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Diagnosis ,please
I have been seeing a rheumatologist for 3 years now. The one I was seeing retired and I have a younger Dr. that seems to care . I was told by him that my ANA markers are consistent with Lupus and RA . I have several "active" diagnoses ,RA, PMR, Osteo arthritis, and osteoporosis, but the old Dr. would
I have been seeing a rheumatologist for 3 years now. The one I was seeing retired and I have a younger Dr. that seems to care . I was told by him that my ANA markers are consistent with Lupus and RA . I have several "active" diagnoses ,RA, PMR, Osteo arthritis, and osteoporosis, but the old Dr. would
420pain
in
LUPUS UK
1 year ago
PMR or psoriatic arthritis
Hi everyone and thank you for the invaluable advice you have given over my journey of PMR After two years on pred I have only just managed to get down to 6.5mg continually using the DSNS method I saw my rheumy last week who believes I may not actually have PMR but psoriatic arthritis due to the fact
Hi everyone and thank you for the invaluable advice you have given over my journey of PMR After two years on pred I have only just managed to get down to 6.5mg continually using the DSNS method I saw my rheumy last week who believes I may not actually have PMR but psoriatic arthritis due to the fact
Storm-boy
in
PMRGCAuk
1 year ago
seronegative arthritis
Hi everyone I feel very sad that for 5 years have been on steroids and now it looks like I have seronegative arthritis with massively damaged knee and had op to tidy up cartilage and remove bone spur but still having trouble with pain swelling and my other knee too has started to hurt- o It could be
Hi everyone I feel very sad that for 5 years have been on steroids and now it looks like I have seronegative arthritis with massively damaged knee and had op to tidy up cartilage and remove bone spur but still having trouble with pain swelling and my other knee too has started to hurt- o It could be
bakingD
in
PMRGCAuk
1 year ago
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Laser
Hi I have osteoarthritis in both ankles and hands , I wondered if anyone has tried laser treatment ? The current treatment is injections or fusion, injections worked until l had a UTI then flared so looking at trying laser but not sure it it really will help? Thanks in advance
Hi I have osteoarthritis in both ankles and hands , I wondered if anyone has tried laser treatment ? The current treatment is injections or fusion, injections worked until l had a UTI then flared so looking at trying laser but not sure it it really will help? Thanks in advance
Hidden
in
Cure Arthritis Community
1 year ago
Osteoarthritis / Bone Edema / Injections / Hip Replacement
HI, I'm 45, I have been managing Osteoarthritis / Hip Bone Edema for 2.5 years. Pain has increased steadily over the past few months and I now can't walk more than 1mile / 6,000 steps a day without having to rest for 3/4 days after, another complication is if I do push it and do too much over a few
HI, I'm 45, I have been managing Osteoarthritis / Hip Bone Edema for 2.5 years. Pain has increased steadily over the past few months and I now can't walk more than 1mile / 6,000 steps a day without having to rest for 3/4 days after, another complication is if I do push it and do too much over a few
kjm_25
in
Pain Concern
1 year ago
3B and falling fast
Comorbidities are Polymyalgia Rheumatica , Giant Cell
Arteritis
, MGUS, resistant hypertension. This morning was 185/107 on 80mg. Valsartan 2x, 40mg. verapimil 2x. Kidney doctor just put in a prescription for clonipin patch.
Comorbidities are Polymyalgia Rheumatica , Giant Cell
Arteritis
, MGUS, resistant hypertension. This morning was 185/107 on 80mg. Valsartan 2x, 40mg. verapimil 2x. Kidney doctor just put in a prescription for clonipin patch.
phebamom
in
Kidney Disease
11 months ago
Tiredness - can anyone suggest ways to help with tiredness caused by rheumatoid arthritis?
My drugs are controlling the inflamation caused by RA, but I am still very tired, not able to do the amount I used to do. Any ideas other than pacing myself? Any good vitamins etc? thanks
My drugs are controlling the inflamation caused by RA, but I am still very tired, not able to do the amount I used to do. Any ideas other than pacing myself? Any good vitamins etc? thanks
kormacurry
in
NRAS
1 year ago
Fatty Liver
Hello everyone. A haematologist rang me yesterday and said I have a macrocytosis with no anaemia. My red blood cells are too large. She wants further blood tests and a liver scan. She mentioned fatty liver. I am concerned as I already have a liver enzyme not working now this. Appreciate any help. Thanks
Hello everyone. A haematologist rang me yesterday and said I have a macrocytosis with no anaemia. My red blood cells are too large. She wants further blood tests and a liver scan. She mentioned fatty liver. I am concerned as I already have a liver enzyme not working now this. Appreciate any help. Thanks
Meerkat1234
in
Thyroid UK
1 year ago
Synovial chondromatosis / orthopaedic surgeon visit
Hi, RosieA suggested I share news about my visit to the orthopaedic surgeon which was yesterday. The surgeon said that since the medication that I've been taking for psoriatic arthritis (sulfasalazine, methatrexate and golimumab) has had seen no reduction in the inflammation of the synovium in
Hi, RosieA suggested I share news about my visit to the orthopaedic surgeon which was yesterday. The surgeon said that since the medication that I've been taking for psoriatic arthritis (sulfasalazine, methatrexate and golimumab) has had seen no reduction in the inflammation of the synovium in
acousmetre
in
NRAS
1 year ago
PMR turns into 3 things, per my Rheumo
I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had
