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PSA update
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
DX Nov 2020. PSA 960 high volume metastatic. Lowest PSA nadir 0.1 Aug 2022. Slowly rising Nov. 2023 was 0.21, Feb 2024 0.41....Doubling time 3.1 months . On Lupron and 1000 mg Abiraterone with 0.5 Dexamethasone . Darn.
wolverine11
in
Advanced Prostate Cancer
3 months ago
What's different between Xtandi vs NUBEQA® (darolutamide) vs ERLEADA® (apalutamide)
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
Hello Everyone, zytiga didn’t work so move to xtandi After two months, Xtandi did not work, and PSA started going up; I suggested to the doctor to prescribe other medicine ( NUBEQA® (darolutamide) or ERLEADA® (apalutamide) based on this group's recommendations. Dr keeps telling me NO and tells
God_Loves_Me
in
Advanced Prostate Cancer
3 months ago
Update for kestrel5
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Diagnosed in Spring 2010 (Stage IIB - pT2c, N0, M0). Lung mets confirmed in September 2015. I am, as they say, heavily pre-treated. Recent scans and bloodwork: no evidence of cancer, three years of undetectable PSA. Never say 'cured,' but I am enjoying a period of durable treatment effects.
Kestrel5
in
Advanced Prostate Cancer
3 months ago
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Treatment going forward
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
Boyfriend is 73 was on AS after TRUS bx with decipher score 3.0. Bx 3+4 after downgrade from JH. Now one year later Saturation Biopsy reports 3+5=8 one core and 4+5=9 two cores between 5 and 20% pattern 5. PSA remains about 3.4. Total of 9/30 positive mostly 3+4=7 20% pattern 4. PSMA PET/CT reports
good2go
in
Advanced Prostate Cancer
3 months ago
Pluvicto still working well
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Am coming to my fifth injection and I see I neglected to post my results after #3 & #4 so they are here, too. So far: Aug 16: PSA
99.7
Aug 21: Pluvicto
#1
Sep 11: PSA
106
Sep 28: PSA
91.8
Oct 05: Pluvicto
#2
Oct 25: PSA
57.8
Nov
Miccoman
in
Advanced Prostate Cancer
3 months ago
Rising PSA
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
Year 7… No prostate. Clear everything in 2017 … but 6 months after surgery rising PSA. Casodex/Lupron/39 Rounds Radiation. Presently on Lupron/Nubeqa PSA rising PSMA Scan Clear CT scan with Contrast today plus Fractionated Blood Biopsy. PSA 10.8 Waiting on CT results but Dr. Aggarwal wants
JolleySprings
in
Advanced Prostate Cancer
3 months ago
Rising PSA on ADT
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
Prostatectomy 2015, Gleason 4 + 3. 31 external radiation tx, ADT (Zoladex) 2015-17, post nadir Oct 2017 rising PSA until Jan 2022. Degarelix for 8 months. Two months after end of Degarelix PSA rising rapidly (doubling time 5 weeks). Started ADT (Zoladex) Feb 2023. By Oct PSA 0.40 ug/L, Dec 0.43 ug
MGBman
in
Advanced Prostate Cancer
3 months ago
considering stopping adt/abiraterone to see what happens
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
it’s been 8 months since I found myself to have a PSA of 70, it is now 0.0 and I am due for the ADT injection. I have coupled standard treatment with rife, mushrooms, ivermectin, fenbendazole, apricot seeds, green tea, vit e, graviola. What is the feeling on the board here should I see if the alternative
Nowhereman9
in
Advanced Prostate Cancer
3 months ago
PMR or PsA or both
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
Seal49
in
Beyond Psoriasis
3 months ago
Fatigue after eating
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Husband is getting very sleepy after all meals. His sugar is always below 100 when tested, he takes levothyroxine for low thyroid (waiting for over 2 weeks now on latest blood work and TSH results from PCP. *sigh* He's taking a statin (can't remember the name) and Tamsulosin. Current cancer treatment
Union98
in
Advanced Prostate Cancer
3 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
3 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
3 months ago
Is a false-positive biopsy possible?
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
I have a history of prostate cancer in my family. My father had it, and my brother had it and he had his prostate removed. As a result, for the last 13 years, I've had my PSA checked every six months. I typically run a very low PSA, historically .5 or .6. About 18 months ago I noticed that my PSA was
CBRD
in
Advanced Prostate Cancer
3 months ago
Should I sell and retire with PSA at 0.1 following 9 months undetectable?
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
LakeT
in
Advanced Prostate Cancer
3 months ago
Casadex, on and off
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
I was on Casadex close to 3 years. During the last part of going on 3 years my psa started rising. They took me off Casadex and put me on Orgovyx which did not work so they put me on injections of lupron once a month. My psa again started rising on lupron injections. Now They have put me on nubeqa to
woppaho
in
Advanced Prostate Cancer
3 months ago
Lupron unjection not reducing PSA
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
I was first diagnosed with prostate cancer in 2016. It has been contained in the prostate ever since. For 3 years I treated myself with vitamins and nutrients. Kept my psa down until I had a kidney stone operation and for some odd ball reason loss control of the psa after the operation, it shot up to
woppaginny
in
Advanced Prostate Cancer
3 months ago
Is a Liquid biopsy of ctDNA with PSA = 6 and 4 bone mets, useful?
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Hello friends I have to pay upfront the costs but I don't know if nothing will be found in a liquid biopsy with PSA of 6.5 What is your experience with liquid biopsy? And did anyone have a bone metastatic solid biopsy ? Thank you 🤗🙌
Manilo
in
Advanced Prostate Cancer
3 months ago
PSA rising, rapidly
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Well, it looks like my honeymoons of ADT are over. I was (and still am) on a tripple therapy along the lines of the ARASENS trial (Docetaxel, Lupron and NUBEQA) for about 2 years. My PSA started rising six months ago, at first slowly, but now very rapidly. It went from 0.04 to 0.05 then 0.17 (in three
Oldie68
in
Advanced Prostate Cancer
3 months ago
Dig the low, low, low, low, lowdown! PSA Update 💙
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
https://youtu.be/CWW6DRscQIc?si=61otmpzO3ugAJB0D 1.7 Woo Hoo😂🤙 The lowest PSA since 01/2018 @1.3 (552.2, 633, 840.2 in 2014) 39 chemos & 28 IMRT radiation sessions What a crazy 9 yr Rollercoaster Long Strange trip it's been 🤣 I ain't complaining Ain't Misbehavin, Stormy Weather on the
dockam
in
Advanced Prostate Cancer
3 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
3 months ago
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