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Requesting Help to Develop Bespoke BAT
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Fight Prostate Cancer
1 year ago
Requesting Help to Develop Bespoke BAT Protocol
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
Brief history. Diagnosed in July 2020 with oligometastatic PC with PSA 1,600… picked at 13,000+ after biopsy, Gleason 8. One previous bone femur lesion ( succesfuly treated by SBRT and 3 pelvic lymphodes (succesfuly treated by Lu-177). Discordance and previous existence of FDG+/PSMA- lesions. Volume
CurrentSEO
in
Advanced Prostate Cancer
1 year ago
PSA Went Up After Start of ADT
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
I had my prostate removed in January. I started ADT about two weeks ago and just received my second session of radiation. Prior to starting ADT, my PSA was .37 and a month prior was .22. I had blood drawn right after my first session of radiation yesterday and got the result back today. My PSA has
toyman79912
in
Advanced Prostate Cancer
1 year ago
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Docetaxel and deterioration
My oncologist last Tuesday informed me that: 1. The drug I am on, Xtandi, is going to fail. The is hoping it will manage the rest of this year and the next. 2. After that, all she has in her armoury is docetaxel, with 6 - 10 cycles spaced at 3 weekly intervals. She expressed concern that, as I
My oncologist last Tuesday informed me that: 1. The drug I am on, Xtandi, is going to fail. The is hoping it will manage the rest of this year and the next. 2. After that, all she has in her armoury is docetaxel, with 6 - 10 cycles spaced at 3 weekly intervals. She expressed concern that, as I
BrentW
in
Advanced Prostate Cancer
1 year ago
PSA Nadir After RT+ADT for Prostate Cancer Predicts Outcomes
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
monthshttps://www.renalandurologynews.com/home/news/urology/prostate-cancer/psa-nadir-after-rtadt-for-prostate-cancer-predicts-outcomes/?utm_medium=email&utm_source=rasa_io&utm_campaign=newsletter One could read this and construe that that 6 months of ADT would be as good as as 24-36 but of course
Scout4answers
in
Advanced Prostate Cancer
1 year ago
Castrate Resistance Mechanism & Statins
https://medicine.wustl.edu/news/study-reveals-how-treatment-resistant-prostate-cancer-supplies-its-own-hormonal-fuel/ Good afternoon chaps - read the above article re mechanisms leading to castrate resistance ; In summary it appears to conclude that the PCa tumours sense the lack of testosterone
https://medicine.wustl.edu/news/study-reveals-how-treatment-resistant-prostate-cancer-supplies-its-own-hormonal-fuel/ Good afternoon chaps - read the above article re mechanisms leading to castrate resistance ; In summary it appears to conclude that the PCa tumours sense the lack of testosterone
PSA680
in
Advanced Prostate Cancer
1 year ago
Goat whey, casein, IGF-1 etc. - Do they promote or slow cancer growth?
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
Asking employer for accommodations - yes, no, maybe?
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
Quick background:BCRed about 2.5 years after adjuvant RT to prostatic bed after RARP. Started Firmagon in May 2022 after nothing seen on PSMA PET/CT with PSA at 0.4. Switched to Orgovyx in November since injection site reaction was compromising QoL. Just before BCR was detected, I started taking adderall
farmanerd
in
Advanced Prostate Cancer
1 year ago
Any advice would be appreciated
Three years ago my dear friend was diagnosed with metastisized prostate cancer. Stage 8. Cancer had spread to bone but not to lymph nodes or organs. HealthUnlocked helped me, as primary support person, to navigate options, to formulate useful questions for our medical team, to anticipate treatment side
Three years ago my dear friend was diagnosed with metastisized prostate cancer. Stage 8. Cancer had spread to bone but not to lymph nodes or organs. HealthUnlocked helped me, as primary support person, to navigate options, to formulate useful questions for our medical team, to anticipate treatment side
SupportP
in
Advanced Prostate Cancer
1 year ago
Pluvicto and tongue and taste issues
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
Previously posted the below message. Just had third Pluvicto infusion (6/9) and tongue and taste issue has gotten worse. Tried all suggestions from Oral Medicine at Dana and suggestions on HealthUnlocked. Has anyone experienced this issue and if so, any further suggestions. Your input always appreciated
TTJJ1
in
Advanced Prostate Cancer
1 year ago
testosterone boosters after ADT?
