Flue or RLS: as I mentioned a day or so... - Restless Legs Syn...

Restless Legs Syndrome

22,319 members16,384 posts

Flue or RLS

HipHop1972 profile image
26 Replies

as I mentioned a day or so back I had my flue jab last Sunday 1st October and my RLS has got progressively worse Monday and Tuesday virtually all day and constant headaches. Went to bed at 9.45 Monday night woke at 11.30 pm had to get up and walk around tried to go back to sleep by gave up till 6am went to bed and up again at 7.15am wasn’t much better on Sunday and nothing helps not the Solpadeine or the 1mg Ropinirole I take at 8.30pm. I have my Covid jab on Friday 6th October and am wondering if it’s worth it. Having been feeling really positive I’m now back to the really bad old days when I wasn’t sleeping and nodding off while standing up.

Sorry for the moan but had to get it off my chest and would be interested to hear if anyone else suffered a bad resurgence of their RLS post FLU jab and or COVID booster.

As Looney Tunes cartoons end with, That’s All Folks !!

Written by
HipHop1972 profile image
HipHop1972
To view profiles and participate in discussions please or .
Read more about...
26 Replies
SueJohnson profile image
SueJohnson

It's the inflamation from the shot. It will go away shortly

HipHop1972 profile image
HipHop1972 in reply toSueJohnson

Thanks Sue I really do hope so and am thinking I should have had the Flue and COVID shots at the same time and got this blip over and done with all in one. Do you ever sleep Sue as you are usually the first person to reply to our posts, no matter what time we send them ha ha.

SueJohnson profile image
SueJohnson in reply toHipHop1972

Luckily unlike so many others I do sleep. I get up early though - 4:30 to 5 and I am in the US.

HipHop1972 profile image
HipHop1972 in reply toSueJohnson

Well that is good but still very early ha ha and there was I thinking you were Canadian, must have been thee ice hockey 🤣and legs have settled down just like you said they would 🥳

SueJohnson profile image
SueJohnson in reply toHipHop1972

I do play ice hockey.

HipHop1972 profile image
HipHop1972 in reply toSueJohnson

What a very violent game, watched USA play Russia a lifetime ago and they looked like they wanted to kill each other 🤣🤣

SueJohnson profile image
SueJohnson in reply toHipHop1972

That's men's hockey. Women's hockey doesn't allow checking and if someone accidently runs in to someone and knocks them down which is rare they apologize, ask if they are hurt and helps them up. It's a great game and lots of fun!

HipHop1972 profile image
HipHop1972 in reply toSueJohnson

I’m sure it is fun and great to find a game that has respect for the opponent. 🥇😀

SueJohnson profile image
SueJohnson in reply toHipHop1972

Yep and I'm 83.

Moonwalker1967 profile image
Moonwalker1967

Thanks for the warning!

HipHop1972 profile image
HipHop1972 in reply toMoonwalker1967

I don’t think I should have posted about Flue shot and the effect on my RLS, I’m sure Sue is correct and that it’s the inflammation of the shot and that it will pass as the last thing I want to do is put anyone off getting either the Flue and or the Covid booster as they are extremely important and I think we need to embrace them even if we suffer heightened RLS short term.

So apologies, I should have considered the negative effect my post may have had. 😔 so ime now confined to the naughty stem for the day 😂

lorrinet profile image
lorrinet in reply toHipHop1972

My nephew had three strokes a few days after the booster; he was partially paralysed AND his RLS got much worse. He is still recovering, almost has his speech back and the RLS has returned to normal, thankfully.

HipHop1972 profile image
HipHop1972 in reply tolorrinet

Hello lorrinet so sorry about your nephew that’s a terrible thing to happen and did they confirm that the flue jab was the cause. Glad he is making a recovery, had he had the flue jab previously? but you can never tell what reaction a person may experience with medication. Best wishes and hope your nephew continues to improve.

