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Full circle with metastatic prostate cancer
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
I have gone full circle with my disease. Diagnosed at 52 in 2017 with PSA 100. 6 years later PSA is back to 100 with new spread of mets though out skeleton. I have done all the SOC treatments and changed diet. The cancer has found a way around it all. I have continued working through out but now I have
Islandboy2021
in
Advanced Prostate Cancer
7 months ago
shoes
I have PsA with entithesis and get very painful feet. Are there any suggestions for comfy footwear as currently using running shoes and one single pair of boots. Can’t walk in anything else when I can walk that is. So any suggestions for comfortable gents shoes that are reasonably fashionable would
I have PsA with entithesis and get very painful feet. Are there any suggestions for comfy footwear as currently using running shoes and one single pair of boots. Can’t walk in anything else when I can walk that is. So any suggestions for comfortable gents shoes that are reasonably fashionable would
Greenmil3
in
Beyond Psoriasis
7 months ago
At last I've come to a decision.
Hi all, Well after heaps of research and asking questions and discussing everything with my RO and Urologist about treatment for my 4+4 PSA 8 PCa, I have decided to go the path of EBRT and HT. Starts as soon as I get back from my trip to the USA in late November with the insertion of the barrier gel
Hi all, Well after heaps of research and asking questions and discussing everything with my RO and Urologist about treatment for my 4+4 PSA 8 PCa, I have decided to go the path of EBRT and HT. Starts as soon as I get back from my trip to the USA in late November with the insertion of the barrier gel
Mike58
in
Prostate Cancer Network
7 months ago
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oncologist said I'm cured
had a meeting with oncologist who did my treatment 2014,finished treatment 2016,locally advanced prostate cancer t3b no mo, he said that I have not got p/c that shocked me,surely he is just going on that my psa is undetectable, so that means I have to stop the things I have been taking to help me with
had a meeting with oncologist who did my treatment 2014,finished treatment 2016,locally advanced prostate cancer t3b no mo, he said that I have not got p/c that shocked me,surely he is just going on that my psa is undetectable, so that means I have to stop the things I have been taking to help me with
Radars
in
Advanced Prostate Cancer
7 months ago
SBRT Added to Standard Tx Boosts Outcomes in Oligometastatic PCa - ARTO II~ Improved response & PFS compared to SOC, MedPage Today, 09/27/23
[i]
SBRT Added to Standard Tx Boosts Outcomes in Oligometastatic Prostate Cancer — Combination improved biochemical response and PFS compared with systemic treatment alone, MedPage Today, Oncology/Hematology > Prostate Cancer, by Mike Bassett, Staff Writer, September 27, 2023
[/i] [i]Combining
[i]
SBRT Added to Standard Tx Boosts Outcomes in Oligometastatic Prostate Cancer — Combination improved biochemical response and PFS compared with systemic treatment alone, MedPage Today, Oncology/Hematology > Prostate Cancer, by Mike Bassett, Staff Writer, September 27, 2023
[/i] [i]Combining
cujoe
in
Fight Prostate Cancer
7 months ago
Mets to Bones and Lymph nodes
Hello all,My 50 year old father was recently dx. with prostate ca. PSMA done yesterday confirmed mets to multiple bones and lymph nodes in chest, abdomen, pelvis, and clavicle. Gleason 9. PSA 3.74. Doubled in since May. We meet with the oncologist next week. He is having trouble peeing and hip pain
Hello all,My 50 year old father was recently dx. with prostate ca. PSMA done yesterday confirmed mets to multiple bones and lymph nodes in chest, abdomen, pelvis, and clavicle. Gleason 9. PSA 3.74. Doubled in since May. We meet with the oncologist next week. He is having trouble peeing and hip pain
Scoobydoocrew
in
Advanced Prostate Cancer
7 months ago
How to find a MO Specializing in PCa
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
I just completed a clinical trial lasting two years. My PSA has slowly risen from 0.06 to 0.12 over the last 15 months or so. My medical team was surgical and now I'd like to move to monitoring with a qualified MO as my PSA moves upward. Where does one start to find an MO who's focused on PCa? The
NJWarrior
in
Advanced Prostate Cancer
7 months ago
concurrent salvage ADT with IRMT
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
live2play
in
Advanced Prostate Cancer
7 months ago
PSMA PET Scan result - false positive bone lesion?
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
My fathers PSMA PET scan ( at 0,23 psa) came back! Its been 9 months after surgery and PSA is around 0,18-0,25 and fluctated down at times. Everything was clear but a suspected bone lesion at L3 was found. The dr seem to think its false positive and said its probably nothing. We should just monitore
Daddysgirl83
in
Advanced Prostate Cancer
7 months ago
right knee replacement
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before
kreg001
in
Advanced Prostate Cancer
7 months ago
Complementary Therapies - Your Experience?
