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Next steps -questions on immunotherapy
Well our roller coaster continues. In early December we began making plans to go to Germany, even had dates offered to us in Munich, then my husband finally got a tissue sample after six tried ( see bio) and we contacted cancer institute to find places for a psma test prior to our trip what they sent
Well our roller coaster continues. In early December we began making plans to go to Germany, even had dates offered to us in Munich, then my husband finally got a tissue sample after six tried ( see bio) and we contacted cancer institute to find places for a psma test prior to our trip what they sent
Dalipup
in
Advanced Prostate Cancer
4 years ago
Interesting GP appt (update to ESR/CRP post)
A couple of days ago I asked for a link to the research on the 20% or so of us who develop PMR without raised ESR or CRP levels. Thanks to PMRPro and the others who replied. Armed with this, I asked my GP why at the last appointment, with a trainee GP sitting in, she introduced me as “appeared to develop
A couple of days ago I asked for a link to the research on the 20% or so of us who develop PMR without raised ESR or CRP levels. Thanks to PMRPro and the others who replied. Armed with this, I asked my GP why at the last appointment, with a trainee GP sitting in, she introduced me as “appeared to develop
Mai45
in
PMRGCAuk
4 years ago
Flutamide, bicalutamide, nilutamide, apalutamide or enzalutamide?
According to the cancer.gov fact sheet for Hormone Therapy for Prostate Cancer, there are 5 types of CAB, Complete Androgen Blockade. I've been on bical. for about 20 months. However, against advice, I have not had radiation nor surgery. The combo I'm using is finasteride, tamsulosin and bicalutamide
According to the cancer.gov fact sheet for Hormone Therapy for Prostate Cancer, there are 5 types of CAB, Complete Androgen Blockade. I've been on bical. for about 20 months. However, against advice, I have not had radiation nor surgery. The combo I'm using is finasteride, tamsulosin and bicalutamide
RICH22
in
Advanced Prostate Cancer
4 years ago
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I need some help reading biopsy
Hello guys My dad still fighting and after 4 chemo therapies liver got a bit better that allowing him to eat at least breakfast and lunch ( having nausea going on and off and not much appetite). Due to met in the bladder got another blockage the last week and now has a catheter on, on Sunday we could
Hello guys My dad still fighting and after 4 chemo therapies liver got a bit better that allowing him to eat at least breakfast and lunch ( having nausea going on and off and not much appetite). Due to met in the bladder got another blockage the last week and now has a catheter on, on Sunday we could
Samdres
in
Advanced Prostate Cancer
4 years ago
Double J Stent and Starting Chemo
It is interesting times here. I'm still recovering from surgery to put in a chemo port and a ureter stent, and starting chemo for NEPC tomorrow morning. Very eager to be going on the offensive. Question for the forum: Does anybody else here have any experience with a "Double J stent"? Mine is working
It is interesting times here. I'm still recovering from surgery to put in a chemo port and a ureter stent, and starting chemo for NEPC tomorrow morning. Very eager to be going on the offensive. Question for the forum: Does anybody else here have any experience with a "Double J stent"? Mine is working
tom67inMA
in
Advanced Prostate Cancer
4 years ago
‘She’ll Grow Out of It’
Hi Wondering if anyone else has experienced persistent bed wetting with an older child? My daughter is 8 (9 in June) and still wears pull ups at night. She has never ever had a dry night and is now wetting through the pull up so most days full change of sheets down to the duvet and everything washed
Hi Wondering if anyone else has experienced persistent bed wetting with an older child? My daughter is 8 (9 in June) and still wears pull ups at night. She has never ever had a dry night and is now wetting through the pull up so most days full change of sheets down to the duvet and everything washed
williams_19
in
ERIC
4 years ago
Hospital again aggghhh
Went to see my Surgeon-Consultant last week, CT scan not good (attached). After my lung operation in October 2018, most recent CT scan shows a large nodule and a few scattered in the lung. I'm in on the 18th Feb, they will go into the lung and have a look, best outcome is biopsies then treatment, second
Went to see my Surgeon-Consultant last week, CT scan not good (attached). After my lung operation in October 2018, most recent CT scan shows a large nodule and a few scattered in the lung. I'm in on the 18th Feb, they will go into the lung and have a look, best outcome is biopsies then treatment, second
1968
in
Lung Conditions Community Forum
4 years ago
The only way is up !