HipHop1972 profile image
HipHop1972 in reply tolorrinet

Hello again lorrinet. Apologies but I thought you were referring to the flue jab, but think now you were referring to the COVID booster and I can understand that better than from the flue jab. Still a very sad and tragic story 🤗

lorrinet profile image
lorrinet in reply toHipHop1972

Yes, it was the covid booster. He had to have it or lose his job - that's the wickedness of it. His parents live in N Cyprus now and they took him to a consultant there who confirmed the cause. He has tiny blood clots all around his brain, so life is always a worry.

HipHop1972 profile image
HipHop1972 in reply tolorrinet

Hello lorrinet, have it or lose your job and in your nephews case, job or life. You do read some tragic stories but I think it’s not that common to have such extreme reactions but your nephew was unfortunately one of the unlucky ones. I’ve currently had 5 COVID jabs without any appreciable side effects so I’m fortunate and hope that number 6 which is tomorrow isn’t the exception.

Take care it’s a very worrying time for the family 🤗

in reply tolorrinet

Hi Lorrinet, how long ago (about) did this happen to your nephew? Was it the AstraZeneca Covid 19 booster?

lorrinet profile image
lorrinet in reply to

Yes, I believe that was the one. I don't remember exactly when it happened, but itwas more than a year ago. The first stroke was six days after the booster, followed by the second one hours later in hospital. The third was about a week later, and that one laid him out. His GP refuses to say it was the jab, but the consultant in Northern Cyprus confirmed that it was. He was given no examination here, the hospital didn't want to know, even though he was in a wheelchair, partially paralysed and with slurred speech. He reported it on the Yellow Card system himself.

I also have a friend who was totally paralysed after her booster for three weeks with agonising pain all over her body. She is walking again, not like before, but reasonably well, some six months later.

in reply tolorrinet

AstraZenneca was pulled in/by the UK in 2022, probably because of these rare, but life threatening side effects. The AZ vaccine was based on a weakened adenovirus, NOT the MRNA spike protein that Pfizer and Moderna use. I guess our bodies are more likely to over react to a virus (even a weakened one) than a piece of protein from a virus that it uses to gain entry to our cells.

Hands down, the blue ribbon winner in terms of causing potentially lethal clotting is Covid 19 itself. It’s enough to scare me into going for yet another vaccination:

heart.org/en/news/2022/09/1...

Thankfully, it seems the newer Covid strains, generally called the Omicron variant, are less likely to cause these lethal clots, especially compared to the Alpha and Delta variants, where up to 20% of hospitalized patients were found to have these clots.

Sending healing thoughts to your loved ones 🌹

EDIT: Should throw the Johnson & Johnson vaccine in there. It too used an adenovirus and had the rare side effect of excessive clotting:

“Instead of using mRNA, the Johnson & Johnson vaccine uses a disabled adenovirus to deliver the instructions. This adenovirus is in no way related to the coronavirus. It is a completely different virus.”

Some countries stopped using this one as well.

lorrinet profile image
lorrinet in reply to

I had a bad bout of covid very early. My family all got it from me but none of them had it badly. When I had a blood test nine months later I had a full covid antibody count. So I never got the vaccination. None of us did. Meanwhile, the lady across the road is fully vaxxed and when I saw her last she was recovering from her third bout of covid.

My son's girlfriend's sister's boyfriend had his second jab in '21 and died in his sleep the same night. He was 24 years old with no health issues. You must do what you feel is best for you of course, but I have to disagree with you....these dreadful reactions are not rare, and I believe, sadly, that time will show that to be so.

in reply tolorrinet

The virus definitely won. The vaccine keeps people out of the hospital and from dying, but it doesn’t seem to do a very good job at preventing contraction. You’re right, I will continue to get vaccinations of all kind. ncbi.nlm.nih.gov/pmc/articl...

The anti-vaxxers are all bullies and liars and they seem to be the same people who shove religion down people’s throats. I’ll continue to listen to the experts. The MRNA vaccines have been around a long time - before Covid, and by this point, 10s of billions of shots worldwide have been given and we’re coming up on three years. So time won’t show us anything because the time for showing has passed my friend. If people were dropping like flies from the Covid vaccines we would all know about it and countries would be pulling them out of circulation left and right. They’re safe, period.

