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Aplastic anaemia
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Am I poisoning myself with iron supplements? Blood test.
I am supplementing with Iron Bisglycinate 20mg. 3 tablets each day. (60mg each day).Plus vitamin C. My latest blood test: Serum iron level-28.5 umol/L (11 - 36) Serum TIBC-50.8 umol/L (53 - 85)- Abnormal Serum ferritin- 91 ug/L (14 - 148) Transferrin saturation index-56.1 % (20 - 40)- Abnormal
I am supplementing with Iron Bisglycinate 20mg. 3 tablets each day. (60mg each day).Plus vitamin C. My latest blood test: Serum iron level-28.5 umol/L (11 - 36) Serum TIBC-50.8 umol/L (53 - 85)- Abnormal Serum ferritin- 91 ug/L (14 - 148) Transferrin saturation index-56.1 % (20 - 40)- Abnormal
NataliAAA
in
Thyroid UK
1 year ago
Hydroxocobalamin supplies.
It looks as though the new owners of Panpharma are now concentrating on selling by repackaging their B12 for local sales. In UK its Accord Healthcare. This is probably why we cannot get it from German pharmacies. I cannot tolerate having my vital amine supplies threatened so I have looked elsewhere.
It looks as though the new owners of Panpharma are now concentrating on selling by repackaging their B12 for local sales. In UK its Accord Healthcare. This is probably why we cannot get it from German pharmacies. I cannot tolerate having my vital amine supplies threatened so I have looked elsewhere.
Bellabab
in
Pernicious Anaemia Society
2 years ago
Reasonable Adjustment and wellbeing at work
For anyone else struggling in the workplace with hypothyroidism and multiple symptoms. I realise I’ve been very lucky, I do worry about being labelled but my only other option would be to reduce my hours which I can’t afford. I’m a teacher in an FE college, almost full time (0.92). A couple of weeks
For anyone else struggling in the workplace with hypothyroidism and multiple symptoms. I realise I’ve been very lucky, I do worry about being labelled but my only other option would be to reduce my hours which I can’t afford. I’m a teacher in an FE college, almost full time (0.92). A couple of weeks
Regenallotment
in
Thyroid UK
2 years ago
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how do you get PA
hi everyone This may sound like a stupid question but I was wondering what makes you get pernicious anemia? Also is anyone experiencing fatigue whilst still taking the injection, I’ve got to wait another 4 weeks before my next one and I feel so tired
hi everyone This may sound like a stupid question but I was wondering what makes you get pernicious anemia? Also is anyone experiencing fatigue whilst still taking the injection, I’ve got to wait another 4 weeks before my next one and I feel so tired
Becca2023
in
Pernicious Anaemia Society
1 year ago
Anti depressants and RLS
Hi fellow sufferers. I weaned myself off of Sertraline in the summer as partly responsible for worsening my severe RLS. And I had an iron infusion in August. For the last 4-5 weeks I have been symptom free of RLS, though still on 50mg pregabalin. But I find myself at an all time low for other reasons
Hi fellow sufferers. I weaned myself off of Sertraline in the summer as partly responsible for worsening my severe RLS. And I had an iron infusion in August. For the last 4-5 weeks I have been symptom free of RLS, though still on 50mg pregabalin. But I find myself at an all time low for other reasons
veronal
in
Restless Legs Syndrome
2 years ago
Iron deficiency and mental health
Hi Everyone,Just after some guidance. Back in September 2022, after months of weird symptoms (heart palpitations, tachycardia, breathlessness, fatigue, low mood, anxiety, hair falling out, sore tongue ect) I was diagnosed with iron deficiency without anaemia. My blood test showed
Ferritin
6ugL
Hi Everyone,Just after some guidance. Back in September 2022, after months of weird symptoms (heart palpitations, tachycardia, breathlessness, fatigue, low mood, anxiety, hair falling out, sore tongue ect) I was diagnosed with iron deficiency without anaemia. My blood test showed
Ferritin
6ugL
Pheebs93
in
Pernicious Anaemia Society
2 years ago
B12/B9 balance
Since diagnosis with PA last year, I have had bi-monthly B12 injections and take a daily supplement of folic acid (Boots, 2 tablets). I have noticed that for 5-6 days after each injection I have signs of anaemia (odd sensation in feet, purple patches on fingers and some incontinence). I have also noticed
Since diagnosis with PA last year, I have had bi-monthly B12 injections and take a daily supplement of folic acid (Boots, 2 tablets). I have noticed that for 5-6 days after each injection I have signs of anaemia (odd sensation in feet, purple patches on fingers and some incontinence). I have also noticed
ADDG
in
Pernicious Anaemia Society
2 years ago
B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Hoyle
in
Pernicious Anaemia Society
2 years ago
Test results - could someone help please?
Hi! My thyroid is well replaced, but I have been feeling so tired and achy, so I asked my GP to test vitamins. She said all is well. I'm gutted because I feel TERRIBLE. What do you think to these results? Serum Ferritin: 29 (r 20-204) Serum Iron Level: 11.7 (r4.4-27.9) Serum Transferrin: 2.63 (r
Hi! My thyroid is well replaced, but I have been feeling so tired and achy, so I asked my GP to test vitamins. She said all is well. I'm gutted because I feel TERRIBLE. What do you think to these results? Serum Ferritin: 29 (r 20-204) Serum Iron Level: 11.7 (r4.4-27.9) Serum Transferrin: 2.63 (r
Suzanneharb
in
Thyroid UK
1 year ago
Examining the Diagnosis and Treatment Experiences of People Living With Autoimmune Gastritis and Pernicious Anemia
Have posted this over on the Pernicious Anaemia Society forum. However, it obviously is of significance to many here and the "patient forums" bit might be of general, widespread interest. I'm not re-posting here so that any comments can (hopefully) stay together on my PAS forum post (or, if anyone
Have posted this over on the Pernicious Anaemia Society forum. However, it obviously is of significance to many here and the "patient forums" bit might be of general, widespread interest. I'm not re-posting here so that any comments can (hopefully) stay together on my PAS forum post (or, if anyone
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Which iron supplement is the best and what dose?
Hi there, having found this forum two weeks ago, am fascinated by everything I am finding out about this damn RLS! But had a blood test this morning and my ferritin levels are 48ug/L, serum iron is 14.1 and serum TIBC 53.7 and the transferring sat index 26% When I talked to my doctor last week, having
Hi there, having found this forum two weeks ago, am fascinated by everything I am finding out about this damn RLS! But had a blood test this morning and my ferritin levels are 48ug/L, serum iron is 14.1 and serum TIBC 53.7 and the transferring sat index 26% When I talked to my doctor last week, having
Jukebox55
in
Restless Legs Syndrome
2 years ago
Deep Brain Stimulation
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Study from China on Parkinson's patients with RLS showed Deep Brain Stimulation reduced RLS & helped sleep.I certainly wouldn't consider it. Seems too extreme but if the Parkinson's patients are having the treatment to help tremor, it would be sensible to see if stimulation in another area relieves RLS
Joolsg
in
Restless Legs Syndrome
2 years ago
HELP PLEASE
hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring viruses, sever fatigue, joint pain, and is so pale😳😔 he’s in His early 20s and really struggling with all this, I have a diagnosis of Pernious anemia
hi guys it’s been awhile since I have posted, I’m in desperate need of some clarification, it’s my son he’s been so poorly for quite awhile, reoccurring viruses, sever fatigue, joint pain, and is so pale😳😔 he’s in His early 20s and really struggling with all this, I have a diagnosis of Pernious anemia
Steph0077
in
Pernicious Anaemia Society
1 year ago
Urine Calcium Test tips?
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
Regenallotment
in
Thyroid UK
2 years ago
Diagnosed with b12 deficiency not pernicious anemia so far.
Wondering if anyone suspects covid vaccine and b12 deficiency. I have tinnitus b12. speech impairment headaches last about 2 minutes also transulent zig zags over my eyes again lasts 2 minutes. Taking b12 injections monthly. Is this enough given my symptoms. Would like to hear if others have my symptoms
Wondering if anyone suspects covid vaccine and b12 deficiency. I have tinnitus b12. speech impairment headaches last about 2 minutes also transulent zig zags over my eyes again lasts 2 minutes. Taking b12 injections monthly. Is this enough given my symptoms. Would like to hear if others have my symptoms
Janeames
in
Pernicious Anaemia Society
2 years ago
B12 test
Hi I fear I've been deficient for many years, digestion issues for 20 years, always exhausted hair loss, teeth enamel worn away. stuttering dizziness memory loss confusing words and palpitations (got worse)started about 3 years ago. October 2022 my health took a nose dive, dementia like symptoms, extreme
Hi I fear I've been deficient for many years, digestion issues for 20 years, always exhausted hair loss, teeth enamel worn away. stuttering dizziness memory loss confusing words and palpitations (got worse)started about 3 years ago. October 2022 my health took a nose dive, dementia like symptoms, extreme
Hidden
in
Pernicious Anaemia Society
2 years ago
can you have normal iron cells and not megablastic and still have pernicious anemia ?
I am curious to know if megablastic anemia whereby the bloodcells are larger in shape has to be present in PA patient. And my second question would be, wouldn’t one know at birth of the shape of their bloodcells were bigger than usual of different enough to suspect PA? Excuse my ignorance but I’m trying
I am curious to know if megablastic anemia whereby the bloodcells are larger in shape has to be present in PA patient. And my second question would be, wouldn’t one know at birth of the shape of their bloodcells were bigger than usual of different enough to suspect PA? Excuse my ignorance but I’m trying
Reembow
in
Pernicious Anaemia Society
2 years ago
Bloods Results
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
These where printed out for me as requested, any advice most welcome 🌸 Was taking teva levo 75mcg, thybon henning t3 10mcg, prior to these results. Now taking 5mcg three times a day. Supplement vit D with k2, mk7 and magnesium glycinate
Geegee777
in
Thyroid UK
1 year ago
Slow progress getting ferritin up... any advice?
Previously: https://healthunlocked.com/rlsuk/posts/148663707/rls-differential-diagnosis Have taken iron for the last three months - 75mg iron (as bisglycinate) every evening with 500mg Vitamin C. Ferritin levels have gone from 25 to 57 to 81µg/L, so they're definitely getting there slowly. I believe
Previously: https://healthunlocked.com/rlsuk/posts/148663707/rls-differential-diagnosis Have taken iron for the last three months - 75mg iron (as bisglycinate) every evening with 500mg Vitamin C. Ferritin levels have gone from 25 to 57 to 81µg/L, so they're definitely getting there slowly. I believe
howbeit-abroad
in
Restless Legs Syndrome
2 years ago
Could ET mask a diagnosis of Vitamin B12 deficiency/Pernicious anaemia?
I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency. Athough I'm now taking a B12 supplement, I was wanting to see if I could get a B12 injection in case my issue related to an inability to absorb B12
I have an ET JAK2 mutation diagnosis (on aspirin) and have some neurological type symptoms that are similar to those associated with a Vit B12 deficiency. Athough I'm now taking a B12 supplement, I was wanting to see if I could get a B12 injection in case my issue related to an inability to absorb B12
Cb1001
in
MPN Voice
2 years ago
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