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How to recover from a failed flare taper
PMR diagnosed: June 2021 Intial prednisone taper 30 to 8 mg/dy by Aug 2022—then flare 14 months: Successful flare recovery to 7.5 mg/dy by end of 2022-then flare 3 months: Inadequate flare recovery to about11 mg/dy through this March. I did not get above the pain threshold and was tolerating more
PMR diagnosed: June 2021 Intial prednisone taper 30 to 8 mg/dy by Aug 2022—then flare 14 months: Successful flare recovery to 7.5 mg/dy by end of 2022-then flare 3 months: Inadequate flare recovery to about11 mg/dy through this March. I did not get above the pain threshold and was tolerating more
JASpmr
in
PMRGCAuk
1 year ago
Alendronic acid
Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, iv'e not felt this good in years. I can actually walk properly, walk with a stride and at a decent pace without feeling that my legs are bound by a resistance band. My energy levels are almost normal as some 4 years ago.
Since my flair up I've now been on 15mg pred ( up from 7mg)for 3 weeks. Well, iv'e not felt this good in years. I can actually walk properly, walk with a stride and at a decent pace without feeling that my legs are bound by a resistance band. My energy levels are almost normal as some 4 years ago.
Bobbury
in
PMRGCAuk
1 year ago
pain management tips for someone who can’t take anti inflammatory medication
hi I’m in need of some help and this is the only place I could think of I was diagnosed with Endometriosis a few years ago - after about 20 years of trying to get a doctor to listen to me. I was only listened to as I was getting pretty bad cramps in my bottom- I have a underlying condition where I
hi I’m in need of some help and this is the only place I could think of I was diagnosed with Endometriosis a few years ago - after about 20 years of trying to get a doctor to listen to me. I was only listened to as I was getting pretty bad cramps in my bottom- I have a underlying condition where I
RJane83
in
Endometriosis UK
1 year ago
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weight loss and zoledronic acid
hi,I have been reading reports that zoledronic acid can cause weight loss, that's ok for people who want to lose weight, but not so good on us people who want to gain weight, I go for my infusion today.
hi,I have been reading reports that zoledronic acid can cause weight loss, that's ok for people who want to lose weight, but not so good on us people who want to gain weight, I go for my infusion today.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
Discovery of a signaling feedback circuit that defines interferon responses in myeloproliferative neoplasms- Published: 01 April 2022
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
PhysAssist
in
MPN Voice
1 year ago
Retested: low D & B12, high ferritin
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
I have retested with medicheck because I'm in the queue to see a private endocrinologist about my symptoms. I was hoping that treating my vitamins and minerals may give a different thyroid hormone picture. Iron 239ug/L (range 30-150) I am under haematology, treated for iron deficiency anaemia. Tested
Insomania
in
Thyroid UK
1 year ago
weight loss and PCOS
does anyone have any good ideas of how to lose weight with this condition, I’m taking the supplements. Inositol, chronium, omega 3, ACV, I’m going to the gym 3 days a week and then calorie counting but I’m still not loosing weight and I’m losing my mind
does anyone have any good ideas of how to lose weight with this condition, I’m taking the supplements. Inositol, chronium, omega 3, ACV, I’m going to the gym 3 days a week and then calorie counting but I’m still not loosing weight and I’m losing my mind
Pingu1991
in
PCOS UK (Verity)
1 year ago
PBC and another auto immune
My doctor gave me Ursodiol 500 mg and propranolol 10 mg. If I take 500 mg it will give me watery diarrhea. When I take 250 mg it is ok for several doses. It will get to the point of not feeling well, unablre to function very well and I get very mean which isn't my personally. So, I stop taking the
My doctor gave me Ursodiol 500 mg and propranolol 10 mg. If I take 500 mg it will give me watery diarrhea. When I take 250 mg it is ok for several doses. It will get to the point of not feeling well, unablre to function very well and I get very mean which isn't my personally. So, I stop taking the
Max1942mmm
in
PBCers Organization
1 year ago
Sulphoraphane in canola / rapeseed oil?
Now when I see the beautiful yellow rapeseed fields, I wonder if this cruciferous plant, like broccoli, kale and Brussels sprouts, also contains as much sulphoraphane, especially in the concentrated form when cold pressed (bio) oil is made from it. Canola / rapeseed oil would have the lowest percentage
Now when I see the beautiful yellow rapeseed fields, I wonder if this cruciferous plant, like broccoli, kale and Brussels sprouts, also contains as much sulphoraphane, especially in the concentrated form when cold pressed (bio) oil is made from it. Canola / rapeseed oil would have the lowest percentage
Esperanto
in
Cure Parkinson's
1 year ago
Advice about plan of treatment
I am 67, was diagnosed with PMR 2 weeks ago after 4 weeks of symptoms (stiffness and pain in neck, arms, shoulders, couldn't raise arms above shoulders, immense tiredness etc). Initial GP contact was excellent - he identified the problem, blood tests same day, consult 2 days later to confirm diagnosis
I am 67, was diagnosed with PMR 2 weeks ago after 4 weeks of symptoms (stiffness and pain in neck, arms, shoulders, couldn't raise arms above shoulders, immense tiredness etc). Initial GP contact was excellent - he identified the problem, blood tests same day, consult 2 days later to confirm diagnosis
MarionA
in
PMRGCAuk
1 year ago
Vitamin
Hi currently on 50mcg of levothyroxine just wondering what is the best vitamins to take currently take roughly about 3000iu of vitamin D and B complex and B12 spray and omega 3 daily any advice thanks.