Nothing in life is a 100% safe, as the above article states. Not milk, not nuts, not Tylenol. I can practically guarantee more people, on a pro-rata basis, have had adverse reactions or died from iron infusions and opiates (not talking about overdoses either) than MRNA vaccines. ashpublications.org/blood/a...

Just can’t go along with these far right wing idiotic conspiracy theorists who smoke, drink, eat Big Macs every night for dinner, but oh yeah, the vaccines will kill you 😂. If you trust the Mayo Clinic for advise about RLS then I recommend you trust them regarding vaccines.

lorrinet profile image
lorrinet in reply to

No, I've seen too much damage. I have a cousin who, back in the 50s, was crippled by a Polio vaccine. We were both children when it happened, and I can still see him in his calipers, poor little soul. More recently, my great-niece was damaged by the MMR. It was horrifying to see all the normal progress she'd made by 14 months old just slip away overnight, to leave a child who couldn't even raise her head. She's 15 now, a delightful child still, but she will always need care.

I will never have another vaccine for anything, because I just don't trust Big Pharma. As it happens, I have terminal cancer anyway so the question won't occur.

I wish you all the best with your decisions; I'm sure you have put great thought into it.

HipHop1972 profile image
HipHop1972 in reply tolorrinet

Hello lorrinet, what a very sad and sobering storey and am so sorry to hear about your cancer. I do consider myself very fortunate that neither myself or the rest of my family have suffered adverse effects from receiving inoculations for either childhood illnesses up to adulthood and finally Flue and Covid of which I have 6 of the latter including Astra Zeneca, Moderna, Pfizer, Comernary and Sanofi which is why I feel fortunate and dreadful for those who have life changing effects from inoculations. My wife had a very rare incorrectly diagnosed bowel cancer but we went for second opinion and she was operated on as matter of urgency by a great team at an alternative Hospital. She was offered Chemotherapy but opted not to have it, that was 15 years ago and 15 years we may not have had together.

I am so very very sorry to read your final paragraph and wish you all the strength you can draw on to see you through 🤗🤗

SueJohnson profile image
SueJohnson in reply tolorrinet

Oh that's terrible!

Ticki profile image
Ticki

That’s terrible. I’m so sorry that affected you so vicious , I had my flu shot and shingles shots on October 2 and luckily I had no problem except for the doll ache in my arm. It just always throws me what can cause some flareups on some of us and not on others. It’s such a crap shot I do hope it wears off for you soon. ❤️‍🩹

HipHop1972 profile image
HipHop1972 in reply toTicki

Hi Ticki, thanks for reply and sympathy but Sue was right when she said it would wear off as it has done and am now back to pre jab 🤣🤣. When I was a boy my parents moved out to Africa and a Ticki, if pronounced as spelt, was a small coin worth 6p. But I’m sure that you are priceless 🤣🤣😎

Not what you're looking for?

You may also like...

An update on my husband’s battle with RLS

We’ve asked this group for help and followed your guidelines re:  timing and type of iron, timing...
DreamerTED profile image

Diary of a week with RLS - what I am taking to show my GP next week

Diary snapshot of a week in my life living with RLS - apologies for miss spellings! Weekend of...
SteveT profile image

RLS, Frustration, Meds, Withdrawal, Anger, Etc.

So, I called the Dr on Monday to let him know the Mirapex wasn't working. I had to leave a message,...
ookla profile image

Does your RLS go away when you are ill?

This might sound strange, but if I get physically ill, my RLS seems to virtually disappear....
Mattly profile image

INTRO – But Might Not Have RLS?

Back in 2013 (at the age of 62), I started taking each night pramipexole 0.25mg and clonazepam...
GrandMAptm profile image

Moderation team

Kaarina profile image
KaarinaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.