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PSA at 0.285
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
I had my RP last January but the cancers had sneaked out to my lymph node already (no other met) so my PSA was always detectable. I started hormonal therapy last April and my PSA went down right away. It had been that way till this week ( PSA was up and down, the lowest was 0.02, usually was 0.05.).
Formosan
in
Advanced Prostate Cancer
24 days ago
Can I trust a second opinion?
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
It's not that I don't trust my MO, but he seems to be quite SOC, and doesn't offer options unless I bring them up. Which I have been doing. I even seem to have a reputation for having good questions. Which I am glad to hear, but frankly I don't feel I'm as well educated as all that 🙄. It could be that
Lewellen
in
Advanced Prostate Cancer
24 days ago
Hormone Therapy
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
.Hi..So my husband was diagnosed with Prostate Cancer via a routine check during a GPs appointment...It was 2020,and we went into lockdown for Covid not long after..He elected to have a Prostatectomy, but unfortunately his PSA never went to zero...Levels remained low, and he had a PET scan, which
debbiejayn
in
Advanced Prostate Cancer
25 days ago
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The continuing saga of Scout and Coco, Not all change is welcome.
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
It is with sadness that I report that My "vacation" may come to an abrupt end . After cruising along with an Undetectable PSA for a little over 2+ years, my recent test results indicate a PSA of 0.03 and my Testosterone jumped from <7 to 13. The good news is my T is coming back but it looks like
Scout4answers
in
Advanced Prostate Cancer
25 days ago
Gleason 9 prostate cancer
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
Hello - my husband has aggressive gleason 9 prostate cancer. He had a prostatectomy in August 2015 but his psa remained high, suggesting it had already left the prostate. He then had IMRT to his pelvic area and was started on Zoladex adt (3monthly injections). He became castrate resistant so abiraterone
69HumptyDumpty
in
Prostate Cancer Network
26 days ago
Are teeth affected by ADT or Xtandi?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
after about 2 months of Lupron and Xtandi my teeth are tender and sore. Any correlation?
CousinGrandpa
in
Prostate Cancer Network
26 days ago
Elgard v Lupron
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
I’ve experienced slowly increasing side effects over the past six to nine months. I passed it off to age and time on ADT, but I’ve recently discovered that I was switched from Lupron Depot to Eligard last November. Everything I read says the SEs should be the same. Has anyone else experienced the
Papa1
in
Advanced Prostate Cancer
26 days ago
PSA still undetectable and testosterone doubles to 1.6
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Just an update as I yesterday was blood test day. I’m continuing with the Apalutamide monotherapy, still enjoying working full time and just back from an Italian lake holiday. So no movement on my PSA but interesting to see testosterone creeping up ( 11 months since my last Zoledex injection so 8
Brysonal
in
Fight Prostate Cancer
27 days ago
Docetaxel
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
Anyone willing to share experiences with Docetaxel? Good, Bad, and Ugly. Any recommendations or advice to help with side effects etc. My husband is in year 7… He has been on the traditional SOC with ADT… Lupron, Firmagon, Nubequa, and lastly Zytiga. All have ceased working. His PSA has risen to
JolleySprings
in
Advanced Prostate Cancer
27 days ago
Is PSMA PET Scan worth it when PSA<0.2
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
My MO recommends taking PET CT F18 -DCFPYL in case I want to go intermittent after two years of Lupron and Erleada. My PSA is still less than 0.2. I had one PSMA in March 2022 when PSA was rising to 1.03. Scan show 3 preaortic lymph nodes and two spot on ribs. Then 6 weeks RT and ADT (Lupron, Erleada
Maxi54
in
Advanced Prostate Cancer
27 days ago
Anyone else suffering arm pains in conjunction with ADT hot flashes?
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
Ever since commencing ADT (Decapeptyl 11.5mg) following recurrent PCa in 2022 I've been getting muscle pain in both arms. It always commences simultaneously with the onset of hot flashes. The pain courses down both arms from the shoulder to the backs of my hands. It's not too severe and each bout only
LeakyLad
in
Advanced Prostate Cancer
28 days ago
Five years later
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
Good day to all fellow warriors, I used to post as Arnie1970, but that account stopped working. After the initial scare of a stage 4 cancer diagnosis, a lot has happened. Four grand children were born( two boys, two girls). I stopped working, and we traveled a lot. Even though I stopped writing.
