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Advice please with cold and PMR
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
For the first time in nearly a year, I have a cold and where I before just go on with it, I am feeling terrible! My body aches so much from my shoulders to the groin and neck and wondering if is this normal when having an autoimmune disease. Should I increase my prednisone until this passes as not sure
Markandevie
in
PMRGCAuk
7 months ago
Covid - Beware Getting Treatment
it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my Consultants Secretary, she arranged for the paperwork to West Yorks Healthcare (we live in North Yorkshire) Trust. She added to let them know as it was
it’s currently 08.30 in the morning and I have probably had the worst ordeal ever. I tested positive yesterday morning. As is the protocol I rang my Consultants Secretary, she arranged for the paperwork to West Yorks Healthcare (we live in North Yorkshire) Trust. She added to let them know as it was
Investigator1
in
Vasculitis UK
10 months ago
Been on the IC since April 24h….bit fed up now!
Hi, I completed C25K a few years ago, and run regularly. I started having pain in both feet earlier this year, which felt like Plantar Fasciitis, which I had had very successful surgery for over 20 years ago! ( I must have been REALLY lucky with the results, as it’s hardly done now, as it’s not thought
Hi, I completed C25K a few years ago, and run regularly. I started having pain in both feet earlier this year, which felt like Plantar Fasciitis, which I had had very successful surgery for over 20 years ago! ( I must have been REALLY lucky with the results, as it’s hardly done now, as it’s not thought
Dansac29
Graduate
in
Couch to 5K
10 months ago
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Targinact
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
I have had RLS for over 20 years and have tried most medications, the latest being Pregabalin, which was good but is now not working so well. I therefore asked my GP if I could try Targinact as I read this is now licensed for RLS. He has agreed and I just need to taper Pregabalin. Can anyone
Quiltingmum
in
Restless Legs Syndrome
9 months ago
My Stem Cell Journey so far.
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Hi everyone just thought I’d share my experience of STC with you. I began the prep treatment over a week ago which consisted of a concoction of IV and oral meds. The day before transplant I had Total Body Irradiation - on the 31st I received “the gift” of stem cells from an anonymous donor 🙏. Im sorry
Billarina
in
CLL Support
11 months ago
Does anyone here continue to have blood in their phlegm after recovering from pneumonia?
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
I finished taking my medication a week ago, and I haven't been getting much phlegm these days. But now I see blood spots in the phlegm, I have an x-ray tomorrow.I am very worried, my mind sometimes drifts to dark thoughts.
Vinaa
in
Lung Conditions Community Forum
7 months ago
Covid 19 booster and pneumonia vaccine
Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.
Hi has any one had any flares after these vaccines. GP Practice slow so will have to chase. Had the flu one OK had to go to pharmacy as Gp had stopped doing them. Bit concerned about Covid one and RA flares.
welsh12
in
NRAS
8 months ago
advice on sulfasalazine and the sun
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
I have been told by my rheumatologist nurse that I need to start taking sulfasalazine for my reactive arthritis, as I had a steroid injection after taking steroids orally, but it’s still not keeping the joint stiffness at bay completely . I’m not happy as I was under the impression that reactive arthritis
Fish1230
in
NRAS
10 months ago
COVID!
After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My wife, from whom I probably caught it has symptoms so mild that she didn't even think to test until I came up positive. They sent her home from work
After a couple of days feeling under the weather, I (finally) tested positive for COVID this morning. I have a headache, and stuffy nose, nothing else. My wife, from whom I probably caught it has symptoms so mild that she didn't even think to test until I came up positive. They sent her home from work
jonathan7176
in
CLL Support
10 months ago
The dreaded covid
Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on watch and wait with CLL, I’m feeling not as rough but I’ve had it a year ago, and have had all the vaccinations offered me and so has hubby.
