used to describe symptoms of PRD include: Radiation enteritis, Radiation proctitis, Radiation colitis, Radiation enteropathy, Radiation cystitis, Radiation cystopathy, Radiation-induced lumbar plexopathy and Pelvic insufficiency fractures.
Cervical Myelopathy
616 members
Cervical Myelopathy is caused by deterioration in the spine in the neck leading to compression of the spinal cord and symptoms such as “numb” and “clumsy” hands, loss of coordination, imbalance, bladder and bowel problems, and weakness that can progress to severe paralysis. The Cervical Myelopathy community is part of the myelopathy.org network founded in 2015 to raise worldwide awareness of cervical myelopathy to support patients, carers and professionals who live and deal with it. We understand that being diagnosed with Myelopathy is life changing. We also understand that talking about it will help. If you, or someone in your family, has been diagnosed with Myelopathy, We welcome you and We want to support you in your journey
MY SKIN
8,621 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
Living Well with HIV
1,016 members
This community is for people affected by HIV/ AIDS. If you or someone you know is positive, this is a safe peer support community is for you.
HIV Partners
2,326 members
Forum Link has joined forces with the HealthUnlocked team to create this HIV positive online community. We want to make it easier for HIV positive people to find a range of information and support we all need, particularly when we have just been diagnosed with HIV. We do this by highlighting resources from selected other community sites and encouraging members of this community to post messages online. Whether you are newly diagnosed or have been living with HIV for some time we hope you will find this online community of other people living with HIV useful. For more details see the Forum Link web site at http://www.forum-link.org
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