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
My standard of care drugs are doing a great job of keeping my PSA down, but it would seem inconsiderate not to look into giving them a bit of help. I'm investigating these "adjunct" therapies with anecdotal or research evidence showing potential action against prostate cancer, and I'm just wondering
32Percenter
in
Advanced Prostate Cancer
7 months ago
4 Consecutive Rises in PSA. Still low but perhaps time to move on? HELP, I'm only 59
DX 4 1/2 years ago. Been on Lupron and Deraludimide for 4 1/2 years. PSA has risen from .014 to .037 in 4 months. 4 consecutive rises. I test every 30 days. I had bone mets and lymph node involvement. Any thoughts on next treatment? Try Xandi? Move to Pluvicto? Help i have 3 young kids.
DX 4 1/2 years ago. Been on Lupron and Deraludimide for 4 1/2 years. PSA has risen from .014 to .037 in 4 months. 4 consecutive rises. I test every 30 days. I had bone mets and lymph node involvement. Any thoughts on next treatment? Try Xandi? Move to Pluvicto? Help i have 3 young kids.
Longterm101
in
Advanced Prostate Cancer
7 months ago
PSA 0.5, 6 yrs after prostatectomy
Hi all, My father's PSA has risen to 0.5 today. He had the prostate removal 6.5 yrs back in 2017. His gleason score was 8, PSA around 20 at the time of surgery. However post surgery, it was indicated that seminal vesicles were clean and no occurence in lymph nodes so it was indeed a localized tumor
Hi all, My father's PSA has risen to 0.5 today. He had the prostate removal 6.5 yrs back in 2017. His gleason score was 8, PSA around 20 at the time of surgery. However post surgery, it was indicated that seminal vesicles were clean and no occurence in lymph nodes so it was indeed a localized tumor
VikPa
in
Prostate Cancer Network
7 months ago
declining psa
I’m 8 years post RP and my PSA has gradually been going up over the past 6 years. When it hit 0.1 I saw a radiation oncologist to discuss options. He said I had a biochemical recurrence but is happy to monitor things and would only consider recommending salvage radiation when I get closer to 0.2. However
I’m 8 years post RP and my PSA has gradually been going up over the past 6 years. When it hit 0.1 I saw a radiation oncologist to discuss options. He said I had a biochemical recurrence but is happy to monitor things and would only consider recommending salvage radiation when I get closer to 0.2. However
Fransella
in
Active Surveillance - Prostate Cancer
7 months ago
ADT + darolutamide + docetaxel (ARASENS trial) has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Hi people! My first update since the diagnosis. After less than one month of regrouping and ADT only (decapeptyl - triptotrelin, which got my PSA from 70 to 15), my MO decided to do the ARASENS trial triplet (with my full approval, I was going to propose him this protocol). Has anyone tried it?
Maxone73
in
Advanced Prostate Cancer
7 months ago
PSA Tests
Every 6 months, I get a standard PSA test (following surgery and radiation four years ago) and it is "undetectable". Under what conditions is an ultrasensitive PSA test useful?
Every 6 months, I get a standard PSA test (following surgery and radiation four years ago) and it is "undetectable". Under what conditions is an ultrasensitive PSA test useful?
Polaris1
in
Advanced Prostate Cancer
7 months ago
"Pluvicto"
Has anyone doing the six stages of Pluvicto, or finished the set, found that it has dropped their PSA ?? I will be taking my third infusion but have not done any blood work yet for PSA. Curious............................
Has anyone doing the six stages of Pluvicto, or finished the set, found that it has dropped their PSA ?? I will be taking my third infusion but have not done any blood work yet for PSA. Curious............................
Kian28
in
Advanced Prostate Cancer
7 months ago
from undetectable to 0.02
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
I have been undetectable for 3.25 years and today it came back at 0.02. My bio is up to date. We ran the test at the exact same lab as always and in 2 days I am flying back to my Sarasota home from Milwaukee and was wondering which lab is recommended for 2 digit accuracy? I know Labcorp only does 1
Peppertree602
in
Advanced Prostate Cancer
7 months ago
Aspirin trials
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
I have recently finished hormone therapy, last 3 monthly injection April 2023. Good result so far with PSA at <0.01. Met with my Oncologist today and he said there were trials using aspirin as a potential drug to reduce potential recurrence. Has anyone come across this and, even though the results
Runner1957
in
Prostate Cancer Network
7 months ago
Abiraterone SE when added to Lupron?
I am a PSA =2, low volume, oligometastic HSPC. I got my first Lupron shot 4 weeks ago. I started to get a couple hot flashes per day in the last week from the Lupron and of course I expect fatigue to kick in over the next six weeks. What additional side effects might I expect by adding the abiraterone
I am a PSA =2, low volume, oligometastic HSPC. I got my first Lupron shot 4 weeks ago. I started to get a couple hot flashes per day in the last week from the Lupron and of course I expect fatigue to kick in over the next six weeks. What additional side effects might I expect by adding the abiraterone
jackwfrench
in
Advanced Prostate Cancer
7 months ago
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