Hi Having recently come home from a holiday, both my husband and I have tested positive for covid. He’s never had it so he’s been quite poorly, I’m the one on watch and wait with CLL, I’m feeling not as rough but I’ve had it a year ago, and have had all the vaccinations offered me and so has hubby.
robertsw
in
CLL Support
10 months ago
Breathing becomes worse POST COVID
I have COPD without any SOB before COVID, I was infected with COVID few months back and recovered without oxygen support. I am having post Post covid symptoms such as brain fog (light dizzy throughout the day), elevated heart rate. But surprisingly my lung function FEV and FVC has increased, but feeling
I have COPD without any SOB before COVID, I was infected with COVID few months back and recovered without oxygen support. I am having post Post covid symptoms such as brain fog (light dizzy throughout the day), elevated heart rate. But surprisingly my lung function FEV and FVC has increased, but feeling
Maverick2
in
Lung Conditions Community Forum
10 months ago
Sick note
Hello, wondered if anyone could give me some advice. My husband has been off sick from work with Covid for 9 days and he has been quite poorly but back to work now. He only works 3 days a week but needs a sick note to cover him for 2 days. When contacting the GP they told him they don't give sick
Hello, wondered if anyone could give me some advice. My husband has been off sick from work with Covid for 9 days and he has been quite poorly but back to work now. He only works 3 days a week but needs a sick note to cover him for 2 days. When contacting the GP they told him they don't give sick
Newbytoasthma
in
Lung Conditions Community Forum
10 months ago
Chronic shoulder pain
Was initially diagnosed with PMR in April 2022 only to be told a month later by Rheumatologist that it wasn’t PMR but a nasty viral infection. Also had long standing shoulder pain now for over 2 years and neck also very stiff.Had shoulder scanned recently shoeing no tests but SASD bursa distended consistent
Was initially diagnosed with PMR in April 2022 only to be told a month later by Rheumatologist that it wasn’t PMR but a nasty viral infection. Also had long standing shoulder pain now for over 2 years and neck also very stiff.Had shoulder scanned recently shoeing no tests but SASD bursa distended consistent
Countybowler
in
PMRGCAuk
10 months ago
Herpes (or acyclovir usage) affecting implantation after ivf embryo transfer?
I have had herpes for about 10 years. I have noticed more outbreaks during stims. I've already had 2 failed transfers and am worried both that having herpes and /or taking acyclovir will affect implantation for my last transfer. I've read some conflicting studies on acyclovir and it's effect on implantation
I have had herpes for about 10 years. I have noticed more outbreaks during stims. I've already had 2 failed transfers and am worried both that having herpes and /or taking acyclovir will affect implantation for my last transfer. I've read some conflicting studies on acyclovir and it's effect on implantation
Norregirl
in
Fertility Network UK
5 months ago
Chest infection without steroids
Hi, I am recently diagnosed with asthma - back in September with an awful 12 days in hospital after a cold became bronchitis. Was on oxygen etc. I am a man in early 40s. I had another cold in early November which afterwards led to coughing up thick green stuff and bad wheezing. Took steroids and antibiotics
Hi, I am recently diagnosed with asthma - back in September with an awful 12 days in hospital after a cold became bronchitis. Was on oxygen etc. I am a man in early 40s. I had another cold in early November which afterwards led to coughing up thick green stuff and bad wheezing. Took steroids and antibiotics
Particle32
in
Asthma Community Forum
7 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Advanced Prostate Cancer
5 months ago
MODERNA SPIKEVAX (2022) COVID Vaccine Availability Autumn 2023 Uk
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
Hi all, As anyone had a Moderna COVID vaccine (2022 version Bivalent Spikevax) this autumn in the UK, I have a clinical need to avoid Pfizer and that is all that is being sent out at present. I have been in touch with UKHSA, NHS England, local Vaccine authority, Haematologist and GP without any joy.
thyreoidea
in
Thyroid UK
10 months ago
covid vaccine
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
My Hematologist suggested I not take the flu or covid vaccine. She is concerned it will trigger another episode of low platelets. I had been in remission for 15 months last year and I thought I had beaten ITP. I got the vaccines last year then about 2 months later my platelets were back down to 1.
joecirillo
in
ITP Support Association
10 months ago
Not what I expected!
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
After feeling unwell, I’ve had a lousy night, tested in the early hours and have Covid! Had the booster 12 days ago and the flu jab on Saturday. it’s Sod’s Law , I was going to say a flare and low adrenal function feels like Covid with Mumps . Hopefully i can get antivirals , they wouldn’t give them
Greensleeves
in
PMRGCAuk
10 months ago
Flue or RLS
as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went
as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went
HipHop1972
in
Restless Legs Syndrome
10 months ago
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