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Professor Graham Hughes' BLOG February 2014 via London Lupus Centre
February 2014 This time, a real record – the wettest winter ever recorded here in the southern part of Britain! Terrible flood scenes. In this month’s blog I propose to deal (or to start to deal) with ‘treatment’ – still a major issue for all of us – patients and doctors, living with Hughes syndrome
February 2014 This time, a real record – the wettest winter ever recorded here in the southern part of Britain! Terrible flood scenes. In this month’s blog I propose to deal (or to start to deal) with ‘treatment’ – still a major issue for all of us – patients and doctors, living with Hughes syndrome
MaryF
Administrator
in
Hughes Syndrome APS Forum
10 years ago
I am on long term rivaroxyban (for recurrent P Es). I now need to have major surgery. What advice has anyone been given about stopping
and restarting rivaroxyban? I react badly to Warfarin but would be happy to use heparin temporally.
and restarting rivaroxyban? I react badly to Warfarin but would be happy to use heparin temporally.
Wagnerm
in
Anticoagulation Support
10 years ago
I want to try one of the new anticoagulant drugs for my A F but my doctor says take warfarin. So at present am on aspirin.
Have only just been diagnosed and would like to try these fairly new drugs but I was wondering if the cost has anything to do with it.
Have only just been diagnosed and would like to try these fairly new drugs but I was wondering if the cost has anything to do with it.
doubtingdolly
in
Anticoagulation Support
10 years ago
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My tsh is 18.70( range 0.35 to ) , t4 slightly low and t3 normal ... Doctors have asked me to up to 1 grain from 3/4 should I ?
dxbgal
in
Thyroid UK
10 years ago
Counting down days to specialist appointment
I go to my specialist on 3/18. I know I won't have any major answers that day, but I'm still hoping he will give me an idea about things. I know I will probably need a biopsy, as my ana being high as well has caused them some pause to see if I have overlap syndromes, or its just from the PBC. I guess
I go to my specialist on 3/18. I know I won't have any major answers that day, but I'm still hoping he will give me an idea about things. I know I will probably need a biopsy, as my ana being high as well has caused them some pause to see if I have overlap syndromes, or its just from the PBC. I guess
NotorDJP
in
PBC Foundation
10 years ago
Bath Half Juicy lowdown...
Before I even start running: A train journey A long walk in the rain CROWDS CROWDS NOISE Queueing for loo's with a blue slimy flush and hand spray ( one woman found poo on the flush...yuck) Then... In Runners Village we found shelter from the rain under the Rugby club canopy which happened
Before I even start running: A train journey A long walk in the rain CROWDS CROWDS NOISE Queueing for loo's with a blue slimy flush and hand spray ( one woman found poo on the flush...yuck) Then... In Runners Village we found shelter from the rain under the Rugby club canopy which happened
ju-ju-
Administrator
in
Couch to 5K
10 years ago
Lung Volume Reduction Surgery (valves) - Is it a postcode lottery?
There has been a lot of interest and support from many of you regarding this procedure but it seems that there are a lot of variations over the country with some medics willing, others not (cost?) and a few who'd never even heard of it. (call yourselves doctors?). Seems like it still depends on where
There has been a lot of interest and support from many of you regarding this procedure but it seems that there are a lot of variations over the country with some medics willing, others not (cost?) and a few who'd never even heard of it. (call yourselves doctors?). Seems like it still depends on where
notlocal
in
Lung Conditions Community Forum
10 years ago
Differences between LMWHeparin and Warfarin, how they work, side effects and suitability.
Hi all, I've been looking at the different anticoagulation treatment given for different cases/people, it seems the treatment is usually dependant on whether you have suffered a thrombosis or not. If you have then I believe the common treatment is warfarin however some take Heparin. Is this down to
Hi all, I've been looking at the different anticoagulation treatment given for different cases/people, it seems the treatment is usually dependant on whether you have suffered a thrombosis or not. If you have then I believe the common treatment is warfarin however some take Heparin. Is this down to
jp83
in
Hughes Syndrome APS Forum
10 years ago
Genetics...
I was diagnosed with APS 4 years ago after a DVT & PE. (I was 35) I have a 19 year old daughter that I wanted to be tested for any blood disorder before being put on birth control. Thank goodness I did!! Her tests came back that she has Protein S Deficiency and Antithrombin III Deficiency. But not
I was diagnosed with APS 4 years ago after a DVT & PE. (I was 35) I have a 19 year old daughter that I wanted to be tested for any blood disorder before being put on birth control. Thank goodness I did!! Her tests came back that she has Protein S Deficiency and Antithrombin III Deficiency. But not
lisakay
in
Hughes Syndrome APS Forum
10 years ago
Provera
Hello everyone - I am new to this forum, I was diagnosed with Endo this year. I've had a laporoscopy to remove a chocolate cyst and I have now been put on Provera to try and eliminate the Endo. I've heard a lot of horror stories about weight gain and hair loss etc as possible side effects. I've only
Hello everyone - I am new to this forum, I was diagnosed with Endo this year. I've had a laporoscopy to remove a chocolate cyst and I have now been put on Provera to try and eliminate the Endo. I've heard a lot of horror stories about weight gain and hair loss etc as possible side effects. I've only
PinkCherry
in
Endometriosis UK
10 years ago
After 4 years of good health - with warfarin and having stopped smoking, I am devastated to have suffered a mild TIA this week. Why?
Why do outbreaks occur even when on warfarin? Can stress or anything else cause it, as I believe not. Does anything help alongside meds - I am now back on heparin until my INR levels reach 2.5. So frustrating but lucky to get fab care at RIE. Any advice gratefully received ?
