Search
Search
About
Log in
Join
Experiences with
Antagon
Posts
Communities
10,984 public posts
Filter results
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
2 months ago
Bone pain, what next?
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
For over 2 years my scans show no radiographic progression despite a rising PSA, now at 43. However I am now experiencing periodic bone pain in the left hip area, mainly when I climb stairs. Tolerable but a worrying development. Even with lack of visible progression I think we need to change something
Ian99
in
Advanced Prostate Cancer
2 months ago
Prostrate Removed, PSA increasing
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
Hello to all, Is there anyone who had their prostrate removed but PSA is increasing? Oncologist wants to try a new hormonal drug. Radiation was administered after surgery. PSA is increasing. We appreciate your feedback. P.S. Edited profile: “Last CAT Scan was November 2023 - Showed no metastases
BlessedParchy
in
Advanced Prostate Cancer
2 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Spot Radiation before Pluvicto?
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
Haven’t posted for a while about Mr. Spouse21 until I had some data as his PSA began to tick up a few months ago. Last week a PET FDG confirmed recent bone and CT scans. Summary of main results:
Multiple tracer avid osseous metastases. Most prominent involving right margin of T12.
Mr.Spouse was
spouse21
in
Advanced Prostate Cancer
2 months ago
HDR boost Brachytherapy + IMRT
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Hi all, This is my first post since being diagnosed with g9 metastatic PC. PSMA PET showed several pelvic lymph nodes with Mets, but no other spread, and bones are clean. I’m trying to finalize my choice of radiation treatments. I’m currently on Lupron and Zytiga, and PSA is dropping like a rock
Cenerus
in
Advanced Prostate Cancer
2 months ago
after EBRT …monitoring?
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
I’m up to fraction 20, today, 8 to go. (YAY!) I’m sure my RO will fill me in in upcoming appointments, but was wondering what I could expect in terms of monitoring results of my treatments afterwards. I’d imagine routine blood panels, monitoring PSA, but should I expect another PSMA PET scan at some
Jpburns
in
Advanced Prostate Cancer
2 months ago
Erectile Leaking
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
I'm 2 months post robotic-prostatectomy. All went very well regarding surgery as is, my continued recovery. The one thing which I can't understand or work out is masturbation incontinence. 90% now I'm dry, just wearing a small dry pad. Doing my Kegel exercises every day, 3 times a day. On trying a
Wakeyguy63
in
Prostate Cancer And Gay Men
2 months ago
Three month post SBRT PSA
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
Hey all. Just got my PSA and testosterone three months post SBRT and in month 4 of Orgovyx. PSA is 0.09 ng/ml down from 7.8 Testosterone is 14.25 ng/dL Just had the blood draw 2 hours ago and results were pushed to my portal. Meet with my RO in 10 days.....I am THRILLED with the results!
ToolBeltZia
in
Prostate Cancer Network
2 months ago
PSMA PET SCAN AND PSA
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
I had a disagreement with my RO today and wonder if he is right. My last PSMA PET Scan in Dec 2023 showed no progression. End January onwards I have an on off pain in the left ribcage area with an increasing frequency. To recap....PT3bN1Mx, RP in 2019, IMRT 2020 and on ADT for 30 months, currently completed
Tally111
in
Advanced Prostate Cancer
2 months ago
Uh... Oh... New Phase Awaits?
Dx 12/09, G4+3 Surgery 01/10 – Failed SRT 2nd quarter 2011 – Failed. Avodart worked for awhile. Eventually HT (Lupron + Casodex) in mid 2013. Worked great. Since then lengthy HT vacations 12/19/22-6/22/23 ---Orgovyx. Worked well so was able to stop...BUT NOW Starting to look like castrate resistance
Dx 12/09, G4+3 Surgery 01/10 – Failed SRT 2nd quarter 2011 – Failed. Avodart worked for awhile. Eventually HT (Lupron + Casodex) in mid 2013. Worked great. Since then lengthy HT vacations 12/19/22-6/22/23 ---Orgovyx. Worked well so was able to stop...BUT NOW Starting to look like castrate resistance
compiler
in
Advanced Prostate Cancer
2 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
2 months ago
PSMA Pet Scan results
My Dad has been on Abiraterone, Prednisone and Lupron for 2.5 years. He already had back in 2021 radiation to prostate, lymph nodes and 2 ribs. His PSA started going up and we just got the results from PSMA Pet Scan: “Highly PSMA positive tumor in the left prostate gland, increased in intensity and spatial
My Dad has been on Abiraterone, Prednisone and Lupron for 2.5 years. He already had back in 2021 radiation to prostate, lymph nodes and 2 ribs. His PSA started going up and we just got the results from PSMA Pet Scan: “Highly PSMA positive tumor in the left prostate gland, increased in intensity and spatial
Simonapo
in
Advanced Prostate Cancer
2 months ago
Final Pluvicto shot and things OK
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
I just had my 6th, and final, injection. Feeling well but everyone concerned with kidney function dropping -- hopefully transient and not an on-going trend, on the plus side this is the last time it has to deal with all that radioactive liquid. Chugging water and peeing like a champ! To review:
Miccoman
in
Advanced Prostate Cancer
2 months ago
Accuracy of PSMA PET scan?
