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PCa Recurrence Treatment Advice
Diagnosed w/PCa--Gleason 4+5 in R lobe, 1st/12 cores & 3+4 in L lobe 2nd/12 cores, biopsy & pathology by Johnathan Epstein, June 2018 (age 62). Treatment: EBRT 81 Gy over 45 fractions (completed Jan 2019) + adjuvant Firmagon for 8 mos (completed Mar 2019). PSA reached undetectable nadir in Nov 2019
Diagnosed w/PCa--Gleason 4+5 in R lobe, 1st/12 cores & 3+4 in L lobe 2nd/12 cores, biopsy & pathology by Johnathan Epstein, June 2018 (age 62). Treatment: EBRT 81 Gy over 45 fractions (completed Jan 2019) + adjuvant Firmagon for 8 mos (completed Mar 2019). PSA reached undetectable nadir in Nov 2019
ac61418
in
Advanced Prostate Cancer
1 year ago
Not PC; still possibly relevant--TMB and response to immunotherapy
Across cancer types, advanced cancers with high tumor mutation burden had better responses to immunotherapy: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2804390
Across cancer types, advanced cancers with high tumor mutation burden had better responses to immunotherapy: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2804390
dentaltwin
in
Advanced Prostate Cancer
1 year ago
Bladder retaining more once again after radiation..
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
Hi All, Thinking of you all always Curious about bladder retention after radiation. So prior to hormone treatment my dad couldn't pee.. literally just trickle.. extreme pain and discomfort but he battled out half a year like this sleeping maybe an 1-2 hours total a night. Hes a fighter.. he just did
FormulaRob
in
Advanced Prostate Cancer
1 year ago
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The Hope of Immunotherapy
Interesting article on CAR T therapy for prostate bone metastasis. https://www.miragenews.com/moffitt-scientists-develop-car-t-cells-to-998939/
Interesting article on CAR T therapy for prostate bone metastasis. https://www.miragenews.com/moffitt-scientists-develop-car-t-cells-to-998939/
Blackholes
in
Advanced Prostate Cancer
1 year ago
Is it IBS???
Im 50 M UK, I had been experiencing bloating in late 2022. In Dec 2022 Dr prescribed Macro-Bid for a bladder infection. My tummy reacted terribly, with very loud gargling, sore and uncomfortable, and bowel movement very loose. I have had X2 Fit and X2 Calprotection tests Jan & Feb 28 days apart; all
Im 50 M UK, I had been experiencing bloating in late 2022. In Dec 2022 Dr prescribed Macro-Bid for a bladder infection. My tummy reacted terribly, with very loud gargling, sore and uncomfortable, and bowel movement very loose. I have had X2 Fit and X2 Calprotection tests Jan & Feb 28 days apart; all
Simgee
in
IBS Network
1 year ago
lutetium 177
after exploring options in Germany and London my husband had his first treatment in London on 6 April, he had pain about day 10 to 14 as the steroids finished and then pain passed. We were not expecting g the continual bleeding that started on day 18. My husband has a Foley catheter so it’s is just continual
after exploring options in Germany and London my husband had his first treatment in London on 6 April, he had pain about day 10 to 14 as the steroids finished and then pain passed. We were not expecting g the continual bleeding that started on day 18. My husband has a Foley catheter so it’s is just continual
FionaElbourne
in
Advanced Prostate Cancer
1 year ago
nefopam side effects
Hi I’ve just been given nefopam by my GP for my back I had taken one 30mg yesterday made me groggy and a bit spaced but got rid of the pain (better than other previously given). Took another before bed time and it made me agitated, restless, couldn’t sleep I literally felt wired is this common? Haven
Hi I’ve just been given nefopam by my GP for my back I had taken one 30mg yesterday made me groggy and a bit spaced but got rid of the pain (better than other previously given). Took another before bed time and it made me agitated, restless, couldn’t sleep I literally felt wired is this common? Haven
Shelsby77
in
Pain Concern
1 year ago
Gemtesa for hyperactive bladder control
Hi, Gemtesa is beta-adrenergic receptor medication, is not anticholinergic ditropan like Oxytrol. IS anyone has good experiences with Gemtesa (which is a new drug). to control the frequency and urgency with aggravating the RLS? Thanks for your replay.
Hi, Gemtesa is beta-adrenergic receptor medication, is not anticholinergic ditropan like Oxytrol. IS anyone has good experiences with Gemtesa (which is a new drug). to control the frequency and urgency with aggravating the RLS? Thanks for your replay.
halperinchen
in
Restless Legs Syndrome
1 year ago
Re: Taxotere chemo after post surgery IMRT
Has anyone received Taxotere chemotherapy after post surgery radiation? My son age 50 was diagnosed last summer with PC tertiary 5 pattern. First post surgery PSA was 20. PSMA pet showed some invasion to pelvic lymph nodes no where else. Put on Lupron , generic Zytiga and prednisone and given 6 weeks
Has anyone received Taxotere chemotherapy after post surgery radiation? My son age 50 was diagnosed last summer with PC tertiary 5 pattern. First post surgery PSA was 20. PSMA pet showed some invasion to pelvic lymph nodes no where else. Put on Lupron , generic Zytiga and prednisone and given 6 weeks
Cactus297
in
Advanced Prostate Cancer
1 year ago
Increased Methotrexate causing bloody urine/stools.
