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Patient-Initiated Follow-Up appointments survey
NHS England are currently transforming the way outpatient services are delivered across all health areas and as part of this, have suggested that people with stable inflammatory arthritis should not continue to have regular annual or six-monthly appointments to see their rheumatology-team but only see
NHS England are currently transforming the way outpatient services are delivered across all health areas and as part of this, have suggested that people with stable inflammatory arthritis should not continue to have regular annual or six-monthly appointments to see their rheumatology-team but only see
Hidden
Partner
in
NRAS
1 year ago
Pain in top of both feet
Hi. I have fibo and arthritis. I have just had methotrexate increased to 17.5 each week by pen jag. I have recently started having pain across top of my feet walking or sitting still. Usually one at a time. I am not sure if this caused by my fibo. Has anyone any experience of this type of pain. Thanks
Hi. I have fibo and arthritis. I have just had methotrexate increased to 17.5 each week by pen jag. I have recently started having pain across top of my feet walking or sitting still. Usually one at a time. I am not sure if this caused by my fibo. Has anyone any experience of this type of pain. Thanks
Jonn9
in
Fibromyalgia Action UK
1 year ago
Wood-burning stoves may raise risk of arthritis
Article in the Times https://www.thetimes.co.uk/article/7cfc70ba-eea0-11ed-b02d-cefaa3091195?shareToken=8cef518770ce3d9f551ad9573e62126b
Article in the Times https://www.thetimes.co.uk/article/7cfc70ba-eea0-11ed-b02d-cefaa3091195?shareToken=8cef518770ce3d9f551ad9573e62126b
Bookworm55
in
NRAS
1 year ago
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Fibromyalgia related?
Not really sure I can explain this properly but I have a weird sensation mainly in my back like tingling although I sometimes feel it's like something crawling under my skin to. I have fibro arthritis hypothyroidism and going through menopause I also have angina
Not really sure I can explain this properly but I have a weird sensation mainly in my back like tingling although I sometimes feel it's like something crawling under my skin to. I have fibro arthritis hypothyroidism and going through menopause I also have angina
jojotom
in
Fibromyalgia Action UK
1 year ago
Inspiring case
Three years after a battle with rheumatoid arthritis led to her retirement, Caroline Wozniacki is making a comeback on the WTA Tour. https://twitter.com/TimesSport/status/1674455183194218497
Three years after a battle with rheumatoid arthritis led to her retirement, Caroline Wozniacki is making a comeback on the WTA Tour. https://twitter.com/TimesSport/status/1674455183194218497
nily
in
NRAS
1 year ago
Changes to PIP
I am 66 years of age and now officially retired. I am claiming PIP due to arthritis in lower back. Since then I am waiting for a formal diagnosis for Rheumatoid arthritis. I am due for review late next year for PIP. As now a pensioner am I still entitled to show my change of circumstances in the last
I am 66 years of age and now officially retired. I am claiming PIP due to arthritis in lower back. Since then I am waiting for a formal diagnosis for Rheumatoid arthritis. I am due for review late next year for PIP. As now a pensioner am I still entitled to show my change of circumstances in the last
Noni66
in
NRAS
1 year ago
Occupational health
Hi everyone, I have recently got a new position and because of my Fibromyalgia and Rheumatoid Arthritis, I have to have an Occupational health assessment. Any ideas what I should expect etc? I’m worried I won’t get the job. many thanks, Xx
Hi everyone, I have recently got a new position and because of my Fibromyalgia and Rheumatoid Arthritis, I have to have an Occupational health assessment. Any ideas what I should expect etc? I’m worried I won’t get the job. many thanks, Xx
Smiler69
in
Fibromyalgia Action UK
1 year ago
Adalimumab (Idacio)
I’ve been injecting this since last November. I noticed most people are using this alongside another medication. I’m not and I really don’t think it’s working well. I have had to give up on Sulfasalazine and Methotrexate so wondering what else could be offered. I have high blood pressure so not sure
I’ve been injecting this since last November. I noticed most people are using this alongside another medication. I’m not and I really don’t think it’s working well. I have had to give up on Sulfasalazine and Methotrexate so wondering what else could be offered. I have high blood pressure so not sure
barbieg
in
NRAS
1 year ago
Adalimumab
Hi, I've had psoriatic arthritis for years , Leflunomide is no longer working for me so I have been put on Adalimumab - did my first injection one week ago and have started feeling quite dizzy and nauseous, Just wondered if any one else has experienced this early on with this drug ? Thanks
Hi, I've had psoriatic arthritis for years , Leflunomide is no longer working for me so I have been put on Adalimumab - did my first injection one week ago and have started feeling quite dizzy and nauseous, Just wondered if any one else has experienced this early on with this drug ? Thanks
cavapoomum
in
NRAS
1 year ago
Breathless ,mucus
Hi its Alice I have been away from this comuity for a good while been dealing with rheaumatiod arthritis , polymyligia reaumatica ,and sciatica lick pain ,feel as though I've been in the wars ,what it is though since been on continual prednisalone (down to 11mgs now) and hydroxychloroquine given for
Hi its Alice I have been away from this comuity for a good while been dealing with rheaumatiod arthritis , polymyligia reaumatica ,and sciatica lick pain ,feel as though I've been in the wars ,what it is though since been on continual prednisalone (down to 11mgs now) and hydroxychloroquine given for
Alice70
in
Lung Conditions Community Forum
1 year ago
Low blood pressure
I have GCA with Takayasu
Arteritis
. I am taking Clopidogrel/ Atorvastatin/ Bisoprolol/ Tocilizumab (3 monthly), yesterday my blood pressure was 92/80. It was taken at the hospital as the doctor’s surgery can’t find it, or my pulse. I emailed my Dr with the result, and she rang me today.
