Search
Search
About
Log in
Join
Experiences with
AndroGel
Posts
Communities
5,457 public posts
Filter results
PSA still low but cancer progressing
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
I've been on ADT plus Xtandi for about a year (see my profile) and my PSA has steadily reduced and stayed low. However, my latest CT scan shows that the tumours on my bones and lymph nodes are increasing in size and there are now a few small lesions appearing in my liver for the first time. Not the news
Benkaymel
in
Advanced Prostate Cancer
8 months ago
Whole pelvic radiation after testicular cancer?
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
My husband is 63, dx Oct/2022 with PSA of ~11 and all twelve cores positive with GL 8 and mostly 9’s (4+5). He had SVI, PNI, and probable ECE, but PSMA PET showed no spread. He’s being treated at UCHealth/Denver CO at their urologic cancer center. His treatment consisted of 39 radiation sessions +
Adendino
in
Advanced Prostate Cancer
8 months ago
QOL Arm wrestling
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
I am almost 3 months into the Body by Science workouts suggested by (Paul) Mateo Beach. I find my energy level remains high and with the exception of some brain fog and minor emotional mood swings I continue to be avoiding most of the ADT side effects. The essence of the program is very slow lifts
Scout4answers
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ADT how long
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
I just started hormone therapy about a month ago on orgovyx pills. They're telling me today I need to stay on this for 2 years. Why so long?
SilverSeppi
in
Advanced Prostate Cancer
8 months ago
Update to: "Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?"
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Thanks for all the input to my original post. First, here is an administrative posting/question: am I correct to add this as a new post, or should I have posted this as a reply to my original post? Here are some additional details regarding medication side effects and treatment decision-making for
Brokedown_Palace
in
Advanced Prostate Cancer
8 months ago
declining psa #6
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Gm ladies n gentlemen, I’m here to give my results as I stated after stopping adt, post Rp, radiation n solely using ivermectin, cbd, turmeric n fish oil. My latest reading came in 1.34 down from 1.47 and continues to spiral down from starting this regiment at 1.92. Furthermore, prior to starting ivermectin
Nfler
in
Advanced Prostate Cancer
8 months ago
Treatment Comparison Tool
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Hi All, I stumbled across this prostate treatment comparison tool which seems to be a pretty reasonable method based on a lot of data that could help those of us struggling to know what treatment to have. https://www.prostatecancerfree.org/compare-prostate-cancer-treatments-high-risk/ I listed the
Mike58
in
Prostate Cancer Network
8 months ago
Degarelix and increased diabetes risk?
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
My husband had his first Degarelix injection last week. I have been reading that men who get ADT have an increased risk of diabetes. Just wondering because he had a blood test today, and his glucose was high. Diabetes runs in his family as his father, brother and sisters all had/have diabetes. Both father
Oatmeal2
in
Prostate Cancer Network
8 months ago
New Study - Men on adt for 6 months- 75% recover Testosterone BUT median time is 18 MONTHS!!!????-Orgovyxx may be different? Yes I Hope??
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
New Meta Analysis From Marcap Consortium says :
Men on adt for 6 months -75% recover Testosterone BUT the median recovery time is 18 months !!!
AND THE OTHER 25% -NEVER!??
I TOOK ORGOVYXX FOR 4 MONTHS ???? THEY SAY IT MAY BE DIFFERENT FOR ORGOVYXX??
P.S. Any studies
JWS13
in
Advanced Prostate Cancer
8 months ago
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
8 months ago
Oar Gel and gold placements for beginners on this journey
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
I am a beginner on this PC journey but feel fortunate that I caught my cancer before it had spread beyond the prostate. I caught sepsis from my directed transrectal biopsy and spent a lovely few days in ICU flirting with the nurses and trying not to mess up the bed and floor too much. I have 9 weeks
Eadgbe
in
Prostate Cancer Network
8 months ago
ART Favorable Prognosis Adjuvant Androgen Deprivation Therapy A-ADT after Radiotherapy
Additional information for PCa patients under AS (active surveillance) regarding the length of ADT and PSA nadir achieved, versus outcomes. Biochemical failure-free survival (BCFFS), clinical failure-free survival, distant metastasis-free survival, cancer-specific survival, and overall survival (OS)
Additional information for PCa patients under AS (active surveillance) regarding the length of ADT and PSA nadir achieved, versus outcomes. Biochemical failure-free survival (BCFFS), clinical failure-free survival, distant metastasis-free survival, cancer-specific survival, and overall survival (OS)
RMontana
in
Active Surveillance - Prostate Cancer
8 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
8 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
8 months ago
degeralix vs lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Hello, Any thoughts on which ADT treatment is better? My husband received his first injection with Degeralix today to prevent the testosterone flare and next month the doctor is planning on a 3 month Lupron injection. From what I’ve been reading, it seems that the Degeralix may be better than Lupron
Oatmeal2
in
Prostate Cancer Network
8 months ago
ART Intermittent HT, Quality of Life, and Testosterone Recovery
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
[u]
Summary
[/u]: Dr. Laurence Klotz presented "Intermittent HT, Quality of Life, and Testosterone Recovery" at the 22nd Annual Scottsdale Prostate Cancer Symposium on Friday, March 17, 2017. Main points include; a. Intermittent ADT Therapy. No difference in OS found in 10 Phase 3 trials. Men
RMontana
in
Active Surveillance - Prostate Cancer
8 months ago
Gleason score 8 and lots of questions...
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Hi all! First time posting here but I have been lurking the last month or so and thanks so much to all of you who take the time to contribute. It has helped me ramp up the learning curve so quickly and the comradery and support here are powerful. My story: 63 year old reasonably healthy male. PSA
Scuttfarkus
in
Prostate Cancer Network
8 months ago
Prostate cancer morphed into NEPC
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
I was recently blindsided by my "under control" prostate cancer, turning into High Grade Neuroendocrine Prostate cancer (NEPC). After 13 years of various therapies, the last few years included Lupron/Eligard, Zytiga, Xtandi. This kept the PSA low (around .2) and kept my MO happy. In 2021, I asked my
CharlieBC
in
Advanced Prostate Cancer
8 months ago
Anyone w Xofigo experience?
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
Warriors, Diagnosed w MHSPC May 2021. Gleason 5+4 . PSA 780. Started ADT right away . Went through 2021 and 2022 H2 body adjusting to all the changes. 2023 H1 pretty solid , feeling pretty good. Recent PSA went from 0.32 to 0.64. CT unchanged but bone scan w contrast shows new uptake. RO recommending
JDN0415
in
Advanced Prostate Cancer
8 months ago
ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
8 months ago
1
...
29
30
31
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3913 results
Prostate Cancer Network
415 results
Endometriosis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest