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7 public communities
Fight Bladder Cancer
1,202 members
Fight Bladder Cancer is a national charity supporting those with bladder cancer, campaigning to raise awareness and supporting medical research.
Bladder Health UK
1,198 members
The Bladder Health UK Foundation gives support to people with all forms of cystitis, overactive bladder and continence issues together with their families and friends. We are the largest bladder patient support charity in the UK. We have the busiest message board forums in Europe and the most widely used website for those bladder illness sufferers seeking information, help and support.
ERIC
8,990 members
We are a community that supports families with children or teenagers who have bowel and/or bladder problems (including potty training, bedwetting, daytime wetting and constipation/soiling). Please feel free to ask our members any questions you might have about these conditions or to share your own experience of managing a continence problem in childhood or adolescence. Most of our members are parents but we do also have some young people who contribute. Whatever your situation, we hope you feel welcome here. If you would like to speak to an expertly trained continence advisor, please call the helpline run by ERIC, The Children's Bowel & Bladder Charity on 0808 169 9949. The telephone helpline is open Monday to Thursday 10am - 2pm and calls are free from landline and mobiles.
Living with a Stoma
1,022 members
We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your condition, ask questions and get quick advice from others like you!
Pelvic Pain Support Network
19,585 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
Pelvic Radiation Disease Association
662 members
The PRDA community is a peer support group where people can ask questions and share their experiences as well as supporting each other in living with Pelvic Radiation Disease (PRD). The group is run by the Pelvic Radiation Disease Association which is a UK based, patient-led charity set up to provide information and support to people who experience PRD following cancer treatment. PRD is a long-term side-effect (‘late effect’) affecting an estimated 100,000 people in the UK. We understand that people living with PRD can often have a complex set of symptoms which may affect their bowel, bladder, sexual and/or other functions for many years after radiotherapy. These symptoms sometimes only appearing several years or even decades after their radiotherapy treatment. PRD is defined as one or more ongoing symptoms of variable complexity that may affect people who have previously had radiotherapy to the pelvic region to treat their cancer. This includes pelvic radiotherapy for cancers of the colon, rectum, anus, prostate, testes, bladder, cervix and womb, but also total body radiotherapy and radiotherapy in the pelvic area for other primary and secondary cancers. Other words that are sometimes used to describe symptoms of PRD include: Radiation enteritis, Radiation proctitis, Radiation colitis, Radiation enteropathy, Radiation cystitis, Radiation cystopathy, Radiation-induced lumbar plexopathy and Pelvic insufficiency fractures.
Cervical Myelopathy
617 members
Cervical Myelopathy is caused by deterioration in the spine in the neck leading to compression of the spinal cord and symptoms such as “numb” and “clumsy” hands, loss of coordination, imbalance, bladder and bowel problems, and weakness that can progress to severe paralysis. The Cervical Myelopathy community is part of the myelopathy.org network founded in 2015 to raise worldwide awareness of cervical myelopathy to support patients, carers and professionals who live and deal with it. We understand that being diagnosed with Myelopathy is life changing. We also understand that talking about it will help. If you, or someone in your family, has been diagnosed with Myelopathy, We welcome you and We want to support you in your journey