Search
Search
About
Log in
Join
Experiences with
Bacterial infections
Posts
Communities
28,723 public posts
Filter results
Slow burn flare, following latest Covid vaccine.
It started with extreme fatigue - unable to keep my eyes open. Now I am finding it hard to walk and have significant back, knee, neck and head pain. A complete eye Heath check where nothing of concern was found yesterday required 2 hours sleep to recover. I am doubling my 5 mgs dose to do sick day rules
It started with extreme fatigue - unable to keep my eyes open. Now I am finding it hard to walk and have significant back, knee, neck and head pain. A complete eye Heath check where nothing of concern was found yesterday required 2 hours sleep to recover. I am doubling my 5 mgs dose to do sick day rules
SheffieldJane
in
PMRGCAuk
9 months ago
steroid advice
I have had a very bad cold for over two weeks cough has become unbearable… saw doctor today. Has prescribed prednisolone 30 mgs for 5 days…can I then go straight back to my 2mgs I take daily. I have been given antibiotics as well. thank you all in advance
I have had a very bad cold for over two weeks cough has become unbearable… saw doctor today. Has prescribed prednisolone 30 mgs for 5 days…can I then go straight back to my 2mgs I take daily. I have been given antibiotics as well. thank you all in advance
Reddev
in
PMRGCAuk
6 months ago
Covid Jab.
I've had my covid jab on 12/10/23.I'm alive ( yaaaaaay) , however like the previous jabs this one too has slowed me down too & it takes 48hrs for me to get back to normal & it's no different from having the flu jab. To me it's worth my life & I can now focus on getting over the hurdle of me getting reacquainted
I've had my covid jab on 12/10/23.I'm alive ( yaaaaaay) , however like the previous jabs this one too has slowed me down too & it takes 48hrs for me to get back to normal & it's no different from having the flu jab. To me it's worth my life & I can now focus on getting over the hurdle of me getting reacquainted
DodgeDhanda
in
Anxiety and Depression Support
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Covid vaccine after ribuximub
how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I can’t seem to find any information regarding this . If any one can help l would be grateful thank you
how long should l wait after having ribuximub to have my Covid booster. I had my infusion 3 weeks ago and have had 2 texts inviting me to get my booster. I can’t seem to find any information regarding this . If any one can help l would be grateful thank you
artists
in
Vasculitis UK
9 months ago
Has anyone succeeded using bluetooth microphone to amplify patients voice so it can be heard on bluetooth hearing aids?
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Hi, My wife (78) was diagnosed with PSP about 30 months ago and is in slow decline. Her voice is getting weaker and I am finding it difficult to hear what she says, much of it is mumbled. My hearing aids are bluetooth enabled, so I wondered if anyone had managed to amplify a patient's voice using
Legobuilder
in
PSP Association
4 months ago
Dry achey eyes
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
I have ET Calr diagnosed 5 years ago on Hydroxycarbamide. Recently I have had problems with my eyes. Very achey, dry, frequent styes. My GP gave me eyedrops for the dry eyes, which have helped but the eye ache is still a problem. Anyone else experienced this?
Pippapot
in
MPN Voice
10 months ago
cold weather
is it just me or has this Uk cold weather worsened symptoms? My chest feels tight I’m wheezy ! Ugh I hate winter
is it just me or has this Uk cold weather worsened symptoms? My chest feels tight I’m wheezy ! Ugh I hate winter
Hiddenhidden224
in
Asthma Community Forum
6 months ago
Left Ventricle?
Hi..had an echocardiogram yesterday and the radiologist is referring me to the cardeologist because she said she can't tell if my left ventricle is operating at optimal capacity...right away I'm spooked by this...since lockdown in 2020 I've gone from 4-5 days of 45 mins on the treadmill and moderate
Hi..had an echocardiogram yesterday and the radiologist is referring me to the cardeologist because she said she can't tell if my left ventricle is operating at optimal capacity...right away I'm spooked by this...since lockdown in 2020 I've gone from 4-5 days of 45 mins on the treadmill and moderate
Yankee71
in
British Heart Foundation
9 months ago
shingles vax
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
I’ve tapered down to 5mg of prednisone over the last 8 months and so far my PMR is at acceptably low levels. I’ve been offered the shingles vaccine and wondering whether to have it. What is your advice?
Knarllyknees
in
PMRGCAuk
6 months ago
my egfr jumped
A few months ago is was 48 ...My last test was 69. I am wondering if this is real ordue to the fact that I had a steroid injection...my thyroid is finally somewhat under control...has anyone had this happen or is it just a fluke test...I am hoping it stays like that of course.
