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Beckwith-Wiedemann Syndrome
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I,ve had a result from an MRI naming Pelvic congestion syndrome. I,ve never seen it mentioned on this site although after a bit of research i realise theres quite a high percentage of mostly women that have found a conclusion to their mysterious pelvic pain. After 7 years of being sent from gynno to
I,ve had a result from an MRI naming Pelvic congestion syndrome. I,ve never seen it mentioned on this site although after a bit of research i realise theres quite a high percentage of mostly women that have found a conclusion to their mysterious pelvic pain. After 7 years of being sent from gynno to
costagran
in
Pelvic Pain Support Network
6 years ago
HCG doesn't double but increases
Hi ladies, My beta hcg was 118 on 12 days post 5det. Next doubling test it was 131 only. Next doubling test it was 216. I don't understand whether to lose hope or not. Did any one of you experience a similar situation. If so,please share your experience here. This is emotionally and physically extremely
Hi ladies, My beta hcg was 118 on 12 days post 5det. Next doubling test it was 131 only. Next doubling test it was 216. I don't understand whether to lose hope or not. Did any one of you experience a similar situation. If so,please share your experience here. This is emotionally and physically extremely
Draglife
in
Fertility Network UK
6 years ago
Clomid
Prior to miscarriages my periods were regular and tests showed I was ovulating. After my 2nd miscarriage my periods have been irregular for 7 months. I have been prescribed clomid. However, I have first IVF appointment in March. Should I give clomid a try or just wait for IVF?
Prior to miscarriages my periods were regular and tests showed I was ovulating. After my 2nd miscarriage my periods have been irregular for 7 months. I have been prescribed clomid. However, I have first IVF appointment in March. Should I give clomid a try or just wait for IVF?
LittleMermaid1
in
Fertility Network UK
6 years ago
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Parkinson's unusual 'off' times. Wearing off begins, but medication kicks back in before taking next pill.
My Mom was diagnosed a few years ago with PD, but it has progressed a lot in the past year. She got into a stable routine with C-L(25-100), although she experiences 'off times' or as she calls it 'slow downs' two hours after each pill. The strange thing is that it goes away after 45 minutes-1 hour, without
My Mom was diagnosed a few years ago with PD, but it has progressed a lot in the past year. She got into a stable routine with C-L(25-100), although she experiences 'off times' or as she calls it 'slow downs' two hours after each pill. The strange thing is that it goes away after 45 minutes-1 hour, without
filmor14
in
Cure Parkinson's
6 years ago
What to do about my restless legs??
Someone help!!!! Cant cope with restless leg syndrome anymore, I need sleep. I am currently 34 weeks pregnant and have suffered with rls for a long time and was taking tramadol for rls as well as depression/anxiety and it was working great. When I notified my doctor that I was pregnant he stopped prescribing
Someone help!!!! Cant cope with restless leg syndrome anymore, I need sleep. I am currently 34 weeks pregnant and have suffered with rls for a long time and was taking tramadol for rls as well as depression/anxiety and it was working great. When I notified my doctor that I was pregnant he stopped prescribing
Lissikins
in
Restless Legs Syndrome
6 years ago
Anyone else in full time work and finding it hard to focus!?
I'm constantly searching for answers in my mind. Trying to figure out some logical, reasonable explanation about why at the age of 26 it's been taking us so long to conceive! I know there are others out there that have been waiting longer but I just cannot get my head around how difficult it is for
I'm constantly searching for answers in my mind. Trying to figure out some logical, reasonable explanation about why at the age of 26 it's been taking us so long to conceive! I know there are others out there that have been waiting longer but I just cannot get my head around how difficult it is for
Faith27
in
Fertility Network UK
6 years ago
Tramadol, Lyrica, etc
Appointment with GP last Thursday. Husband in terrible shape that day which was good for the doctor to actually SEE in person. Falling asleep at 4 PM in the room, couldn't focus well. Coming off the Ropinerole (augmentation) and 24/7 RLS for days. She prescribed Lyrica. He took it for three nights
Appointment with GP last Thursday. Husband in terrible shape that day which was good for the doctor to actually SEE in person. Falling asleep at 4 PM in the room, couldn't focus well. Coming off the Ropinerole (augmentation) and 24/7 RLS for days. She prescribed Lyrica. He took it for three nights
Climberguy
in
Restless Legs Syndrome
6 years ago
My 34 fiance' has FND, or does he?