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
What would you venture to guess is the accuracy of the PSMA PET scan? How many of you showed "no spread" with your PSMA scan, but then learned via surgery or otherwise that there WAS spread which wasn't detected with the PSMA scan? And, how much better is the new Posluma scan vs Pylarify? My husband
Adendino
in
Advanced Prostate Cancer
2 months ago
RP 4yrs ago, PSA just went to. 2...concerning? Thoughts, please?
Had RP 12/19. PSA was "undetectable" until 10/23 when it went to .2, then 12/23 was at .1, then 2/24 was .2 again...PET scan in 1/24 did not show anything...57yo male here. Thoughts? Concerning?
Had RP 12/19. PSA was "undetectable" until 10/23 when it went to .2, then 12/23 was at .1, then 2/24 was .2 again...PET scan in 1/24 did not show anything...57yo male here. Thoughts? Concerning?
KCCnola
in
Advanced Prostate Cancer
2 months ago
what is choline-avid prostate cancer
hi,I was dx in 2014 finished treatment in 2016 ht/rt psa is 0.04 so still ok except I now have severe osteoporosis for which I am having treatment, what I want to ask is does anyone take krill oil to help there joints, I have been reading on canceractive that krill oil is not good for prostate cancer
hi,I was dx in 2014 finished treatment in 2016 ht/rt psa is 0.04 so still ok except I now have severe osteoporosis for which I am having treatment, what I want to ask is does anyone take krill oil to help there joints, I have been reading on canceractive that krill oil is not good for prostate cancer
Radars
in
Advanced Prostate Cancer
2 months ago
Hypertension Stage 2, need advice.
Hello: My blood pressure has been uncontrolled for about 8 months. My primary care doctor has me on 100mg of losartan, and 5mg of amlodipine. I am also taking 1000mg of abiraterone, with 5mg of prednisone; also .4mg of tamsulosin. And I had an orchiectomy. This morning my BP was 156/97. It’s been running
Hello: My blood pressure has been uncontrolled for about 8 months. My primary care doctor has me on 100mg of losartan, and 5mg of amlodipine. I am also taking 1000mg of abiraterone, with 5mg of prednisone; also .4mg of tamsulosin. And I had an orchiectomy. This morning my BP was 156/97. It’s been running
marc_andersun
in
Advanced Prostate Cancer
2 months ago
FDG elements of PSMA scan
I had a FDG scan a few days ago . At the heart of my confusion is the function of FDG in giving a positive outcome to Pluvicto infusions. Is it a good thing to have lots of 'FDG Avid' showing up, or do you want those aspects of the scan to be as hidden as possible (so that the PSMA -Avid cells can be
I had a FDG scan a few days ago . At the heart of my confusion is the function of FDG in giving a positive outcome to Pluvicto infusions. Is it a good thing to have lots of 'FDG Avid' showing up, or do you want those aspects of the scan to be as hidden as possible (so that the PSMA -Avid cells can be
CrocodileShoes
in
Advanced Prostate Cancer
2 months ago
HAPPY EASTER.
HAPPY EASTER EVERYONE! Pleased to say I have and hope to have some more things to celebrate this year. I have just had written confirmation of my recent PSA test and a form to have another in one years time. It is still undetectable so pleased and I believe - though would have to look it up that
HAPPY EASTER EVERYONE! Pleased to say I have and hope to have some more things to celebrate this year. I have just had written confirmation of my recent PSA test and a form to have another in one years time. It is still undetectable so pleased and I believe - though would have to look it up that
Desanthony
in
Atrial Fibrillation Support
2 months ago
Post-op PSA jump .06 to 1.1
Hey guys, I'm not a math person, but this seems to be way more than "doubling." More like 18x? Not finding any literature online that addresses this big of a jump. What the...? My urologist is currently in Europe. Wondering if any of you have experienced that big of a jump and survived. (If you did
Hey guys, I'm not a math person, but this seems to be way more than "doubling." More like 18x? Not finding any literature online that addresses this big of a jump. What the...? My urologist is currently in Europe. Wondering if any of you have experienced that big of a jump and survived. (If you did
SarcoPenyaJr
in
Prostate Cancer And Gay Men
2 months ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
8727 results
Prostate Cancer Network
1049 results
Fight Prostate Cancer
248 results
View top 10 communities
Sort by
Most Relevant
Newest