Hello from across the pond. I've been a member for quite a while and have followed your exploits with interest . I guess I could do with some help now so here goes. I was diagnosed in Sept 2018 but have reached a stage where the onco says that I am terminal. I have tumors in my penis, i am on chemotherapy
Hello from across the pond. I've been a member for quite a while and have followed your exploits with interest . I guess I could do with some help now so here goes. I was diagnosed in Sept 2018 but have reached a stage where the onco says that I am terminal. I have tumors in my penis, i am on chemotherapy
Simo69
in
Advanced Prostate Cancer
4 years ago
CRISPR-edited immune cells can survive and thrive after infusion into cancer patients - ScienceDaily - February 6, 2020
Posted on behalf of a good friend who's fond of saying, [i]"The Science Is Coming":[/i] [i]". . .there is some new science that I think is important"[/i] https://www.sciencedaily.com/releases/2020/02/200206144845.htm [i]"The editing of PD-1 out of the T cell is huge--removing the checkpoint to the T
Posted on behalf of a good friend who's fond of saying, [i]"The Science Is Coming":[/i] [i]". . .there is some new science that I think is important"[/i] https://www.sciencedaily.com/releases/2020/02/200206144845.htm [i]"The editing of PD-1 out of the T cell is huge--removing the checkpoint to the T
cujoe
in
Fight Prostate Cancer
4 years ago
IBS, IC and Endo
Hi, I’ve been diagnosed with IBS and interstitial cystitis over the last few years but still have suffered with excruciating pain on my right side. I’ve had cysts in the past and a family history of endometriosis. But the gp is refusing to refer me to a specialist or even a gynaecologist. Anyone else
Hi, I’ve been diagnosed with IBS and interstitial cystitis over the last few years but still have suffered with excruciating pain on my right side. I’ve had cysts in the past and a family history of endometriosis. But the gp is refusing to refer me to a specialist or even a gynaecologist. Anyone else
charlotteb30
in
Endometriosis UK
4 years ago
Antioxidants
I’m aware of the situation with antioxidants and cancer, in particular with chemo. I was told that Alpha Lipoic Acid 600 mg daily and B-6 50 mg daily can help with neuropathy from Taxotere. I’m curious as to hear from others on this. Related: what about antioxidants in conjunction with immunotherapy
I’m aware of the situation with antioxidants and cancer, in particular with chemo. I was told that Alpha Lipoic Acid 600 mg daily and B-6 50 mg daily can help with neuropathy from Taxotere. I’m curious as to hear from others on this. Related: what about antioxidants in conjunction with immunotherapy
Chugach
in
Advanced Prostate Cancer
4 years ago
Endometriosis or endometrial cancer?
My gp and gynea suspect endometriosis and I’m on the urgent waiting list for a lap. My mum was diagnosed with two primary cancers (womb & ovarian) when she was 45. The womb was only diagnosed once she had a full hysterectomy and the lab had done a biopsy and found she had womb along with the suspected
My gp and gynea suspect endometriosis and I’m on the urgent waiting list for a lap. My mum was diagnosed with two primary cancers (womb & ovarian) when she was 45. The womb was only diagnosed once she had a full hysterectomy and the lab had done a biopsy and found she had womb along with the suspected
MollyMoo67
in
Endometriosis UK
4 years ago
Endo and bladder issues
Was diagnosed through laparoscopy in October 2019. Pain and symptoms have been the same since. I had one endo patch excised and one ablated. It was done at a specialist endo Centre by a specialist surgeon in the North West. They didn’t give me a follow up appointment or even see me after. Just sent me
Was diagnosed through laparoscopy in October 2019. Pain and symptoms have been the same since. I had one endo patch excised and one ablated. It was done at a specialist endo Centre by a specialist surgeon in the North West. They didn’t give me a follow up appointment or even see me after. Just sent me
EndoEffect
in
Endometriosis UK
4 years ago
Concerns about Salvage Radiation
I start radiation January 6th. I think I can get the water/bladder thing down, but I have concerns about the other end. Did you do enemas before each session and is it OK to do a daily enema? I am not particularly regular and would like to be in the best position to avoid damaging that area. Also,
I start radiation January 6th. I think I can get the water/bladder thing down, but I have concerns about the other end. Did you do enemas before each session and is it OK to do a daily enema? I am not particularly regular and would like to be in the best position to avoid damaging that area. Also,
SooHwa99
in
Prostate Cancer Network
5 years ago
Drugs before dx
Urologist had me on Tamsoluson and Terazosin before do to help with urination. In light of these drugs may cause a more aggressive form of Pca and I’m still on Tamsoluson is there a chance that this drug is now feeding my cancer?