Hi there, I am writing this post in hope that I can get some advice/support. My 34 yr old fiance' was diagnosed with FND approximately 2 years ago (and 6 months into our relationship). It has been a rocky road full of doctor and hospital visits since then, and forever changing intermittent symptoms.
Hi there, I am writing this post in hope that I can get some advice/support. My 34 yr old fiance' was diagnosed with FND approximately 2 years ago (and 6 months into our relationship). It has been a rocky road full of doctor and hospital visits since then, and forever changing intermittent symptoms.
ash12041990
in
Functional Neurological Disorder - FND Hope
6 years ago
Weaning off Pramipexole
Tomorrow night will be #14 and last pramipexole for me since i started weaning off last October. For me it's been one challenge after another. Not knowing what to expect each night. Some nights have been nothing short of torture. Currently I'm on 300 mg of Lyrica once a night with a backup of Oxycodone
Tomorrow night will be #14 and last pramipexole for me since i started weaning off last October. For me it's been one challenge after another. Not knowing what to expect each night. Some nights have been nothing short of torture. Currently I'm on 300 mg of Lyrica once a night with a backup of Oxycodone
Tennwalker1
in
Restless Legs Syndrome
6 years ago
Restless Legs moving up the body
I experience a strange feeling in my legs, but if I lay still it moves up my legs into my stomach and then around my chest. That makes me feel panicky and I resort to getting up. My Neurologist who diagnosed me with RLS and Parkinson's disease had prescribed Pramipexole ER. The insurance company does
I experience a strange feeling in my legs, but if I lay still it moves up my legs into my stomach and then around my chest. That makes me feel panicky and I resort to getting up. My Neurologist who diagnosed me with RLS and Parkinson's disease had prescribed Pramipexole ER. The insurance company does
horseart
in
Restless Legs Syndrome
6 years ago
Any advice please
I have been taking Pramipexole for a few months now with little or no relief. Previous to this I was taking Pergolide which worked perfectly for many years however now it is unavailable so I'm having to try alternatives. On top of this I've had a knee replacement and when the restless legs start
I have been taking Pramipexole for a few months now with little or no relief. Previous to this I was taking Pergolide which worked perfectly for many years however now it is unavailable so I'm having to try alternatives. On top of this I've had a knee replacement and when the restless legs start
Kazspro
in
Restless Legs Syndrome
6 years ago
High b12 & elevated liver enzymes
Hi everyone - just had blood test results which show 1600 b12 levels & elevated liver enzymes. Can anyone tell me what the cause may be? My GP stopped b12 injections October 2017 as levels were >2000. I had been having b12 injections for approx 4 years but was never told why or investigated. Following
Hi everyone - just had blood test results which show 1600 b12 levels & elevated liver enzymes. Can anyone tell me what the cause may be? My GP stopped b12 injections October 2017 as levels were >2000. I had been having b12 injections for approx 4 years but was never told why or investigated. Following
Irismay
in
Pernicious Anaemia Society
6 years ago
I'm new :)
I was diagnosed with APS (and possibly a connective tissue disease) in November 2018. It was discovered after a miscarriage. I am glad I found this online community, I have so many unanswered questions and issues , but my biggest problem is brain fog. I am a software developer and there are days that
I was diagnosed with APS (and possibly a connective tissue disease) in November 2018. It was discovered after a miscarriage. I am glad I found this online community, I have so many unanswered questions and issues , but my biggest problem is brain fog. I am a software developer and there are days that
RubyAndBlue
in
Hughes Syndrome APS Forum
6 years ago
Day 6 stims scan 😍
Heyyy lovely people 😍 Hope you are all well. I've been in for my first scan since on stims. It's day 6 and all seems good for now. My cyst hasn't grown thank God for that. I have 2 big follicles on each ovary and more small ones growing. The njrse said is all lookong good. Im starting cetrotide tomorrow
Heyyy lovely people 😍 Hope you are all well. I've been in for my first scan since on stims. It's day 6 and all seems good for now. My cyst hasn't grown thank God for that. I have 2 big follicles on each ovary and more small ones growing. The njrse said is all lookong good. Im starting cetrotide tomorrow
Klndmr
in
Fertility Network UK
6 years ago
Tknr
Hi anybody know why u have to attend a physio therapy class before knee replacement surgery thank you 😊
Hi anybody know why u have to attend a physio therapy class before knee replacement surgery thank you 😊
Deejojo
in
NRAS
6 years ago
Methadone treatment or not?
