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Aplastic anaemia
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Mexican sarsaparilla ( Smilax aristolochiifolia) for anaemia, CLL
Has anyone heard about this herb for anemia or blood cancer
Has anyone heard about this herb for anemia or blood cancer
Family2017
in
CLL Support
2 years ago
High Neutrophils
I was diagnosed with PA 3 years ago. It runs in my family. I took loading does of methylcobalamin then went to once a month. No doctor ever told me to take folate or adenosyl. I recently learned that folate is a vital co-factor. Started 5 mg folate daily, loading doses of cyanocobalamin daily
I was diagnosed with PA 3 years ago. It runs in my family. I took loading does of methylcobalamin then went to once a month. No doctor ever told me to take folate or adenosyl. I recently learned that folate is a vital co-factor. Started 5 mg folate daily, loading doses of cyanocobalamin daily
Auburn9144
in
Pernicious Anaemia Society
2 years ago
Feeling worse after B12 Injections
Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with heart palpitations, fatigue, severe anxiety, inability to focus, and some vision issues. I was diagnosed with generalized anxiety disorder and
Hi all, I am a 21 y/o male who eats meat and was diagnosed with a B12 deficiency (not PA) about 2 months ago. I went into the walk-in about 3 months ago with heart palpitations, fatigue, severe anxiety, inability to focus, and some vision issues. I was diagnosed with generalized anxiety disorder and
juanpablo111
in
Pernicious Anaemia Society
2 years ago
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Am Iwell?
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
I have my bi-monthly consultant review next week, which always starts with the question, well how are you? My usual reaction, is that perhaps you should tell me! I have just got the results (After 1 hour) of my latest blood test but I'm not sure which questions to ask. I started treatment with 6xRituximab
Dawson21
in
CLL Support
2 years ago
help please, migraine meds
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
turquoisea7
in
Thyroid UK
1 year ago
Questions & Advice for a newbie please!
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Hi all, I've been investigating possible causes of long-term fatigue. My symptoms & PA risk factors are listed below. I'm currently waiting on results for the Intrinsic factor antibodies test (bloods taken over 2 weeks ago through GP). On advice of a nutritionist I've been taking an oral B complex,
Spiralizer
in
Pernicious Anaemia Society
2 years ago
Folate deficiency
Please can you give me some advice as to what supplement should be take for a folate deficiency. Is it folic acid tablets or folate tablets? I am somewhat confused. Also what is the optimal folate level for a person with Hashimotos? Thanks in advance
Please can you give me some advice as to what supplement should be take for a folate deficiency. Is it folic acid tablets or folate tablets? I am somewhat confused. Also what is the optimal folate level for a person with Hashimotos? Thanks in advance
Pinkisland
in
Thyroid UK
2 years ago
IFAB testing guidelines per Mayo clinic laboratory website
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
I found this IFAB test guideline. I found a few things pretty interesting. This particular lab which is the lab that did my IFAB test says that you should be fasting for 8 hours before you take this test and you should not have had any B12 injections within 2 weeks prior to the test. Another interesting
EllaNore
in
Pernicious Anaemia Society
2 years ago
Iron Levels with CLL
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
susq9948
in
CLL Support
1 year ago
Timing of bloods when taking alternate daily levo dose please?
Hi,Took 125mcgs levo for yrs, reduced early Summer as over felt medicated..GP reduced it to a 100mcgs but altho bloods were ok I felt dreadful...so since Aug have been taking 100/125 mcgs on alternate days ie average 112.5mcgs daily...I will book a blood test soon but am thinking I should book it for
Hi,Took 125mcgs levo for yrs, reduced early Summer as over felt medicated..GP reduced it to a 100mcgs but altho bloods were ok I felt dreadful...so since Aug have been taking 100/125 mcgs on alternate days ie average 112.5mcgs daily...I will book a blood test soon but am thinking I should book it for
fluffyhat
in
Thyroid UK
2 years ago
optimal levels for vit d, folate, ferritin and vit b12?
can anyone advise on what would be considered optimal levels for the above? ferritin 29 (13-150) folate 1.94 (>3.89) b12 91.9 (37.5-150) Vit D 85 (50-200) Thanks. Asking for a friend.
can anyone advise on what would be considered optimal levels for the above? ferritin 29 (13-150) folate 1.94 (>3.89) b12 91.9 (37.5-150) Vit D 85 (50-200) Thanks. Asking for a friend.
Mickeydooley
in
Thyroid UK
2 years ago
What happens next?
I have recently been told by my GP on a telephone consultation that I have ET. No explanation of what it is other then ‘It’s a platelet thing and just making you aware as it might raise its head in the future when you have routine blood tests done. ‘ the GP spoke to Haematology who said they are not
I have recently been told by my GP on a telephone consultation that I have ET. No explanation of what it is other then ‘It’s a platelet thing and just making you aware as it might raise its head in the future when you have routine blood tests done. ‘ the GP spoke to Haematology who said they are not
BarnyKat
in
MPN Voice
2 years ago
Low Ferritin and iron supplements & Iron Panel interpretation
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Watamu
in
Thyroid UK
1 year ago
Folic Acid
Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out in the gps surgery, they tested my bloods and found Im low in iron so they gave me a 3 month course of Ferrous Sulfate which brought my levels
Hi, I have been having B12 injections for 20 years (every 10 wks), but last year started fainting and having really bad palpitations, I actually pased out in the gps surgery, they tested my bloods and found Im low in iron so they gave me a 3 month course of Ferrous Sulfate which brought my levels
Mioe
in
Pernicious Anaemia Society
2 years ago
4th time lucky: an interesting appointment
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
PCV 20 Guidelines ? Get 20 if you already had 13 and 23 - or not ?
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
janvog
in
CLL Support
2 years ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
jibs60
in
CLL Support
2 years ago
parietal cell antibody lab results
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
I’m having trouble interpreting my lab results. My Parietal Cell Antibody IgG value is 33.2 units and it said the standard range is 0.0-24.9 units. So it’s above the standard range but not by much. Apparently above 25 units is positive so that means I’m positive? I just want to confirm.
Purplegirl2
in
Pernicious Anaemia Society
1 year ago
Advice on iron test results please
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Having had a history of low ferritin and been prescribed iron tablets, I thought I’d do a test to see if I actually needed them. Surprisingly, my ferritin level has improved but is still not optimal to support my thyroid. Should I take the iron supplements?
Pastelart
in
Thyroid UK
1 year ago
Positive GP experience!
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
Beccy_123
in
Pernicious Anaemia Society
2 years ago
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