This time next week we'll be waiting to board the plane! Yesterday I notice what I think is frank blood in my urine and stools. Today it's still there and after telling Mark I've done a little online research and think the answer is my recent increase in Mt injection. I've been alternating between
This time next week we'll be waiting to board the plane! Yesterday I notice what I think is frank blood in my urine and stools. Today it's still there and after telling Mark I've done a little online research and think the answer is my recent increase in Mt injection. I've been alternating between
IdasMum
in
PMRGCAuk
1 year ago
Extra Mammory Paget's Skin Disease in groin and scrotum.
Hi,Three and a half years after prostatectomy I've just been diagnosed with the latest rare cancer. My consultant dermatologist thinks it could have spread from the Prostate Cancer and is referring me to a Colorectal Surgeon. I'm absolutely traumatised, I'm still struggling to cope from the prostatectomy
Hi,Three and a half years after prostatectomy I've just been diagnosed with the latest rare cancer. My consultant dermatologist thinks it could have spread from the Prostate Cancer and is referring me to a Colorectal Surgeon. I'm absolutely traumatised, I'm still struggling to cope from the prostatectomy
PTC2
in
Advanced Prostate Cancer
1 year ago
85 year old female with constant uti and pain
I have a constant uti and I am up on the loo every hour day and night had 3 lots of antibiotics which relieved it for a couple of days then it comes back I also get the pelvic pain badly and now I am swollen down below I am awaiting a urologist appointment but anything that can help me in the meantime
I have a constant uti and I am up on the loo every hour day and night had 3 lots of antibiotics which relieved it for a couple of days then it comes back I also get the pelvic pain badly and now I am swollen down below I am awaiting a urologist appointment but anything that can help me in the meantime
Dippydolly
in
Pelvic Pain Support Network
1 year ago
Latest update on son
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Hi all, some good news & some bad. First bad news - since my last post son has had further problems following catheter insertion error. He had quite a lot of bleeding & discharge which resulted in a 14 hour stint in A & E & urgent follow up referral with urology. Falsepassage way error had resulted
Nanapal
in
Headway
1 year ago
females & prednisone
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
does anybody notice vaginal odor while taking prednisone & methotrexate? I remember when on chemotherapy years ago I had a body odor. your thoughts? My gynecologist suggested probiotics with Lactobacillus acidophilus.
Pass7
in
PMRGCAuk
1 year ago
Intro
Good day! I’m 62, male living in South Carolina. Was diagnosed with Prostate Cancer (PC) last year. Had a Radical Prostatectomy with clear margins, and for a year have had PSA tests less than the 0.1 level. Most recent test jumped from 0.047 to 0.075 concerning me that the surgery was not fully successful
Good day! I’m 62, male living in South Carolina. Was diagnosed with Prostate Cancer (PC) last year. Had a Radical Prostatectomy with clear margins, and for a year have had PSA tests less than the 0.1 level. Most recent test jumped from 0.047 to 0.075 concerning me that the surgery was not fully successful
Passportman
in
Advanced Prostate Cancer
1 year ago
Gastroenterologist Consultation
After waiting since last autumn I've finally spoken to a gastroenterology consultant.This was an a phone appointment with my local hospital - something I've not done before, but it worked really well, much better than I expected. The conclusion, for the time being, is that my IBSd is definitely related
After waiting since last autumn I've finally spoken to a gastroenterology consultant.This was an a phone appointment with my local hospital - something I've not done before, but it worked really well, much better than I expected. The conclusion, for the time being, is that my IBSd is definitely related
Hetchins1946
in
IBS Network
1 year ago
Link between ibs and bladder problems
Hi. Just wondering whether anyone else has noticed a link between their ibs and urinary urgency/incontinence. I struggle with a lot of bloating/wind and also have issues with needing to rush for a wee urgently sometimes, and sometimes not making it in time. Also my ibs, which I have had for years was
Hi. Just wondering whether anyone else has noticed a link between their ibs and urinary urgency/incontinence. I struggle with a lot of bloating/wind and also have issues with needing to rush for a wee urgently sometimes, and sometimes not making it in time. Also my ibs, which I have had for years was
Deniseki
in
IBS Network
1 year ago
so scared
My husband, 60, just got an MRI report that stated aggressive metastatic prostate carcinoma >15 that spread to bladder and anus walls. We have an appointment with the urologist in 3 days. This feels so hopeless. Symptoms have been difficulty urinating mostly. PSA ranging 5-7 over the past month. IS THERE
My husband, 60, just got an MRI report that stated aggressive metastatic prostate carcinoma >15 that spread to bladder and anus walls. We have an appointment with the urologist in 3 days. This feels so hopeless. Symptoms have been difficulty urinating mostly. PSA ranging 5-7 over the past month. IS THERE
Jojoteacher
in
Advanced Prostate Cancer
1 year ago
Gemzar was tough
I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I had 10 treatments of Gemzar. I finally had to ask Onco to stop because I was losing my quality of life. Now that I’m off Gemzar, I’m hoping
I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I had 10 treatments of Gemzar. I finally had to ask Onco to stop because I was losing my quality of life. Now that I’m off Gemzar, I’m hoping
Leniko
in
My Ovacome
1 year ago
any hope for aggressive metastatic prostate cancer?
My husband, 60, just got an MRI report that stated aggressive metastatic prostate carcinoma >15 that spread to bladder and anus walls. We have an appointment with the urologist in 3 days. This feels so hopeless. Symptoms have been difficulty urinating mostly. PSA ranging 5-7 over the past month. IS THERE
My husband, 60, just got an MRI report that stated aggressive metastatic prostate carcinoma >15 that spread to bladder and anus walls. We have an appointment with the urologist in 3 days. This feels so hopeless. Symptoms have been difficulty urinating mostly. PSA ranging 5-7 over the past month. IS THERE
Jojoteacher
in
Advanced Prostate Cancer
1 year ago
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