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
I have been on Ropinerole 2 yrs along with 120 mg daily ms contin ( morphine) and it is not working anymore. Back to square one. I told my family doc I am suicidal ( to get his attention) and it did. We talked at length about another plan of attack and from what I have read suggested getting rid
Merster
in
Restless Legs Syndrome
6 years ago
Pelvic pain
Hello, It has been suggested that I have secondary vaginismus. I have terrible pain in the front wall of my vagina whenever pressure is applied that began a few years ago and has worsened. Due to this, I can't have sex or use tampons. The pain has left me feeling suicidal; as a young woman with this
Hello, It has been suggested that I have secondary vaginismus. I have terrible pain in the front wall of my vagina whenever pressure is applied that began a few years ago and has worsened. Due to this, I can't have sex or use tampons. The pain has left me feeling suicidal; as a young woman with this
superiorblue
in
Pelvic Pain Support Network
6 years ago
1st ivf cycle but embryo is delayed
Hi all, Sad news for me and husband. We been ttc for 4 years and last year diagnosed with both Fallopian tube blocked and had a surgery to open both but after few months it was block again. Super sad and frustrating. So ivf was the only way. Started my ivf cycles on 30/12/18 and I had low AMH which
Hi all, Sad news for me and husband. We been ttc for 4 years and last year diagnosed with both Fallopian tube blocked and had a surgery to open both but after few months it was block again. Super sad and frustrating. So ivf was the only way. Started my ivf cycles on 30/12/18 and I had low AMH which
MRSrob
in
Pregnancy and Parenting Support
6 years ago
WiFi finally..
Hi all you wonderful people... It took me two days to finally get my phone to let me have a hot spot to get WiFi. So today I feel wore out ... normally two half days at radio shack would be fun but not when my phone doesn’t work. ANYWAY!! I have a new person my own FNP. She is very open to anything
Hi all you wonderful people... It took me two days to finally get my phone to let me have a hot spot to get WiFi. So today I feel wore out ... normally two half days at radio shack would be fun but not when my phone doesn’t work. ANYWAY!! I have a new person my own FNP. She is very open to anything
Hidden
in
PMRGCAuk
6 years ago
Flecainide and seeing spots (floaters)
hello, I have been taking Flecainide 50mg twice daily for around 2 months now. I did notice that im seeing some floaters, but I dont know if that is necessarily related to the flecainide side effects or just a normal occurence. Did anyone experience such a side effect? at what level should I consider
hello, I have been taking Flecainide 50mg twice daily for around 2 months now. I did notice that im seeing some floaters, but I dont know if that is necessarily related to the flecainide side effects or just a normal occurence. Did anyone experience such a side effect? at what level should I consider
Kd190
in
AF Association
6 years ago
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