I had PMR and on Predisone for 1 1/2 years, and off of it for 5 months. I have bad pain in all joints/muscles and much stiffness. Inflammatory blood tests are OK - CRP and ESr fairly low, and all autoimmune blood tests OK including Rheumatoid Factor, etc. and temporal Ultrasound OK for GCA. Had
kp60
in
PMRGCAuk
1 year ago
How to pass the day
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
Eternities Day
Dawn whispers to your sleepy ears as nature awakens to herald daybreak. Quiet colours will bless your eyes, as suns soft rays do gently entice those leaden lids to rise and see the glory of my being. Stay with me awhile and see that glowing orb in haloed radiance
cycli
in
PMRGCAuk
1 year ago
rheumatoid in jaw and neck
Has anyone experienced RA spreading to their jaw / neck? The right side of my jaw is stiff and painful every morning, I can’t open it enough to eat breakfast. I also now have pain in the top of my neck everyday (different to pain from sitting at a desk too long or sleeping on it funny!) I was diagnosed
Has anyone experienced RA spreading to their jaw / neck? The right side of my jaw is stiff and painful every morning, I can’t open it enough to eat breakfast. I also now have pain in the top of my neck everyday (different to pain from sitting at a desk too long or sleeping on it funny!) I was diagnosed
Joannahopkins
in
NRAS
1 year ago
General Double-Vision/Arteritis Question
I've been having double vision for at least a year, maybe longer. But it's only when I TILT my head (as opposed to looking side to side). My ophthalmologist said the muscles that control my eye movements are not working right (my words, not his), and that [u]one [/u]of the causes could be GCA (which
I've been having double vision for at least a year, maybe longer. But it's only when I TILT my head (as opposed to looking side to side). My ophthalmologist said the muscles that control my eye movements are not working right (my words, not his), and that [u]one [/u]of the causes could be GCA (which
montebello
in
PMRGCAuk
1 year ago
Treat-to-target recommendations in giant cell arteritis and polymyalgia rheumatica - a very useful reference to show your doctor
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
https://ard.bmj.com/content/early/2023/02/23/ard-2022-223429 This is Open Access so everyone can read it. It is something I think we should all have a read of, some will be beyond most of us and some is just plain boring but there are points in it everyone will understand and can bring to the notice
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
Osteoarthritis in both knees
Hello, Has anyone trued Plasma injections (PRP)? Did they work and are they available on the NHS in the UK? Many thanks!
Hello, Has anyone trued Plasma injections (PRP)? Did they work and are they available on the NHS in the UK? Many thanks!
fluffmonkey
in
NRAS
1 year ago
Arthritis podcast season 2 launches
Hi everyone, We wanted to let you all know that the charity Arthritis Action has launched the first episode of Season 2 of their podcast. The first episode, 'You have arthritis, so what's next?' focuses on getting an arthritis diagnosis. Upcoming episodes will cover a huge range of topics to help
Hi everyone, We wanted to let you all know that the charity Arthritis Action has launched the first episode of Season 2 of their podcast. The first episode, 'You have arthritis, so what's next?' focuses on getting an arthritis diagnosis. Upcoming episodes will cover a huge range of topics to help
arthritis_action
Partner
in
Arthritis Action
1 year ago
Private Specialist recommendations for the North West (UK)
Does anyone have a recommendation for a private specialist for arthritis? My mum is in terrible pain with her hips and the NHS wait is at least a year. We live in Manchester UK Thanks
Does anyone have a recommendation for a private specialist for arthritis? My mum is in terrible pain with her hips and the NHS wait is at least a year. We live in Manchester UK Thanks
Bobbydoodle
in
LUPUS UK
1 year ago
Rheumatoid arthritis fluid in knee
Hey I have rheumatoid arthritis and I was having knee pain and I went to doctors today and I have fluid in my knee is this a common thing? If so how does this happen and what should I do to try and prevent this? Thank you ☺️
Hey I have rheumatoid arthritis and I was having knee pain and I went to doctors today and I have fluid in my knee is this a common thing? If so how does this happen and what should I do to try and prevent this? Thank you ☺️
Moulinr
in
NRAS
1 year ago
Mri scan
So I got my mri results back today. I was negative for hla b27 the mri showed minor wear and tear of all of my spine and inflammation in my pelvis sacroiliac joints as well as the auto immune inflammatory peripheral athritis. Osteoarthritis of both hips too. I'm a bit confused but they are keeping me
So I got my mri results back today. I was negative for hla b27 the mri showed minor wear and tear of all of my spine and inflammation in my pelvis sacroiliac joints as well as the auto immune inflammatory peripheral athritis. Osteoarthritis of both hips too. I'm a bit confused but they are keeping me
Brian1977
in
NRAS
1 year ago
Attendance Allowance for PA Sufferer's
Hi everyone Has anyone with Palindromic Arthritis submitted a claim fro Attendance Allowance? I am in two minds as I need help when PA strikes at various joints and then living a normal life until it returns again Any thoughts welcome
Hi everyone Has anyone with Palindromic Arthritis submitted a claim fro Attendance Allowance? I am in two minds as I need help when PA strikes at various joints and then living a normal life until it returns again Any thoughts welcome
35395
in
NRAS
1 year ago
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