Urologist had me on Tamsoluson and Terazosin before do to help with urination. In light of these drugs may cause a more aggressive form of Pca and I’m still on Tamsoluson is there a chance that this drug is now feeding my cancer?
Bobcat64
in
Advanced Prostate Cancer
4 years ago
Doctors know best.
I had to have a colonoscopy recently and having had previous colonoscopies, I knew that my RLS legs were always a problem. I live in the USA and they use Propofol, which knocks me out but makes my Restless legs really bad. So, I explained this to the Doctor and the anesthetic person. They said “
I had to have a colonoscopy recently and having had previous colonoscopies, I knew that my RLS legs were always a problem. I live in the USA and they use Propofol, which knocks me out but makes my Restless legs really bad. So, I explained this to the Doctor and the anesthetic person. They said “
Hidden
in
Restless Legs Syndrome
4 years ago
Leukocyte telomere length is associated with aggressive prostate cancer in localized prostate cancer patients.
Interesting new study from MD Anderson, below [1]. Leukocytes are white blood cells - important players in the immune response. Telomeres are protective caps at the ends of chromosomes. They are mostly comprised of repeating sequences. When cells divide, there is a loss of one or more of the sequences
Interesting new study from MD Anderson, below [1]. Leukocytes are white blood cells - important players in the immune response. Telomeres are protective caps at the ends of chromosomes. They are mostly comprised of repeating sequences. When cells divide, there is a loss of one or more of the sequences
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Full hysterectomy including ovaries op
I have a operation coming up in February for a full abdominal operation including ovaries and also bowel resection with a stoma. Anyone else had this surgery I am very worried ?
I have a operation coming up in February for a full abdominal operation including ovaries and also bowel resection with a stoma. Anyone else had this surgery I am very worried ?
Metriosisgirl
in
Endometriosis UK
4 years ago
I cured myself of PMR without Steriods.
THIS IS NOT A TREATMENT THAT PMR/GCAUk RECOMMENDS. Yellowbluebell, moderator I was diagnosed with PMR last Jan. 2019. I did not take any steroids but I did take Chinese herbal supplements, changed my diet to more vegetarian and used yoga and Tai Chi as my ways of stretching my body. I took the supplements
THIS IS NOT A TREATMENT THAT PMR/GCAUk RECOMMENDS. Yellowbluebell, moderator I was diagnosed with PMR last Jan. 2019. I did not take any steroids but I did take Chinese herbal supplements, changed my diet to more vegetarian and used yoga and Tai Chi as my ways of stretching my body. I took the supplements
Ibis10
in
PMRGCAuk
4 years ago
HEART HOLDING UP
I have not posted for some time. My heart condition seems to be doing ok despite a spate of sudden health issues. First I was diagnosed with bladder cancer (just had my 2nd op) two days ago and in 10 days time will undergo eye stents for glaucoma. Has anyone else suffering from the latter two health
I have not posted for some time. My heart condition seems to be doing ok despite a spate of sudden health issues. First I was diagnosed with bladder cancer (just had my 2nd op) two days ago and in 10 days time will undergo eye stents for glaucoma. Has anyone else suffering from the latter two health
Carol70
in
AF Association
4 years ago
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