Why do outbreaks occur even when on warfarin? Can stress or anything else cause it, as I believe not. Does anything help alongside meds - I am now back on heparin until my INR levels reach 2.5. So frustrating but lucky to get fab care at RIE. Any advice gratefully received ?
Edinburgh
in
Hughes Syndrome APS Forum
10 years ago
Let loose at last :)
Well after a 3 week gap because of cold/virus and then my bad weekend with rash etc I was able to do my mtx injection today under the watchful eye of the nurse, I now have 4 weeks supply sitting here all ready to go. The cream for the rash is working so that's calmed down a lot, just need the pain in
Well after a 3 week gap because of cold/virus and then my bad weekend with rash etc I was able to do my mtx injection today under the watchful eye of the nurse, I now have 4 weeks supply sitting here all ready to go. The cream for the rash is working so that's calmed down a lot, just need the pain in
jenwight
in
NRAS
10 years ago
Wombling Along
This week I have been given a foot warmer and massager jobbie a coupon for money off which I immediately give to George for his mum. Some freshly laid eggs, a flea that quickly gets dispatched, a bit of a shock when I look down to find a live chicken in a box at my feet in the kitchen. Coffee and cake
This week I have been given a foot warmer and massager jobbie a coupon for money off which I immediately give to George for his mum. Some freshly laid eggs, a flea that quickly gets dispatched, a bit of a shock when I look down to find a live chicken in a box at my feet in the kitchen. Coffee and cake
nedd
in
Fibromyalgia Action UK
10 years ago
Elevated ALT at 65 u/l
Hi all hope you are well. I seen my gastro last week and have just had my results back. 6 months ago he said that my ATL was showing mild abnormalities. He tested me again and it is now 65 a/l. He said when I was last tested he was slightly concerner about PBC and AIH overlap because of my elevated ALT's
Hi all hope you are well. I seen my gastro last week and have just had my results back. 6 months ago he said that my ATL was showing mild abnormalities. He tested me again and it is now 65 a/l. He said when I was last tested he was slightly concerner about PBC and AIH overlap because of my elevated ALT's
Gemma01
in
PBC Foundation
10 years ago
Hi all. I have just had a liver biopsy to confirm pbc. But it has come back with a possibility of hepatitis. I have to have a second opinion
I still have all the symptoms of pbc. Severe fatigue and tiredness. I just wanted to know has anyone had the same happen to them.
I still have all the symptoms of pbc. Severe fatigue and tiredness. I just wanted to know has anyone had the same happen to them.
smudger123
in
PBC Foundation
10 years ago
Not a good day
I have had a really bad day at college had a pizza for lunch and after lunch I had a headache and came over really shakey and I had AJ my fav teacher with me she knew something was wrong I started crying and she called me out the door and I had fainted in her arm she had to put me on a chair and call
I have had a really bad day at college had a pizza for lunch and after lunch I had a headache and came over really shakey and I had AJ my fav teacher with me she knew something was wrong I started crying and she called me out the door and I had fainted in her arm she had to put me on a chair and call
maryp17
in
Mental Health Support
10 years ago
Phlebitis
Hi all. Around this time last year I got a dvt in my thigh/ groin and wear my compression stocking religiously. Recently my "good leg" as I call it has been sore, red and tender to touch. I went to my gp today who diagnosed Phlebitis and I'm now being advised to wear a stocking on that leg as well
Hi all. Around this time last year I got a dvt in my thigh/ groin and wear my compression stocking religiously. Recently my "good leg" as I call it has been sore, red and tender to touch. I went to my gp today who diagnosed Phlebitis and I'm now being advised to wear a stocking on that leg as well
fedup33
in
Anticoagulation Support
10 years ago
Is it normal to have no follow up after hysterectomy?
Had hyster on wed due to endo and adeno being discharged tomorrow. Not seen dr since op she came to see my husband said womb out ovaries out start hrt tomorrow. That was it. I dont know if she found any endo anywhere else if she removed it etc just got 14 days premarin to take. Argh
Had hyster on wed due to endo and adeno being discharged tomorrow. Not seen dr since op she came to see my husband said womb out ovaries out start hrt tomorrow. That was it. I dont know if she found any endo anywhere else if she removed it etc just got 14 days premarin to take. Argh
michelle2013
in
Endometriosis UK
10 years ago
Hi, I'm new here and wanted some info on AIH (autoimmune hepatitis) and PSC (primary sclerosing cholangitis) overlap.
Basically I have been suffering with liver problems from the age of 14 and have never really got to grips with my illness because I have soo much going on. I have heard that PSC is more common is males than females and I am just looking for someone who can help me work out my illness. Thank you in advance
Basically I have been suffering with liver problems from the age of 14 and have never really got to grips with my illness because I have soo much going on. I have heard that PSC is more common is males than females and I am just looking for someone who can help me work out my illness. Thank you in advance
AIH2009
in
British Liver Trust
10 years ago
Pulmonary Hypertension
Hi. I'm Roberto from Spain. I was diagnosed with primary APS in 2001 after a massive pulmonary embolism. In 2011 I was diagnosed with Primary or Idiopathic Pulmonary Hypertension. I would like to meet other people with this condition in the context of Lupus or APS. And the crucial question: Is your pulmonary
Hi. I'm Roberto from Spain. I was diagnosed with primary APS in 2001 after a massive pulmonary embolism. In 2011 I was diagnosed with Primary or Idiopathic Pulmonary Hypertension. I would like to meet other people with this condition in the context of Lupus or APS. And the crucial question: Is your pulmonary
Romartsantos
in
Hughes Syndrome APS Forum
10 years ago
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