ArnieAfrica
in
Advanced Prostate Cancer
28 days ago
After Lupron I have been having seizures
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
Hi, In December 2023 I decided to finally undergo treatment for my prostate cancer, Gleason scale 6, with a high PSA of 63 (or 48 on another test) I had had this cancer for eight years WITHOUT it spreading. But doctors kept warning (I would almost say harassing) me, so... I underwent one shot of lupron
darrylw
in
Advanced Prostate Cancer
29 days ago
How do I update my bio?
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
My bio on Health Unlocked website needs updating. How do I do that? I can't seem to update my bio from 2023. I'm interested in adding PSAs and testosterone quarterly blood tests from 2023 and 2024. My good new is that my PSA has been 0.01 "nearly undetectable" for more than a year. My MO said don't
happycamperguy
in
Advanced Prostate Cancer
29 days ago
skin redness after 3 weeks of pelvic radiation
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
I am on a 6-month hormone therapy treatment plan. I’m also receiving radiation treatments. After 3 weeks of pelvic radiation treatments (proton therapy), I have noticed a redness around the left side of my foreskin along with some minimal slight white creamy substance. I am uncircumcised. I only have
brilliant17
in
Advanced Prostate Cancer
29 days ago
Minor psa increase again
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Just over 12 months since adt finished. All clear at <0.01 2 months ago when it started to rise to 0.03 then 4 weeks later 0.05 now 0.07. Have Dr's app in 3 weeks which will probably be a referral back to oncologist. Do we need to wait until 2.0 then a PET scan or can I be proactive now? My adt was
Runner1957
in
Prostate Cancer Network
1 month ago
Patient refuses abiraterone
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
From a very concerned daughter: My father was prescribed ADT, abiraterone, and prednisone. He started ADT earlier before the other two were added to the regimen, about one month ago. Since then, he has been experiencing a lot of side effects, including serious hot flashes, elevated blood pressure,
Healing1826
in
Advanced Prostate Cancer
1 month ago
Estrogens and Castrate/Treatment Resistance?
Has anyone using estrogens (estradiol) as the primary agent of ADT (androgen deprivation therapy) had their prostate cancer become resistant (androgen independent) to the treatment? I also do not know of a single instance of any man using TDE as the primary agent of ADT (which I have been lobbying my
Has anyone using estrogens (estradiol) as the primary agent of ADT (androgen deprivation therapy) had their prostate cancer become resistant (androgen independent) to the treatment? I also do not know of a single instance of any man using TDE as the primary agent of ADT (which I have been lobbying my
Lost_Sheep
in
Advanced Prostate Cancer
1 month ago
For anyone with endo or suspected endo
DR PETA WRIGHT (Taken from Instagram recently) Just a VERY interesting opinion for anyone interested in the bigger picture of endometriosis. Long read! Study hot off the press from Dr Karen Joseph. This study looked at women who underwent laparoscopy for pelvic pain over a twelve month period. Around
DR PETA WRIGHT (Taken from Instagram recently) Just a VERY interesting opinion for anyone interested in the bigger picture of endometriosis. Long read! Study hot off the press from Dr Karen Joseph. This study looked at women who underwent laparoscopy for pelvic pain over a twelve month period. Around
Brambledoggy
in
Endometriosis UK
1 month ago
Castrate Resistant
I know that patients who were started at beginning with combo of, say, Lupron plus abiraterone acetate are declared castrate resistant when PSA rises in certain ways and/or progression is shown on scans. However, for someone like me, who's been on Lupron only since diagnosis, am I not castrate resistant
I know that patients who were started at beginning with combo of, say, Lupron plus abiraterone acetate are declared castrate resistant when PSA rises in certain ways and/or progression is shown on scans. However, for someone like me, who's been on Lupron only since diagnosis, am I not castrate resistant
dhccpa
in
Advanced Prostate Cancer
1 month ago
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