Hi currently on 50mcg of levothyroxine just wondering what is the best vitamins to take currently take roughly about 3000iu of vitamin D and B complex and B12 spray and omega 3 daily any advice thanks.
Campy1967
in
Thyroid UK
1 year ago
Random Heavy bleeding with severe pain
Hi I take Provera to manage my symptoms and things have been settled bleeding wise for a while now. this past weekend I got really heavy bleeding with pain which made me collapse and then the pain settled for a couple days and then again yesterday, I got really heavy bleeding again and such bad pain
Hi I take Provera to manage my symptoms and things have been settled bleeding wise for a while now. this past weekend I got really heavy bleeding with pain which made me collapse and then the pain settled for a couple days and then again yesterday, I got really heavy bleeding again and such bad pain
Endowarrior1807
in
Endometriosis UK
1 year ago
Barbara
I have osteoporosis and I took Fosamax for a while and then lost 6 teeth! I stopped taking it a while ago, but my back is giving me grief now. I am taking calcium and Vitamin D, but I need to find out whether there are any alternatives to alendronic acid.
I have osteoporosis and I took Fosamax for a while and then lost 6 teeth! I stopped taking it a while ago, but my back is giving me grief now. I am taking calcium and Vitamin D, but I need to find out whether there are any alternatives to alendronic acid.
babayaga
in
Bone Health and Osteoporosis UK
1 year ago
Pain Medication after Laparoscopy
Hi all, Can anyone offer advice on which medication they used after surgery for pain management? Due to my other medical issues I can’t take any NSIADS including: ibuprofen, naproxen, diclofenac, celecoxib, mefenamic acid, etoricoxib & indomethacin. I normally take just cocodamol and rest when
Hi all, Can anyone offer advice on which medication they used after surgery for pain management? Due to my other medical issues I can’t take any NSIADS including: ibuprofen, naproxen, diclofenac, celecoxib, mefenamic acid, etoricoxib & indomethacin. I normally take just cocodamol and rest when
Cats1311
in
Endometriosis UK
1 year ago
canceling zoledronic acid infusion because of ppi use.
hi,I think I will be canceling my zoledronic acid infusion because of increased fracture with my use of lansoprazole 30mgs and not absorbing calcium with ppi, has anyone safely had a infusion while taking ppis,
hi,I think I will be canceling my zoledronic acid infusion because of increased fracture with my use of lansoprazole 30mgs and not absorbing calcium with ppi, has anyone safely had a infusion while taking ppis,
Radars
in
Bone Health and Osteoporosis UK
1 year ago
GP has prescribed Alendronic Acid 70mg
Hi all My Dad’s GP has prescribed Alendronic Acid 70mg tablets without explaining why. My Dad is now on Adcal -D3 1x daily, 9mg Prednisolone daily and 1x weekly Alendronic Acid. Is it normal to be prescribed Alendronic Acid? Also, how far apart should this be taken from Pred? Thanks Lindsay
Hi all My Dad’s GP has prescribed Alendronic Acid 70mg tablets without explaining why. My Dad is now on Adcal -D3 1x daily, 9mg Prednisolone daily and 1x weekly Alendronic Acid. Is it normal to be prescribed Alendronic Acid? Also, how far apart should this be taken from Pred? Thanks Lindsay
Lindsayf
in
PMRGCAuk
1 year ago
Calcium supplement before zoledronic acid infusion.
Hi,I am going for a zoledronic acid infusion on the 25th, the gp prescribed adcal with lemon chewable 1500,I have a hiatus hernia so not taking them,would I be better buying some calcium citrate before my infusion
Hi,I am going for a zoledronic acid infusion on the 25th, the gp prescribed adcal with lemon chewable 1500,I have a hiatus hernia so not taking them,would I be better buying some calcium citrate before my infusion
Radars
in
Bone Health and Osteoporosis UK
1 year ago
antibiotics and osteoporosis
hi,I have just started amoxicillin for blepharitis, 3×500mg a day, I go for my blood test next week prior to starting zoledronic acid infusion, will antibiotics have any effect.
hi,I have just started amoxicillin for blepharitis, 3×500mg a day, I go for my blood test next week prior to starting zoledronic acid infusion, will antibiotics have any effect.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
ppis and zoledronic acid infusion
I am taking 30mgs of lansoprazole is it still OK to take it with zoledronic acid infusion along with my other supplements I take.
I am taking 30mgs of lansoprazole is it still OK to take it with zoledronic acid infusion along with my other supplements I take.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
supplements and zoledronic acid
I have been talking to a nurse at the royal osteoporosis society regarding supplements before I have my zoledronic acid infusion, and she said don't take anything with retinol or zinc in it,anyone heard of that.
I have been talking to a nurse at the royal osteoporosis society regarding supplements before I have my zoledronic acid infusion, and she said don't take anything with retinol or zinc in it,anyone heard of that.
Radars
in
Bone Health and Osteoporosis UK
1 year ago
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