I finished SBRT in September and a six month course of ADT in March. I asked my endocrinologist about zinc and Vitamin D to aid T recovery, and he said it probably wouldn’t help, but won’t hurt anything. I saw some “testosterone support” from Wieder at the store and am considering it. It augments
I finished SBRT in September and a six month course of ADT in March. I asked my endocrinologist about zinc and Vitamin D to aid T recovery, and he said it probably wouldn’t help, but won’t hurt anything. I saw some “testosterone support” from Wieder at the store and am considering it. It augments
Mike404
in
Prostate Cancer Network
1 year ago
Right Bundle Branch Block(RBBB)
I have now added a Cardiologist to my list of doctors. During a pre-op checkup for surgery on my Left knee, It was discovered that I have a complete RBBB. My research shows that Eligard/ ADT can be a possible cause. Is anyone else dealing with this? I have an Echocardiogram set for this coming Tuesday
I have now added a Cardiologist to my list of doctors. During a pre-op checkup for surgery on my Left knee, It was discovered that I have a complete RBBB. My research shows that Eligard/ ADT can be a possible cause. Is anyone else dealing with this? I have an Echocardiogram set for this coming Tuesday
B8ssist
in
Advanced Prostate Cancer
1 year ago
How long should PSA go down after SBRT
Before Treatment, 3+4 gleason, PSA 2.7 on Avodart. 9 months after ViewRay SBRT treatment, no ADT, PSA are the following: 8/9/2022 2.7 ng/ml Before Treatment 9/24/2022 Treatment finished 12/2/2022 .92 ng/ml 3/2/2023 .40 ng/ml 6/9/2023 .49 ng/ml How low should PSA go down before
Before Treatment, 3+4 gleason, PSA 2.7 on Avodart. 9 months after ViewRay SBRT treatment, no ADT, PSA are the following: 8/9/2022 2.7 ng/ml Before Treatment 9/24/2022 Treatment finished 12/2/2022 .92 ng/ml 3/2/2023 .40 ng/ml 6/9/2023 .49 ng/ml How low should PSA go down before
Yearofthecow
in
Prostate Cancer Network
1 year ago
I need help please
Hi Feb 2023 my husband PSA was 7.4 considered non urgent by our GP Private MRI showed stage 5 prostrate cancer in situ of right hand side Biopsy showed a a Gleason score of 9 Bone scans clear CT scans clear No node involved Diagnosis TP3a Prostectomy nine weeks ago The results were not great
Hi Feb 2023 my husband PSA was 7.4 considered non urgent by our GP Private MRI showed stage 5 prostrate cancer in situ of right hand side Biopsy showed a a Gleason score of 9 Bone scans clear CT scans clear No node involved Diagnosis TP3a Prostectomy nine weeks ago The results were not great
Goggiealoud
in
Advanced Prostate Cancer
1 year ago
ART Long-Term Mortality Low Regardless of Treatment in Local Prostate Cancer
Amazing! The headline states that there is ‘low’ mortality regardless of treatment for local PCa…really? Well, that did not make me feel very good as I opted for treatment! RP, followed by ADT for 6 months, followed by IMRT sRT, followed by 15 months of ADT post treatment…I was not feeling so good
Amazing! The headline states that there is ‘low’ mortality regardless of treatment for local PCa…really? Well, that did not make me feel very good as I opted for treatment! RP, followed by ADT for 6 months, followed by IMRT sRT, followed by 15 months of ADT post treatment…I was not feeling so good
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Recommendation re supplements
Hi allI'm fairly new to the forum and I'm finding all your info and wealth of experience extremely helpful. Have learnt that addressing possible nutritional deficiencies is important before Thyroid hormone therapy can be optimally effective. I have Hashimotos and recently posted full thyroid panel results
Hi allI'm fairly new to the forum and I'm finding all your info and wealth of experience extremely helpful. Have learnt that addressing possible nutritional deficiencies is important before Thyroid hormone therapy can be optimally effective. I have Hashimotos and recently posted full thyroid panel results
Hollybushroad
in
Thyroid UK
1 year ago
KETO!!!! MIDRIFF FAT.......
Hi all trying do keto?Anyone have a plan or successful way forward. I been kinda doing keto, keep hitting unexpected carbohydrates Then to much protein. All I got at moment, is me looking after me.... Doing gym stuffs. Sleeping better Drinking better Now need really help myself to eat better. But
Hi all trying do keto?Anyone have a plan or successful way forward. I been kinda doing keto, keep hitting unexpected carbohydrates Then to much protein. All I got at moment, is me looking after me.... Doing gym stuffs. Sleeping better Drinking better Now need really help myself to eat better. But
Mrtroxely
in
Advanced Prostate Cancer
1 year ago
By Tim Baker. Author of Patting the Shark.
I miss my cock. The size and appearance of my old fella was nothing remarkable. Circumcised, a tad over the average six inches when hard (I’ll admit to measuring my erection as an insecure teenager to confirm its normality), it nevertheless possessed what I’d like to consider a certain sleek elegance.A
I miss my cock. The size and appearance of my old fella was nothing remarkable. Circumcised, a tad over the average six inches when hard (I’ll admit to measuring my erection as an insecure teenager to confirm its normality), it nevertheless possessed what I’d like to consider a certain sleek elegance.A
Aussieguy1
in
Prostate Cancer Network
1 year ago
Need help/input on Adjuvant vs salvage radiation after prostatectomy & extended lymph node dissection. Also studies/input on # fractions?
Looking for input on following questions: Are there any studies that show how common lymphedema is after ePLND? (25 nodes removed). Can you share them? Would the risk of lymphedema go up with 20 fractions vs 33 fractions? Any studies on efficacy of 20 vs 33? Lastly, based on history below, what
Looking for input on following questions: Are there any studies that show how common lymphedema is after ePLND? (25 nodes removed). Can you share them? Would the risk of lymphedema go up with 20 fractions vs 33 fractions? Any studies on efficacy of 20 vs 33? Lastly, based on history below, what
StephH72
in
Advanced Prostate Cancer
1 year ago
Update on my Estradiol experiment
I just posted this update to my profile: UPDATE: June 5, 2023: I am continuing to take Orgovyx and my most recent PSA was again. <.02 in April. Also in April, I restarted my experiment with Estradiol patches as a treatment for osteoporosis and ADT SEs. I started on one 0.25 patch twice per week. Today
I just posted this update to my profile: UPDATE: June 5, 2023: I am continuing to take Orgovyx and my most recent PSA was again. <.02 in April. Also in April, I restarted my experiment with Estradiol patches as a treatment for osteoporosis and ADT SEs. I started on one 0.25 patch twice per week. Today
NewPotatoCaboose
in
Advanced Prostate Cancer
1 year ago
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