I have GCA with Takayasu
Arteritis
. I am taking Clopidogrel/ Atorvastatin/ Bisoprolol/ Tocilizumab (3 monthly), yesterday my blood pressure was 92/80. It was taken at the hospital as the doctor’s surgery can’t find it, or my pulse. I emailed my Dr with the result, and she rang me today.
MrsChips
in
Vasculitis UK
1 year ago
Tips on testing
Hi, I have a GP appointment next Monday to request that I be tested for arthritis. Can I please get an outline of the most comprehensive tests that I can hope to get from the GP? Also, thinking ahead to the blood draw, is there a particular protocol that I should follow? Many thanks 🙏
Hi, I have a GP appointment next Monday to request that I be tested for arthritis. Can I please get an outline of the most comprehensive tests that I can hope to get from the GP? Also, thinking ahead to the blood draw, is there a particular protocol that I should follow? Many thanks 🙏
J972
in
NRAS
1 year ago
Prednisolone and osteoarthritis
As I posted recently, after more than a year of taking 2.5 mg of pred daily, at long last I had an appointment with a rheumatologist who advised me to reduce to 2 mg and then by 0.5 mg reductions at intervals to get down to zero pretty quickly. I'd experienced before that when I reduced my pred dose
As I posted recently, after more than a year of taking 2.5 mg of pred daily, at long last I had an appointment with a rheumatologist who advised me to reduce to 2 mg and then by 0.5 mg reductions at intervals to get down to zero pretty quickly. I'd experienced before that when I reduced my pred dose
Marijo1951
in
PMRGCAuk
1 year ago
✈️💼 Traveling with Rheumatoid Arthritis (RA) can be overwhelming, but don't let it ground your wanderlust! 🌍✨
In our latest blog post, we list our top 5 tips when flying with RA. From managing joint pain during long flights to navigating airport accessibility, we've got you covered. 💪💙 Read now👉 https://nras.org.uk/resource/top-5-tips-on-flying-with-rheumatoid-arthritis/
In our latest blog post, we list our top 5 tips when flying with RA. From managing joint pain during long flights to navigating airport accessibility, we've got you covered. 💪💙 Read now👉 https://nras.org.uk/resource/top-5-tips-on-flying-with-rheumatoid-arthritis/
Aribah-NRAS
NRAS
in
NRAS
1 year ago
Totally desperate and abandoned (sorry- this is a long rant)
After several relapses, and a PET-CT scan revealing I additionally had severe large vessel
arteritis
, my Consultant managed to get me on self-injected Ro-Actemra. This worked miraculously for me- no side effects, no illnesses (apart from a slight cold last year).
After several relapses, and a PET-CT scan revealing I additionally had severe large vessel
arteritis
, my Consultant managed to get me on self-injected Ro-Actemra. This worked miraculously for me- no side effects, no illnesses (apart from a slight cold last year).
Suzita76
in
PMRGCAuk
1 year ago
What helps you?
Hi, I have painful arthritis in my fingers, I'm still working and typing every day which doesn't help.I currently just use ibuprofen gel 10 percent and not much else, apart from hot/cold packs which only have a temporary effect. I'm looking for additional help with pain and swelling so wondered if any
Hi, I have painful arthritis in my fingers, I'm still working and typing every day which doesn't help.I currently just use ibuprofen gel 10 percent and not much else, apart from hot/cold packs which only have a temporary effect. I'm looking for additional help with pain and swelling so wondered if any
Diamond61
in
Arthritis Action
1 year ago
Supplements for arthritis and rivaoxaban
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Hi all My husband has paroxysmal AF and a pacemaker takes digoxin and Rivaoxaban. He has slight arthritis in both knees(too much playing hockey in his younger days!) and not bad enough to take painkillers all the time. Bothers him the most after sitting for a while and then moving again. Before his
Janau
in
Atrial Fibrillation Support
1 year ago
polymyalgia rheumaticia and connective tissue disorder
Dear friends, just wondering if anyone else has developed PMR as well as CTD/ fibro,inflammatory arthritis?
Dear friends, just wondering if anyone else has developed PMR as well as CTD/ fibro,inflammatory arthritis?
UCTD
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
1 year ago
Fibro pain
I was diagnosed last year with fibro, CFS & ME.I do have osteoarthritis in my knees, hips and lower back. Pain is worse on some days more than others, but I'm struggling to differentiate fibro pain. Could you describe your fibro pain for me please?
I was diagnosed last year with fibro, CFS & ME.I do have osteoarthritis in my knees, hips and lower back. Pain is worse on some days more than others, but I'm struggling to differentiate fibro pain. Could you describe your fibro pain for me please?
Alsithee4
in
Fibromyalgia Action UK
1 year ago
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