A few months ago is was 48 ...My last test was 69. I am wondering if this is real ordue to the fact that I had a steroid injection...my thyroid is finally somewhat under control...has anyone had this happen or is it just a fluke test...I am hoping it stays like that of course.
tresa56
in
Kidney Disease
9 months ago
CRP 220
Currently in hospital with Pneumonia. My CRP was 180 on Saturday and went up to 220 on Monday. Medics are going to do a procalcitonin blood test which I've never heard of. Could one of you very clever forum members enlighten me
Currently in hospital with Pneumonia. My CRP was 180 on Saturday and went up to 220 on Monday. Medics are going to do a procalcitonin blood test which I've never heard of. Could one of you very clever forum members enlighten me
Phoebess
in
Vasculitis UK
6 months ago
Having no temperature
Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there anyone who does get a temperature when they are ill? I’ve currently got the flu and chest pains with a chesty cough. I have feverish symptoms with
Hi, having lupus, we are prone to having lots of infections. I do not generally get a temperature with an infection as body does not fight it off. Is there anyone who does get a temperature when they are ill? I’ve currently got the flu and chest pains with a chesty cough. I have feverish symptoms with
Zainy10
in
LUPUS UK
6 months ago
Ear infection
Hi everyone I post about my ear infection before you know. Still I have infection fluid in my ear. 2 weeks ago ENT community service did micro-suction in my ear I feel bit okay but again fluid coming and feel really uncomfortable . I went Gp last monday they put me again antibiotics co amoxiclav
Hi everyone I post about my ear infection before you know. Still I have infection fluid in my ear. 2 weeks ago ENT community service did micro-suction in my ear I feel bit okay but again fluid coming and feel really uncomfortable . I went Gp last monday they put me again antibiotics co amoxiclav
sun_1234
in
Tinnitus UK
11 months ago
Steroid injections
I am waiting for a private appointment x 2 for steroid injections at the back of my head-one left and one right done on different dates. Just wondering if i take my normal Pred each time. I am currently on 3.5mg.
I am waiting for a private appointment x 2 for steroid injections at the back of my head-one left and one right done on different dates. Just wondering if i take my normal Pred each time. I am currently on 3.5mg.
Purplegloss
in
PMRGCAuk
9 months ago
Covid
Hi all.So, I'm now on my 4th bout of covid. I am not really so surprised I'm stuck with heart problems. I guess it can only get worse. Has anyone else had covid 4 times, or at least more than once? I want to point out that I am a healthcare worker and have been vaccinated, although I don't believe
Hi all.So, I'm now on my 4th bout of covid. I am not really so surprised I'm stuck with heart problems. I guess it can only get worse. Has anyone else had covid 4 times, or at least more than once? I want to point out that I am a healthcare worker and have been vaccinated, although I don't believe
Blackwolf_7619
in
British Heart Foundation
9 months ago
Am I at a higher risk from Covid ?
Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see
Hi, Ive seen on MPN voice and here that people with an MPN are at a higher risk from Covid. I have ET which is currently being treated with Pegasys and Aspirin. Am I classed as vulnerable? There is an option at work to have a special risk assessment if i am. I didnt ask my consultant and now wont see
Scarlett500
in
MPN Voice
9 months ago
Covid booster..good news story
We are all different, and respond differently to meds, vaccines, etc. I thought I'd post to say I had both my Covid booster (my 7th covid jab to date) and my flu jab on Sat. I had a slightly sore arm, and that was it. The least reaction I've had to date. BTW I was Pfizered, like in the spring. I
We are all different, and respond differently to meds, vaccines, etc. I thought I'd post to say I had both my Covid booster (my 7th covid jab to date) and my flu jab on Sat. I had a slightly sore arm, and that was it. The least reaction I've had to date. BTW I was Pfizered, like in the spring. I
greynot
in
NRAS
9 months ago
Shaking Body & Cold Clammy Hands
Hi all Fortunately my AF episodes are few & far between 🤞, therefore I just take Flecainide as PIP when it kicks off, which it did at 1am this morning. I got up to go to the loo & when I got back to bed I couldn’t stop shaking, I was so cold, then the AF started. My question is does anyone suffer
Hi all Fortunately my AF episodes are few & far between 🤞, therefore I just take Flecainide as PIP when it kicks off, which it did at 1am this morning. I got up to go to the loo & when I got back to bed I couldn’t stop shaking, I was so cold, then the AF started. My question is does anyone suffer
heartmatters1
in
AF Association
6 months ago
New research - COVID-19 Tied to Autoimmune Disease Risk
Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to Autoimmune Disease Risk Lucy Hicks October 06, 2023 TOPLINE: Research from Korea provides additional evidence for the connection between COVID
Hi all - I know PMR/GCA are not mentioned but some consider there is an autoimmune element at least so - sharing an abstract. COVID-19 Tied to Autoimmune Disease Risk Lucy Hicks October 06, 2023 TOPLINE: Research from Korea provides additional evidence for the connection between COVID
MDT1
in
PMRGCAuk
9 months ago
detailed lecture on why t-cell response to covid or other pathogens can be more important then antibodies
Hi everyone , i posted a link to a dr. campbell recently about a new experimental vaccine for skin cancer etc. ... just for the record ; he is not someone i go to for detailed medical information none the less ; thank you to those who responded to my post .. Here is a link to my favorite medical
Hi everyone , i posted a link to a dr. campbell recently about a new experimental vaccine for skin cancer etc. ... just for the record ; he is not someone i go to for detailed medical information none the less ; thank you to those who responded to my post .. Here is a link to my favorite medical
craterlake
in
CLL Support
9 months ago
1
...
59
60
61
...
100
Next page
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Lung Conditions Community Forum
2969 results
Fertility Network UK
2826 results
NRAS
2361 results
View top 10 communities
Sort by
Most Relevant
Newest