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One last push ..please...help for my Dad. NHS treatments no longer viable - Pca stage 4.
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
Guys...do not know how to connect this post to my previous ones..sorry. I'm also all over the place, forgive my ramblings! I have finally gotten hold of Dad's records. Nothing more NHS can do, so am looking at Turkey for Lu 177. I know this is an option, but want to literally exhaust anything in the
kikinini
in
Advanced Prostate Cancer
7 days ago
Building Bones and Shrinking Moobs
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Started transdermal estradiol (0.0375 mg) in November 2023 to counter negative effects of ADT (relugolix and abiraterone) on bone density. Increased the estradiol to 0.075 mg in January 2024 which accelerated my gynecomastia. I asked my MO about using transdermal tamoxifen along with the estradiol to
Flydad
in
Advanced Prostate Cancer
8 days ago
Metathesized Breast Cancer after 28 years
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
I had breast cancer in 1996. I was treated with a double mastectomy, hormonal therapy, and chemotherapy. I had no radiation. Now, in 2024, I have a metathesized breast cancer primarily in the bones with foci in my lungs, and thickening in my pleura. I feel fine, although my blood markers have been
Notofu4me
in
SHARE Metastatic Breast Cancer
9 days ago
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Taxol-Anyone had experience with Taxol
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
I have ER+ Her2- metastatic breast cancer. Tumors at in my spine, pelvis and a couple ribs. Up to this point in time I have been on Hormonal therapy regimens and the latest one (Orserdu) has failed. My Dr. is now suggesting Taxol (Paclitaxel) IV Chemo treatment. Anyone have experience with this drug?
DinNorCal
in
SHARE Metastatic Breast Cancer
10 days ago
primary tumor
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
I am BRAC2 positive with a G9 and mets to lungs. Started ADT March 23, two cycles of chemo last fall, currently on Nubeqa and Orgavix. Last PSA was .1. The nodules and lymph nodes are gone and I was turned down for radiation to the prostate. My diet is beyond clean, never thought I could do it, but I
muttonman
in
Advanced Prostate Cancer
10 days ago
Slight PSA rise and MO discontinuing ADT due to fatigue
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Father, 86, Stage 4A prostate cancer has been treated under STAMPEDE Protocol since November 2022 including prostate + whole pelvic radiation completed March 2023 (history in bio). Had appointment with MO today - initial plan was for this to be last shot of Lupron while Zytiga would be continued for
Superbfloor
in
Advanced Prostate Cancer
10 days ago
A 4 Year Journey
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
I had a Prostatectomy in July 2020. My PSA was a 5.0 and my Gleason was 3+4. Cancer did not penetrate outer wall of gland. Decipher score was 64. Did Kegels and PT for incontinence....nothing helped and today still very much incontinent. In May 2022 my PSA began to steadily rise from undetectable for
lockerroombuddy
in
Prostate Cancer And Gay Men
10 days ago
looking for input - RIsing PSA with Negative PSMA Pet scan
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
diagnosed in 2020 with Oligometastatic prostate cancer (1 spot detected on right ischium (hip)). Had prostate removed via surgery, did 39 radiation treatments to hip and prostate bed and took Lupron and Erleada . Stopped the hormone therapy in July 2022 (psa undetectable for 2 yrs). My psa in 2024
ND1988
in
Advanced Prostate Cancer
10 days ago
A technical question on Radiation
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
A technical question: The radiation oncologist tells me that I received 19.5 Gy via Cyberknife over 3 days, a high biologic dose, and 42Gy via conventional (IMRT) radiation over 21 days. He says these are not linearly additive ( ie., not just for a total of 61.5Gy) but that the effective biologic
Sushupthi
in
Advanced Prostate Cancer
10 days ago
ADT side effects
Which has worse side effects : Bacalumatide or Lupron ?
Which has worse side effects : Bacalumatide or Lupron ?
Bacalutamide
in
Prostate Cancer Network
10 days ago
Chemo Docetaxel
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
My husband is in year 7 since RP and ADT Drugs, NUBEQA and Zytiga, all of which eventually failed. He is now having 6 rounds of Docetaxel … My question is: has anyone gone into a period of remission after being on Docetaxel? As of last Auxium scan mid June no visible spread into a major organ or bones
JolleySprings
in
Advanced Prostate Cancer
11 days ago
ADT prior to RT
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
It has been recommended that I use ADT prior to RT. I believe they are intending to use Lupron but I hear there are alternatives with fewer side effects. Any suggestions and studies to support?
FredNick
in
Prostate Cancer Network
11 days ago
Does HBOT stimulate cancerous tissue?
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
I’m considering HBOT for cystitis and proctitis 11 months after HDR Brachyboost with pelvic SBRT. Just finished 1 year ADT. Here’s my concern. 11 months later, I know my cancerous cells are still in the process of dying and not being able to divide anymore. The idea of HBOT is to increase certain
SongofFred
in
Advanced Prostate Cancer
11 days ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
Advanced Prostate Cancer
12 days ago
GRATEFUL
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
Went to appointment with Radiation Oncologist at Emory St. Joseph's Winship Cancer Center - Dr. Bruce Hershatter. Good guy, no BS, straight shooter. He actually drew it out on a sheet of paper (front & back, back was worse) for me and talked me and my friend through the options (1) and pretty much
BCPC
in
PCOS UK (Verity)
12 days ago
Darolutamide (Nubeqa) Vs Enzalutamide ( Xtandi)
Are there any studies comparing efficacy and side effect profile of darolutamide Vs enzalutamide when given together with first generation ADT ? I read that darolutamide does not cross blood brain barrier so may have lesser side effects ?
Are there any studies comparing efficacy and side effect profile of darolutamide Vs enzalutamide when given together with first generation ADT ? I read that darolutamide does not cross blood brain barrier so may have lesser side effects ?
Tinkudi
in
Advanced Prostate Cancer
12 days ago
Low TSH advice and breast cancer
I’ve been hypo for 25 years . October 23, non fasted , 12 hours after last dose of Levi , annual bloods showed TSH 0.1 (0.2-6) and T4 18.9.(12-22). Recommended retest in 6 months . I saw private endo ( useless ) who did fasted bloods . TSH 4.5 , T4 16.8 and T3 3.9 Levo was 24 hours before bloods
I’ve been hypo for 25 years . October 23, non fasted , 12 hours after last dose of Levi , annual bloods showed TSH 0.1 (0.2-6) and T4 18.9.(12-22). Recommended retest in 6 months . I saw private endo ( useless ) who did fasted bloods . TSH 4.5 , T4 16.8 and T3 3.9 Levo was 24 hours before bloods
farrellkl68
in
Thyroid UK
13 days ago
Unusual case
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
npac
in
Advanced Prostate Cancer
13 days ago
PD and Prostate Cancer
...that is, there is never an end to the worst. I will soon have to undergo radiotherapy for prostate cancer. I am currently undergoing hormone therapy. I am looking for similar experiences and above all advice on how to manage this new situation in cohabitation with PD. Thank you very much.
...that is, there is never an end to the worst. I will soon have to undergo radiotherapy for prostate cancer. I am currently undergoing hormone therapy. I am looking for similar experiences and above all advice on how to manage this new situation in cohabitation with PD. Thank you very much.
Fed1000
in
Cure Parkinson's
13 days ago
Treatment awaited
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Hi all I just completed my history incorrectly as a post. I have not posted before as I have been a silent member without any worrying ongoing elevations in PSA for about four years. I have keenly observed the posts of members and learned a good deal from them. This post is the follow up on my history
Sisyphus
in
Advanced Prostate Cancer
14 days ago
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